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Edema with Advanced stage 4
Edema. Should we worry? My husband has gained about ten pounds on his 174 lb frame in the last few days. Legs, ankles and buttocks are swollen, tight, and sometimes painful. He is trying to stay active but every time he does anything on his feet this kicks in. I have a message in to his doctor but being
Edema. Should we worry? My husband has gained about ten pounds on his 174 lb frame in the last few days. Legs, ankles and buttocks are swollen, tight, and sometimes painful. He is trying to stay active but every time he does anything on his feet this kicks in. I have a message in to his doctor but being
Sipj
in
Advanced Prostate Cancer
3 years ago
Hot Flashes
I began taking 120 mg daily of Orgovyx last week and am already experiencing hot flashes. I know from my previous experience on Lupron that my hot flashes can be very uncomfortable and embarrassing. My MO prescribed Effexor to control the hot flashes, but upon learning it’s an anti-depressant, I am
I began taking 120 mg daily of Orgovyx last week and am already experiencing hot flashes. I know from my previous experience on Lupron that my hot flashes can be very uncomfortable and embarrassing. My MO prescribed Effexor to control the hot flashes, but upon learning it’s an anti-depressant, I am
Murph256
in
Advanced Prostate Cancer
3 years ago
Looking for some hope
So I am officially castrate resistant. 3 years and 2 months after my diagnosis. Yesterday I got my results from my PSMA PET scan at Duke and it showed about 7 new spots all in my bones. My C1 (neck) one rib and the rest in my pelvis. I’ve been on Lupron since the beginning, zytiga, then Xtandi also
So I am officially castrate resistant. 3 years and 2 months after my diagnosis. Yesterday I got my results from my PSMA PET scan at Duke and it showed about 7 new spots all in my bones. My C1 (neck) one rib and the rest in my pelvis. I’ve been on Lupron since the beginning, zytiga, then Xtandi also
Oct18
in
Advanced Prostate Cancer
3 years ago
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CMP and PSA update
After 100 day on Lupron and 45 days on Abiraterone my PSA is 0.25 my CMP is normal except for AST which is 39 on a normal range of 15-37 ALT is 56 on a 15-61 normal range. PSA is clearly a good #, should I be worried about rise in AST and ALT as they have both doubled since starting these meds. ?
After 100 day on Lupron and 45 days on Abiraterone my PSA is 0.25 my CMP is normal except for AST which is 39 on a normal range of 15-37 ALT is 56 on a 15-61 normal range. PSA is clearly a good #, should I be worried about rise in AST and ALT as they have both doubled since starting these meds. ?
Scout4answers
in
Advanced Prostate Cancer
3 years ago
Zoladex VS Lupron
Good morning!! Has anyone switched from Zoladex to Lupron? And what side effects do you have from the Lupron? My Dr. Just called and said my insurance company is no longer covering Zoladex so they are switching me to Lupron. TIA
Good morning!! Has anyone switched from Zoladex to Lupron? And what side effects do you have from the Lupron? My Dr. Just called and said my insurance company is no longer covering Zoladex so they are switching me to Lupron. TIA
KimberlyB40
in
SHARE Metastatic Breast Cancer
3 years ago
Secondary Bladder Cancer?
Hi all! To make a long story short - my father is being treated for prostate cancer, diagnosed 5.5 years ago. He underwent a prostatectomy, radiation, currently on Lupron & Erleada with most recent PSA at 0.01. He has been having urinary urgency for quite a few months and had a urinalysis done which
Hi all! To make a long story short - my father is being treated for prostate cancer, diagnosed 5.5 years ago. He underwent a prostatectomy, radiation, currently on Lupron & Erleada with most recent PSA at 0.01. He has been having urinary urgency for quite a few months and had a urinalysis done which
ncisc001
in
Advanced Prostate Cancer
3 years ago
Help with doctors and getting to a plan
In addition to my Gleason 9 and PSA of 18, I have a metastasis on the right pubic bone, discovered by a nm bone scan on Thursday, and am going for chest, ab, pelvic scan today to see if that is the only other site. I met with Dr Cheetham from Mt Sinai because I was waiting and waiting for appointments
In addition to my Gleason 9 and PSA of 18, I have a metastasis on the right pubic bone, discovered by a nm bone scan on Thursday, and am going for chest, ab, pelvic scan today to see if that is the only other site. I met with Dr Cheetham from Mt Sinai because I was waiting and waiting for appointments
Grateful4this
in
Advanced Prostate Cancer
3 years ago
Emotional instability after stopping lupron and abiraterone
After an initial few months of positive improvements in every sector, my guy started into a mental health/cognitive decline to the point where he is now dependent on gabapentin he takes for other reasons in order to maintain any emotional stability. He says his short term memory is also getting worse
After an initial few months of positive improvements in every sector, my guy started into a mental health/cognitive decline to the point where he is now dependent on gabapentin he takes for other reasons in order to maintain any emotional stability. He says his short term memory is also getting worse
lss65
in
Advanced Prostate Cancer
3 years ago
Starting Xtandi
Almost 2 years on Lupron and Bicaludimide and my PSA is starting to go back up. The least it has been is 1.75 a few months ago then about 2.0 last month and now less than 4. My MOC wanted me to start me on Xtandi . I have read the Xtandi information and there are some severe side effects. None of them
Almost 2 years on Lupron and Bicaludimide and my PSA is starting to go back up. The least it has been is 1.75 a few months ago then about 2.0 last month and now less than 4. My MOC wanted me to start me on Xtandi . I have read the Xtandi information and there are some severe side effects. None of them
Hidden
in
Advanced Prostate Cancer
3 years ago
Hot Flashes and other side affects from Erleada and Lupron
Have been on Erleada 9Apulutanide) with Lupron and Psa is Excellent <.02 for a year but would like a 3 to 6 month break . Has anyone done that aqnde what can I expect?
Have been on Erleada 9Apulutanide) with Lupron and Psa is Excellent <.02 for a year but would like a 3 to 6 month break . Has anyone done that aqnde what can I expect?
Rberke
in
Advanced Prostate Cancer
3 years ago
Scan Results and Treatment Begins
My last post was about 4 months ago. I had planned on posting the results much sooner, but the trip had a few more twists and turns than I planned. Here’s the promised update of my adventure. My history is in my profile and my MO is Dr Maha Hussain. So after 3 clear Axumin scans since 2019, the September
My last post was about 4 months ago. I had planned on posting the results much sooner, but the trip had a few more twists and turns than I planned. Here’s the promised update of my adventure. My history is in my profile and my MO is Dr Maha Hussain. So after 3 clear Axumin scans since 2019, the September
ChicagoJ
in
Advanced Prostate Cancer
3 years ago
PCa warrior humor
Why is having sex with a guy on Lupron like a snow storm? You never know when he's coming, how many inches you'll get, or how long it will last.
Why is having sex with a guy on Lupron like a snow storm? You never know when he's coming, how many inches you'll get, or how long it will last.
Scout4answers
in
Advanced Prostate Cancer
3 years ago
13 year Battle with Stage 4 PC
This is a long post - patience is advised. My warrior husband passed away on Nov 19 after a 13 year battle with Prostate Cancer. He was originally diagnosed in 2008 with a Gleason of 3+4 and PSA of 35 at age 59. He had a radical prostatectomy followed by 34 radiation treatments. His PSA remained undetectable
This is a long post - patience is advised. My warrior husband passed away on Nov 19 after a 13 year battle with Prostate Cancer. He was originally diagnosed in 2008 with a Gleason of 3+4 and PSA of 35 at age 59. He had a radical prostatectomy followed by 34 radiation treatments. His PSA remained undetectable
poppymom0211
in
Advanced Prostate Cancer
3 years ago
Estrogen Patch ADT
My personal experience was that during the 6 months I was on estrogen patches, my testosterone was undetectable for the most part, it did bounce up to the low 20s a couple of times but I was experimenting with the dose. When I got the dose tuned in my testosterone was undetectable. Lupron reduces testosterone
My personal experience was that during the 6 months I was on estrogen patches, my testosterone was undetectable for the most part, it did bounce up to the low 20s a couple of times but I was experimenting with the dose. When I got the dose tuned in my testosterone was undetectable. Lupron reduces testosterone
Hidden
in
Advanced Prostate Cancer
3 years ago
Extreme pain in penis
I was dx with advanced PC two months ago. It is apparently aggressive, with bone scan, CT scan, and two MRI's indicating metastases at several sites on bones including pelvic area, and external to areas around prostate. No organs involved and apparently no lymph involvement. I had a Lupron shot and began
I was dx with advanced PC two months ago. It is apparently aggressive, with bone scan, CT scan, and two MRI's indicating metastases at several sites on bones including pelvic area, and external to areas around prostate. No organs involved and apparently no lymph involvement. I had a Lupron shot and began
Hidden
in
Advanced Prostate Cancer
3 years ago
Advanced Prostate Cancer Update and Xgeva
Hello everyone I am posting for first time, to update everyone on my condition, after reading posts and looking for others in my condition to converse with to share ideas. I also know where doctors are the best at what they do its also a patient and doctor responsibility together to make a plan for
Hello everyone I am posting for first time, to update everyone on my condition, after reading posts and looking for others in my condition to converse with to share ideas. I also know where doctors are the best at what they do its also a patient and doctor responsibility together to make a plan for
Hidden
in
Advanced Prostate Cancer
3 years ago
Considering surgical castration
Next Tuesday I have a surgical castration consult. Quick history. Diag May 28th Stage 4 Gleason 9, PSA 1065. Casodex and Lupron. Diet changes and supplements provided if your interested. Off Casodex in about 6 weeks and on Zytiga and Lupron as well as bone building infusions. Treatment same to this day
Next Tuesday I have a surgical castration consult. Quick history. Diag May 28th Stage 4 Gleason 9, PSA 1065. Casodex and Lupron. Diet changes and supplements provided if your interested. Off Casodex in about 6 weeks and on Zytiga and Lupron as well as bone building infusions. Treatment same to this day
katartizo61
in
Advanced Prostate Cancer
3 years ago
Vacation continues
Last Lupron (Nov 2020) Update: Testosterone still over 400, PSA Sept 1-“.5” Oct. 13-“.6” Dec 1-“.4” So-PSA is steady/dropping. Vacation continues. Question: Oncologist ordered CBC with differential/platelet and Comp. Metabolic Panel. What are the relevant results regarding PC?
Last Lupron (Nov 2020) Update: Testosterone still over 400, PSA Sept 1-“.5” Oct. 13-“.6” Dec 1-“.4” So-PSA is steady/dropping. Vacation continues. Question: Oncologist ordered CBC with differential/platelet and Comp. Metabolic Panel. What are the relevant results regarding PC?
Largell
in
Advanced Prostate Cancer
3 years ago
Your Lupron experience...
I've been on the 3 month Lupron for a year now and have detected a pattern. The first five days or so I feel okay but weeks 2 and 3 I feel like crap. Easily fatigued, off-balance and just a big lump in my recliner. Thank the gods for Netflix. Anyone else have a similar experience? Best wishes to
I've been on the 3 month Lupron for a year now and have detected a pattern. The first five days or so I feel okay but weeks 2 and 3 I feel like crap. Easily fatigued, off-balance and just a big lump in my recliner. Thank the gods for Netflix. Anyone else have a similar experience? Best wishes to
bean1008
in
Advanced Prostate Cancer
3 years ago
How long can I expect Xtandi to work
I have been on Xtandi a few months and the results are very good. I was on Lupron 10 years before it quit working. How long can I expect Xtandi to work before going to the next step?
I have been on Xtandi a few months and the results are very good. I was on Lupron 10 years before it quit working. How long can I expect Xtandi to work before going to the next step?
jbskiatook
in
Advanced Prostate Cancer
3 years ago
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