I reached the point 4 months ago where Lupron Depot monthly no longer worked. PSA rose to 1.78. This was after Eligard failed at psa of 2.18 three months before.
Now I still get the Lupron Depot monthly but take Nubeqa 600mg twice a day and my recent psa was 0.06.
No new side effects. Energy level crap and endurance the same. Hit the gym 4 times a week and any project work takes twice as long because rest as much as work.
Retired and tired but doing things!
Any others with Nubeqa experience?
Written by
teacherdude70
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Last month when Lupron quit working I was put on Extandi 160 mg once a day and my psa dropped to 0.36 after 3 weeks, but not checked since. I would like to keep in touch with you since we seem to be walking the same part.
I have been taking Nubeqa since April 6, 2021 600mg with food BID. Just a quick hx - dx 11/2012 Gleason 9 stage 1Mb numerous bony mets to T8 spine nadir PSA @ .11 began rising on Lupron depot having undergone 45 IMRT in 2015, , prescribed 50 mg Casodex 4/17, PSA undetectable until 1/31/2020 where a VERY slow rise began until .67 reached 3/21/2021 with no Mets detected with CT and bone scan. . On darolutamide PSA now undetectable once again and remaining there as of 9/10/2021. I exercise 7 days a week which has ameliorated 95% fatigue. Be blessed that this med works for a long time for you which is known to have a minimal side effect profile.
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