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De-escellation of ADT with modern RT treatment
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
Don_1213
in
Prostate Cancer Network
7 months ago
Pelvic Pain and spotting 9+ years post hysterectomy
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Livkatt90
in
OvaCare
7 months ago
Can we trust AI analysis?
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Mgtd
in
Prostate Cancer Network
7 months ago
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Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
7 months ago
biotin supplements
Hi all! My hair is thinning again , I think due to hrt I’ve changed and I remembered seeing many of you are taking biotin for hair loss. Can anyone advise me as to what dosage and make has worked for you? Looking on Amazon , there’s a wide array of strengths and prices …. It’s very confusing! Thank you
Hi all! My hair is thinning again , I think due to hrt I’ve changed and I remembered seeing many of you are taking biotin for hair loss. Can anyone advise me as to what dosage and make has worked for you? Looking on Amazon , there’s a wide array of strengths and prices …. It’s very confusing! Thank you
LinaM
in
NRAS
7 months ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
Persistent PSA
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
Nonno
in
Prostate Cancer Network
6 months ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
7 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
7 months ago
ArteraAI Test
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
Bourbon2024
in
Prostate Cancer Network
7 months ago
WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
8 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
7 months ago
No period dr says might be due to blockage at uterus entrance, any experience?
Hi friends After a heavy surgery for removing Adenomyosis endo and many fibroids last year dr put a barrier in my uterus to prevent adhesions and I was on decapeptal to prevent endo coming back. After stopping decapeptyl and when hrt stoppd I got my periods back regularly but then after 3 month I
Hi friends After a heavy surgery for removing Adenomyosis endo and many fibroids last year dr put a barrier in my uterus to prevent adhesions and I was on decapeptal to prevent endo coming back. After stopping decapeptyl and when hrt stoppd I got my periods back regularly but then after 3 month I
Bebe294
in
Fertility Network UK
7 months ago
Decapeptyl injection and marina coil
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
vjhm
in
Endometriosis UK
7 months ago
THC Gummies and psilocybin
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Worked_the_World
in
Advanced Prostate Cancer
7 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
7 months ago
Decapeptyl injection with Tibolone HRT
Hi there, I went to the GP for extreme emotions and pain around my periods, and severe cramps/bleeding induced when exercising. I was put on an 6 year waiting list (Northern Ireland) so had to pay for private healthcare to see a gynaecologist. I was given the first monthly dose of decapeptyl on
Hi there, I went to the GP for extreme emotions and pain around my periods, and severe cramps/bleeding induced when exercising. I was put on an 6 year waiting list (Northern Ireland) so had to pay for private healthcare to see a gynaecologist. I was given the first monthly dose of decapeptyl on
CorganCat
in
Endometriosis UK
7 months ago
Hypo and Menopausal
Good morning you lovely people does anyone have any information surrounding thyroid meds and HRT? Since taking HRT I feel more hypo and my main symptom is a lot of hair loss. GP is trying to help but doesn’t really understand and still only goes by TSH. Do the hormones interfere with each other? I make
Good morning you lovely people does anyone have any information surrounding thyroid meds and HRT? Since taking HRT I feel more hypo and my main symptom is a lot of hair loss. GP is trying to help but doesn’t really understand and still only goes by TSH. Do the hormones interfere with each other? I make
Pixie50
in
Thyroid UK
7 months ago
Best natural anti anxiety remedy
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
woodman72
in
Tinnitus UK
1 year ago
Oestrogen levels
I know this is a menopause question but I can’t find the answer on other forums. I have underactive thyroid and having tests to see if symptoms are thyroid or hrt/menopause The test for Oestrogen level shows 337 range refers to follicle/luteal phase which isn’t relevant as it’s def menopause Is 337
I know this is a menopause question but I can’t find the answer on other forums. I have underactive thyroid and having tests to see if symptoms are thyroid or hrt/menopause The test for Oestrogen level shows 337 range refers to follicle/luteal phase which isn’t relevant as it’s def menopause Is 337
judburke
in
Thyroid UK
7 months ago
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