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Has Anyone taken Xtandi as a last resort treatment for MCRPC and what were results?
My husband has run the gamut on Prostate Cancer Treatments- Surgery, Radiation, Lupron, Clinical Trial (Panther), Provenge, chemo, and Lutetium 177 treatment in Germany for 4 cycles. The Lutetium worked with bringing PSA down from 1350 to single digits for about 9 months - now it is on the rise again
My husband has run the gamut on Prostate Cancer Treatments- Surgery, Radiation, Lupron, Clinical Trial (Panther), Provenge, chemo, and Lutetium 177 treatment in Germany for 4 cycles. The Lutetium worked with bringing PSA down from 1350 to single digits for about 9 months - now it is on the rise again
poppymom0211
in
Advanced Prostate Cancer
3 years ago
Decision: Lupron/Xtandi vs Natural
I'm a 73 male divorced/no kids just diagnosed w/stage 4 PC. Has spread to Lymph Nodes in Groin, but not to bones per scan. PSA 349, Gleason 3+3. Onc prescribes Lupron and Xtandi. (Surgery or radiation were not suggested.) Lupron side effects scare me, & it seems once you're on the chem train, you
I'm a 73 male divorced/no kids just diagnosed w/stage 4 PC. Has spread to Lymph Nodes in Groin, but not to bones per scan. PSA 349, Gleason 3+3. Onc prescribes Lupron and Xtandi. (Surgery or radiation were not suggested.) Lupron side effects scare me, & it seems once you're on the chem train, you
JThos
in
Advanced Prostate Cancer
3 years ago
PSA rise during/after consolidation radiation
Hi all, My husband finished up 4 weeks of consolidation radiation therapy on August 3. He was diagnosed end of May 2020, PSA 209, extensive, distant bone mets, age 53. He went on Lupron immediately, PSA got down to 1.2 by Dec 2020. We started Zytega and PSA got down to 0.23 by June 2021. Two weeks into
Hi all, My husband finished up 4 weeks of consolidation radiation therapy on August 3. He was diagnosed end of May 2020, PSA 209, extensive, distant bone mets, age 53. He went on Lupron immediately, PSA got down to 1.2 by Dec 2020. We started Zytega and PSA got down to 0.23 by June 2021. Two weeks into
marchinda
in
Advanced Prostate Cancer
3 years ago
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jevtana added to lupron and xtandi, too much?
My MO wants me to add jevtana to the meds I already take --- seems to be to much for my body to handle. Any thoughts on this? Thanks...
My MO wants me to add jevtana to the meds I already take --- seems to be to much for my body to handle. Any thoughts on this? Thanks...
ken12491
in
Advanced Prostate Cancer
3 years ago
It’s back… recurrent PSA after primary and adjuvant treatment
Hi all - So it’s been a month since my last post-therapy PSA test went off with a 0.15 where it had been undetectable at < 0.05 for the last year. Yesterday was my second test, a month later, and the results were 0.29. Checking now with my Stanford oncologists on next steps and welcome any input
Hi all - So it’s been a month since my last post-therapy PSA test went off with a 0.15 where it had been undetectable at < 0.05 for the last year. Yesterday was my second test, a month later, and the results were 0.29. Checking now with my Stanford oncologists on next steps and welcome any input
PGDuan
in
Advanced Prostate Cancer
3 years ago
Personal Experience with Nubequa
I reached the point 4 months ago where Lupron Depot monthly no longer worked. PSA rose to 1.78. This was after Eligard failed at psa of 2.18 three months before. Now I still get the Lupron Depot monthly but take Nubeqa 600mg twice a day and my recent psa was 0.06. No new side effects. Energy level crap
I reached the point 4 months ago where Lupron Depot monthly no longer worked. PSA rose to 1.78. This was after Eligard failed at psa of 2.18 three months before. Now I still get the Lupron Depot monthly but take Nubeqa 600mg twice a day and my recent psa was 0.06. No new side effects. Energy level crap
teacherdude70
in
Advanced Prostate Cancer
3 years ago
In Need of a Trainer
I live in a suburb of Seattle, WA. (Redmond) It is clear my husband needs more exercise as his treatment of Lupron, Zytiga, Prednisone are causing bone loss (30% loss since November 2020). Internist has recommended Fosamax, but the side affects are daunting. Would like to see if exercise will help
I live in a suburb of Seattle, WA. (Redmond) It is clear my husband needs more exercise as his treatment of Lupron, Zytiga, Prednisone are causing bone loss (30% loss since November 2020). Internist has recommended Fosamax, but the side affects are daunting. Would like to see if exercise will help
mustang-66
in
Advanced Prostate Cancer
3 years ago
How do administration of Eligard, Lupron, and Firmagon differ? How are the shots given?
How is administration of Eligard performed? Is it different than Lupron? Is it different than Firmagon? My husband is getting his first 3 month injection of Eligard and he is wondering what to expect. He was previously getting monthly Firmagon shots and for the last four months he's been taking Orgovyx
How is administration of Eligard performed? Is it different than Lupron? Is it different than Firmagon? My husband is getting his first 3 month injection of Eligard and he is wondering what to expect. He was previously getting monthly Firmagon shots and for the last four months he's been taking Orgovyx
SuppWife
in
Advanced Prostate Cancer
3 years ago
SEX post surgery, Lupron, Radiation?
What are men doing 3 year post, surgery , lupron, and radiation, How are they getting an erection. Besides pills , vacuum, and injections.?
What are men doing 3 year post, surgery , lupron, and radiation, How are they getting an erection. Besides pills , vacuum, and injections.?
Healthynurse
in
Prostate Cancer And Gay Men
3 years ago
Slow recovery from general anesthesia…PC/ADT related?
I’m home recovering from bladder stone surgery…it’s been three days now and I’m just not bouncing back. Fatigued, dizziness and a bit nauseous. I didn’t have this in my previous prostate cancer, kidney stone or spinal surgeries. Has anyone else experienced this? I do worry a bit about the cumulative
I’m home recovering from bladder stone surgery…it’s been three days now and I’m just not bouncing back. Fatigued, dizziness and a bit nauseous. I didn’t have this in my previous prostate cancer, kidney stone or spinal surgeries. Has anyone else experienced this? I do worry a bit about the cumulative
bean1008
in
Advanced Prostate Cancer
3 years ago
Vacation never meant this much before.
I am currently off the Lupron train again. Second time. I am guessing this will be good for close to a year before my doctor freaks out again. With PSA doubling at a rate of 5-6 weeks he gets nervous. I however do not fear it anymore. The Lupron works really well to put my cells to sleep. Takes about
I am currently off the Lupron train again. Second time. I am guessing this will be good for close to a year before my doctor freaks out again. With PSA doubling at a rate of 5-6 weeks he gets nervous. I however do not fear it anymore. The Lupron works really well to put my cells to sleep. Takes about
Scotch7239
in
Advanced Prostate Cancer
3 years ago
Great results....so far.
I was originally diagnosed in 2012. Gleason 7. PSA around 4. No mets. Got 40 radiation treatments, but PSA never fell below .6. Started to gradually increase in 2015, and then accelerated in 2019 to 65. Bone scans in 10/19 showed a few mets on hips and ribs. Prognosis: 3 = 4 years. At that
I was originally diagnosed in 2012. Gleason 7. PSA around 4. No mets. Got 40 radiation treatments, but PSA never fell below .6. Started to gradually increase in 2015, and then accelerated in 2019 to 65. Bone scans in 10/19 showed a few mets on hips and ribs. Prognosis: 3 = 4 years. At that
NorYug
in
Advanced Prostate Cancer
3 years ago
Axumin vs. PSMA
Are Axumin scans worthwhile as I see many PC patients get PSMA. But little mention of Axumin scans. My local cancer center only does PET or CT scans. Axumin scan is still closer for me than PSMA in Seattle. Should I get a scan? I’ve had no scans since 2020 My MO said we’d do scans if PSA went higher
Are Axumin scans worthwhile as I see many PC patients get PSMA. But little mention of Axumin scans. My local cancer center only does PET or CT scans. Axumin scan is still closer for me than PSMA in Seattle. Should I get a scan? I’ve had no scans since 2020 My MO said we’d do scans if PSA went higher
happycamperguy
in
Advanced Prostate Cancer
3 years ago
One Man’s Journey
Great website. Had world class surgeon perform robotic surgery to remove my prostate in jan 2015. Two months later PSA showed itself and continued to double. Started taking Lupron but did not like the side effects. Tried to beat the cancer by an all natural , no meat, no sugar, no alcohol ,
Great website. Had world class surgeon perform robotic surgery to remove my prostate in jan 2015. Two months later PSA showed itself and continued to double. Started taking Lupron but did not like the side effects. Tried to beat the cancer by an all natural , no meat, no sugar, no alcohol ,
reillybars
in
Advanced Prostate Cancer
3 years ago
Handling Cognitive issues assuming from Hormone Therapy
Doesn’t seem to be much addressing this subject. My husband has been on Lupron since 12/2016 then Zytiga till 5 months ago! Just had 4th treatment of Xofigo! his memory recall is not what it was. Gets some confusion when doing tasks! I don’t mention it now as he got upset when I tried to help! Do men
Doesn’t seem to be much addressing this subject. My husband has been on Lupron since 12/2016 then Zytiga till 5 months ago! Just had 4th treatment of Xofigo! his memory recall is not what it was. Gets some confusion when doing tasks! I don’t mention it now as he got upset when I tried to help! Do men
Yorkielover2
in
Advanced Prostate Cancer
3 years ago
Is the cancer at this stage curable
I've update my profile with the case details. I am wondering if we should be expected to be cured of this disease at this stage. We've gotten multiple conflicting and vague answers regarding this from different uroonc's we've seen. One said it has metastasized outside prostate so it cannot be cured
I've update my profile with the case details. I am wondering if we should be expected to be cured of this disease at this stage. We've gotten multiple conflicting and vague answers regarding this from different uroonc's we've seen. One said it has metastasized outside prostate so it cannot be cured
meowlicious99
in
Advanced Prostate Cancer
3 years ago
Lupron costs depot vs monthly?
Hey all, Anyone cost out lupron depot 3 - 6 mos vs month to month 7.5 mg injections? thanks.
Hey all, Anyone cost out lupron depot 3 - 6 mos vs month to month 7.5 mg injections? thanks.
kainasar
in
Advanced Prostate Cancer
3 years ago
Partial ADT holiday looking for advice
Started Xtandi and Lupron a year ago. PSA went to undetectable almost immediately. MO and I agreed to take a 6 week Xtandi holiday but continuing Lupron. I'm uncertain as to the wisdom of this draw down however 4 days in to life without Xtandi I'm hoping for improved QOL. Blood work scheduled in 6 weeks
Started Xtandi and Lupron a year ago. PSA went to undetectable almost immediately. MO and I agreed to take a 6 week Xtandi holiday but continuing Lupron. I'm uncertain as to the wisdom of this draw down however 4 days in to life without Xtandi I'm hoping for improved QOL. Blood work scheduled in 6 weeks
ReMarcAble
in
Advanced Prostate Cancer
3 years ago
Lupron vs Trelstar
My first injection 3+ months ago was with Lupron. When I got my second injection last week I was given Trestar. The PA said it was a common thing to interchange the two due to costs of the drug or availability at the time. Is it indeed a common practice and are there any cons with this practice?
My first injection 3+ months ago was with Lupron. When I got my second injection last week I was given Trestar. The PA said it was a common thing to interchange the two due to costs of the drug or availability at the time. Is it indeed a common practice and are there any cons with this practice?
ekirkland
in
Advanced Prostate Cancer
3 years ago
Lupron timing, is it critical to stay on strict schedule?
I get my Lupron shots every 6 months. We have recently moved more than 1,000 miles. Looks like it might take awhile to transfer my medical care. My Lupron shot is due Sept 3. Question: Would a week or two delay be dangerous? If so I’ll try knocking on some backdoors to try to get jabbed before my paperwork
I get my Lupron shots every 6 months. We have recently moved more than 1,000 miles. Looks like it might take awhile to transfer my medical care. My Lupron shot is due Sept 3. Question: Would a week or two delay be dangerous? If so I’ll try knocking on some backdoors to try to get jabbed before my paperwork
Fastingguy
in
Advanced Prostate Cancer
3 years ago
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