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MGUS and PMR/GCA
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
kp60
in
PMRGCAuk
6 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
6 months ago
Total knee replacement
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
Toffeeboyblue
in
PMRGCAuk
7 months ago
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Easy squeeze eye drops
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjögren’s syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjögren’s syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
debjw
in
NRAS
7 months ago
Help!
Hello everyone. 💙It's been six months since my mother had herpes encephalitis type 1, but she still can't stand up and is physically weak. I don't know if occupational therapy is useful or not? What should I do to improve her physical condition?
Hello everyone. 💙It's been six months since my mother had herpes encephalitis type 1, but she still can't stand up and is physically weak. I don't know if occupational therapy is useful or not? What should I do to improve her physical condition?
Ftmz
in
Encephalitis International
20 days ago
Moving forward
Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I had a seizure but sometimes in my sleep. It was either when I was fully awake and alert and I could see my surroundings but then if I did have
Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I had a seizure but sometimes in my sleep. It was either when I was fully awake and alert and I could see my surroundings but then if I did have
mavem100
in
Functional Neurological Disorder - FND Hope
2 months ago
ct abdominal scan with contrast
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
Pycat123
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
7 months ago
Excessive Sleeping
My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is now on PEG for feeds, intermittent urine catheter, flatus tube for bowel movement, and a tracheotomy with ventilator on at night He has speech therapy, physiotherapy, occupational therapy that fills up his days However
My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is now on PEG for feeds, intermittent urine catheter, flatus tube for bowel movement, and a tracheotomy with ventilator on at night He has speech therapy, physiotherapy, occupational therapy that fills up his days However
binnyrox
in
Multiple System Atrophy Trust
3 months ago
Occupational Therapy
Hi everyone, my 11 year old was diagnosed with ADHD six years ago. I am just wondering for those who are having occupational therapy as part of an accommodation - it what ways has it been helpful or if it has been helpful? Just trying to get a sense of how occupational therapy might fit in.
Hi everyone, my 11 year old was diagnosed with ADHD six years ago. I am just wondering for those who are having occupational therapy as part of an accommodation - it what ways has it been helpful or if it has been helpful? Just trying to get a sense of how occupational therapy might fit in.
Uptowngirl12121
in
CHADD's ADHD Parents Together
4 months ago
mucus
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
devon29
in
Lung Conditions Community Forum
19 hours ago
OxyContin and low dose suboxone.
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
shaughnna
in
National Migraine Centre
8 months ago
Doing well after surgery and diagnosis of lung cancer
Hi, I am in the process of waiting to see if my lung nodule has grown which is a spickulated one and I have lost weight. My ct scan results will be a couple of weeks after when I thought so this is quite stressful. On the Internet there is lot of negative stories about lung cancer and I was advised
Hi, I am in the process of waiting to see if my lung nodule has grown which is a spickulated one and I have lost weight. My ct scan results will be a couple of weeks after when I thought so this is quite stressful. On the Internet there is lot of negative stories about lung cancer and I was advised
YellowBirdLady
in
The Roy Castle Lung Cancer Foundation
16 days ago
Hello from Chom 🐕
Chom turned 9 on June 17th. He was adopted from a shelter when he was just one. Abandoned in a flat to fend for himself with a few other dogs it took almost a week for them to be found and rescued. Two of the dogs did not survive. He was the smallest dog that made it. Initially he was a bag of nerves
Chom turned 9 on June 17th. He was adopted from a shelter when he was just one. Abandoned in a flat to fend for himself with a few other dogs it took almost a week for them to be found and rescued. Two of the dogs did not survive. He was the smallest dog that made it. Initially he was a bag of nerves
Caspiana
in
Lung Conditions Community Forum
17 days ago
Nottingham health and well being event
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 month ago
Had lung surgery - would you be willing to share your experience?
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 month ago
Bra after lung surgery?
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
Miranda_GO2
Partner
in
Lung Cancer Support
1 month ago
Interested in joining GO2's Mind Over Matter group?
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
Miranda_GO2
Partner
in
Lung Cancer Support
1 month ago
Post radiotherapy for lung cancer
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Hokiun
in
The Roy Castle Lung Cancer Foundation
2 months ago
Please join us Tuesday,May 21st, for our Living Room discussion on Is a Clinical Trial Right for You?
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Michelezeh
Partner
in
Lung Cancer Support
2 months ago
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