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Tapering - have I got it wrong?
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
EnyaBlue
in
PMRGCAuk
10 months ago
Microscopic Haematuria
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Elliehca
in
Bladder Health UK
10 months ago
Cotreatment with dichloroacetate and omeprazole exhibits a synergistic antiproliferative effect on malignant tumors
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
85745
in
Advanced Prostate Cancer
6 months ago
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stomach Cancer
hi everyone, I suffer with stomach issues. The usual gastritis/oesophagitis. Long story short. Looking for guidance really. My Mum had stomach cancer and then got another primary in her Oesophagus at the same time. Sadly gone. But I am getting full easy when I eat, pain in stomach, bringing food back
hi everyone, I suffer with stomach issues. The usual gastritis/oesophagitis. Long story short. Looking for guidance really. My Mum had stomach cancer and then got another primary in her Oesophagus at the same time. Sadly gone. But I am getting full easy when I eat, pain in stomach, bringing food back
Crinkles2020
in
Oesophageal & Gastric Cancer
6 months ago
Headache and earache
While it has no medical evidence to prove they re caused by tinnitus But since after i got tinnitus and then got both And is it true even if u ignore the sound there are still excessice stimulatation in the brain with the sound
While it has no medical evidence to prove they re caused by tinnitus But since after i got tinnitus and then got both And is it true even if u ignore the sound there are still excessice stimulatation in the brain with the sound
vincentchan
in
Tinnitus UK
10 months ago
Foot Fusion on Biologics
Has any one had foot surgery ( taviculalar fusion ) and on the biological Rituximab? How did it go please? How was the healing did anyone have problems? As having surgery and on Rituximab. Many thanks I would love to hear .
Has any one had foot surgery ( taviculalar fusion ) and on the biological Rituximab? How did it go please? How was the healing did anyone have problems? As having surgery and on Rituximab. Many thanks I would love to hear .
-Mii
in
NRAS
10 months ago
Guidance for RLS
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
PinkTLC
in
Restless Legs Syndrome
10 months ago
colonoscopy query
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
Stills
in
LUPUS UK
6 months ago
restricted urinary flow
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Fight Prostate Cancer
6 months ago
Symptoms
HiMy son has been told his symptoms are that of IBS after being tested for Crohns and Colitis three years ago which was negative. His symptoms consist of the following Normal poo then followed by what he has described as Constipation Poo that is wet and soggy and white fluffy mucus which I have also
HiMy son has been told his symptoms are that of IBS after being tested for Crohns and Colitis three years ago which was negative. His symptoms consist of the following Normal poo then followed by what he has described as Constipation Poo that is wet and soggy and white fluffy mucus which I have also
Bowels1
in
IBS Network
6 months ago
Blood thinner options...
Diagnosed earlier this year. Working my way through due to uncomfortable physical side effects.... (Done edoxaban, rivaroxaban) on 5mg 2 x daily now. Does it follow that Apixaban if twice daily , is a lower dose therefore, more gentle on your stomach and your system? Wondering if there is ever truly
Diagnosed earlier this year. Working my way through due to uncomfortable physical side effects.... (Done edoxaban, rivaroxaban) on 5mg 2 x daily now. Does it follow that Apixaban if twice daily , is a lower dose therefore, more gentle on your stomach and your system? Wondering if there is ever truly
sunlovah
in
Atrial Fibrillation Support
10 months ago
Hearing loss and tinnitus and driving
Hi everyone, I am new to this forum so would just like to relate my journey. I started in June with sudden unilateral hearing loss, vertigo and terrible tinnitus.The first couple of months have been horrendous, not helped by the fact that I could not be seen in a timely manner by the NHS. I eventually
Hi everyone, I am new to this forum so would just like to relate my journey. I started in June with sudden unilateral hearing loss, vertigo and terrible tinnitus.The first couple of months have been horrendous, not helped by the fact that I could not be seen in a timely manner by the NHS. I eventually
roorockle
in
Tinnitus UK
10 months ago
atrophic gastritis
hi All i was diagnosed with PA approx 8 years ago with some atrophic gastritis. Which was mildly painful in and off. I SI for the PA but the pain in my tummy has got worse and more constant .. I’m not sure what painkillers I should take or if there’s anything else I should do ? I do drink kefir which
hi All i was diagnosed with PA approx 8 years ago with some atrophic gastritis. Which was mildly painful in and off. I SI for the PA but the pain in my tummy has got worse and more constant .. I’m not sure what painkillers I should take or if there’s anything else I should do ? I do drink kefir which
lifegems
in
Pernicious Anaemia Society
10 months ago
How to get Tirosint?
Morning all! The reaction I'm having after taking after taking my levothyroxine tablets has become more overt and severe. I had stopped it for a while and reintroduced it and within 10 -15min of swallowing I have throat, lip and facial swelling with breathing problems. I have Teva for comparison
Morning all! The reaction I'm having after taking after taking my levothyroxine tablets has become more overt and severe. I had stopped it for a while and reintroduced it and within 10 -15min of swallowing I have throat, lip and facial swelling with breathing problems. I have Teva for comparison
Alanna012
in
Thyroid UK
10 months ago
What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
10 months ago
Depo IM injection advice
Good morning everyone,I have been really struggling with inflammation levels in my right knee and 3 joint aspirations have only helped for about 24 hours. I am being sent in for a Depo IM injection to try to help. I have only had this once before, several years back and I felt so ill afterwards for about
Good morning everyone,I have been really struggling with inflammation levels in my right knee and 3 joint aspirations have only helped for about 24 hours. I am being sent in for a Depo IM injection to try to help. I have only had this once before, several years back and I felt so ill afterwards for about
BillyJayDuncs
in
NRAS
10 months ago
Hello all I've had crohns and stomas since 1976 I now have short bowel and an Ileostomy
I've had crohns since 1976 and my first resection june 1977 colostomy formed I spent six weeks in hospital because I couldn't accept mt colostomy at first I wouldn't touch it or change the bag, then after five weeks I thought I've got to accept it and get on with my life, after 46 years I've had five
I've had crohns since 1976 and my first resection june 1977 colostomy formed I spent six weeks in hospital because I couldn't accept mt colostomy at first I wouldn't touch it or change the bag, then after five weeks I thought I've got to accept it and get on with my life, after 46 years I've had five
SoFedUp2023
in
Crohn's and Colitis Support
6 months ago
Does anyone have a comment about taking a Lecithin supplement for a person with PD?
I have long taken a Lecithin capsule daily for memory enhancement as it is a precursor of acetylcholine. A recent article about PD stated "loss or drop in dopamine levels results in the accumulation of acetylcholine, a chemical messenger nerve cells use to signal muscles to contract, leading to the
I have long taken a Lecithin capsule daily for memory enhancement as it is a precursor of acetylcholine. A recent article about PD stated "loss or drop in dopamine levels results in the accumulation of acetylcholine, a chemical messenger nerve cells use to signal muscles to contract, leading to the
jay_celine
in
Cure Parkinson's
10 months ago
brain fog!
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
Belladoodle
in
Glaucoma UK
10 months ago
manual ear wax removal?
Hello everyone Having hyperacusis & tinnitus makes microsuction & irrigation a no no for me. Can anyone recommend somewhere in uk that does manual wax removal using hand tools & a ear camera? I have searched old links to similar questions on here but they all lead to dead links. Thanks
Hello everyone Having hyperacusis & tinnitus makes microsuction & irrigation a no no for me. Can anyone recommend somewhere in uk that does manual wax removal using hand tools & a ear camera? I have searched old links to similar questions on here but they all lead to dead links. Thanks
bournville
in
Tinnitus UK
10 months ago
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