Tagrisso users

[Mrsmilo]

Hi everyone. I do hope today is a 'good' day for you. I was wondering if there is anyone on here that, like myself, is receiving targeted therapy with a drug called Tagrisso? Despite my oncologist helping with additional side effects advice and treatment, I'm finding it very hard going and would like to find someone else whose taking this drug so we can, perhaps, share experiences and support each other through such difficult times. Thank you for reading this and I wish you all well.

[Lynn2202]

I'm a lung cancer nurse specialist and direct our patients with an EGFR mutation to the online support group. Are you aware of them EGFR Positive UK? You will find a lot of helpful information on there? egfrpositive.org.uk

EGFR Positive UK: Home

Hope this is useful x

[Mrsmilo in reply to Lynn2202]

No I wasn't aware of EGFR Positive UK but I have now reached out to them and have begun to read all the articles and information on there. Its all very helpful and useful so thanks very much for that, Lynn x

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Dear Mrsmilo

It can feel very isolating having cancer and Lynn2202 has signposted you to an excellent patient driven charity EGFR positive UK.

We have an online support group through zoom for those living with lung cancer and you are welcome to join, you can view these and register through this link: roycastle.org/help-and-supp...

As you live in France, you may also find local support groups in your area, or your oncology team may direct you to some face to face support groups.

You are welcome to access any of our information booklets that you can download and this one is for those on targeted therapy: roycastle.org/app/uploads/2...

Cancer Research UK have some good information on Tagrisso: cancerresearchuk.org/about-...

You are welcome to contact us if you would like to discuss anything or have a chat, our ask the nurse helpline number is 00 44 800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600, alternatively our email is [e-mail]

I hope you find support and encouragement in the forum.

Kind regards

Ask the nurse team

The Roy Castle Support Team

[JanetteR57]

Sorry to hear you're having difficulties on your treatment. As others have said EGFR+UK is a highly supportive group and there are Facebook groups. You may also find LUCE and ELF (European Lung Foundation) have information on support groups specific to France. hope you find the support you're seeking soon. good luck with your treatment. lungcancereurope.eu/