Search
Search
About
Log in
Join
Experiences with
Nuprin
Posts
Communities
4,069 public posts
Filter results
My trajectory after a "vacation" and a new metastasis
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
Istomin
in
Advanced Prostate Cancer
8 months ago
PSA Dropped after 22 days of Zytiga
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
dac500
in
Advanced Prostate Cancer
8 months ago
What is reco diet to take abi with food?
I am on Lupron and Abi two months now with <.1 PSA down from 2.2, MO says I can do abi w food if I want, so is it an okay idea to go with 500 or 250mg per day vs 1000, and if so, how many grams of fat constitute the low fat breakfast to eat with the abi? 🙂
I am on Lupron and Abi two months now with <.1 PSA down from 2.2, MO says I can do abi w food if I want, so is it an okay idea to go with 500 or 250mg per day vs 1000, and if so, how many grams of fat constitute the low fat breakfast to eat with the abi? 🙂
jackwfrench
in
Advanced Prostate Cancer
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Low Volume Low PSA Metastatic PC.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
NDJIM
in
Advanced Prostate Cancer
8 months ago
Bowel side effects
I began Lupron and Abi+Pred in 6/22. I did 33 whole pelvic radiation treatments in July and August of '22. Ever since, my bowel habits have been unpredictable. From constipation to loose. However, about 3 months ago I started having a lot of mucous in my BM's. Now, it is sometime mixed with bright
I began Lupron and Abi+Pred in 6/22. I did 33 whole pelvic radiation treatments in July and August of '22. Ever since, my bowel habits have been unpredictable. From constipation to loose. However, about 3 months ago I started having a lot of mucous in my BM's. Now, it is sometime mixed with bright
jmarsh
in
Advanced Prostate Cancer
8 months ago
Side Effects at 1 year
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
TMcgee
in
Advanced Prostate Cancer
8 months ago
Does Veozah help
Looking for relief from horrible hot flashes from Lupron
Looking for relief from horrible hot flashes from Lupron
Bonehead1171
in
Advanced Prostate Cancer
8 months ago
Several Peeing Wake Ups Nightly
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Yzinger
in
Advanced Prostate Cancer
8 months ago
Abiraterone edema management
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
Derf4223
in
Advanced Prostate Cancer
8 months ago
Enzalutamide + Lupron
There was a new study released last week to show Enzalutamide + Lupron for high risk patients after RP or Radiation. I had RP 3/22 and PSA rising to .14 by 8/22 when I started Orgovyx and then later Zytiga. I've been having neuropathy side effects from Zytiga and interested if this might be better.
There was a new study released last week to show Enzalutamide + Lupron for high risk patients after RP or Radiation. I had RP 3/22 and PSA rising to .14 by 8/22 when I started Orgovyx and then later Zytiga. I've been having neuropathy side effects from Zytiga and interested if this might be better.
VanHalen84
in
Advanced Prostate Cancer
8 months ago
leg cramps after Lupron oxybutinin
leg cramps. After my third 3month Lipton shot and after starting oxybutinin er, i am having cramps and pain in back of left leg. Totally able to do treadmill and the elliptical but if I have to go up a flight of stairs, the leg cramps just kill me. Anyone had any similar experiences?
leg cramps. After my third 3month Lipton shot and after starting oxybutinin er, i am having cramps and pain in back of left leg. Totally able to do treadmill and the elliptical but if I have to go up a flight of stairs, the leg cramps just kill me. Anyone had any similar experiences?
Photographerhere
in
Prostate Cancer Network
8 months ago
PSA analysis 6 months after radiation
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
Mgtd
in
Advanced Prostate Cancer
8 months ago
Husband has passed
Well, group, sad news from our house. Pete has passed on. He seemed to be doing quite well with ADT treatment Lupron/ea 3 months, plus bone shot, and Abiraderone 250 mg daily for 2 1/2 yrs. Had all the terrible side effects you all experience. On no medication other than that. No other illnesses.
Well, group, sad news from our house. Pete has passed on. He seemed to be doing quite well with ADT treatment Lupron/ea 3 months, plus bone shot, and Abiraderone 250 mg daily for 2 1/2 yrs. Had all the terrible side effects you all experience. On no medication other than that. No other illnesses.
Hidden
in
Advanced Prostate Cancer
8 months ago
husband with CRPC needing advice
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Betsyhrd
in
Advanced Prostate Cancer
8 months ago
Provenge
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
dhccpa
in
Advanced Prostate Cancer
8 months ago
Orchiectomy
I have metastatic cp to the bone. I have been on Lupron Xtandi and Hi dose Vitamin C for the last 19 months my current PSA is <0.1 and has been for the last 6 months. I am 83 years old and am in reasonable good health, other than pc. I have read that having an orchiectomy would yield longer life. Also
I have metastatic cp to the bone. I have been on Lupron Xtandi and Hi dose Vitamin C for the last 19 months my current PSA is <0.1 and has been for the last 6 months. I am 83 years old and am in reasonable good health, other than pc. I have read that having an orchiectomy would yield longer life. Also
Carplake
in
Advanced Prostate Cancer
8 months ago
TRT Causing Breast Enlargement
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Jack54
in
Advanced Prostate Cancer
8 months ago
Where to get Orgovyx?
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
ToolBeltZia
in
Prostate Cancer Network
8 months ago
1, 3 or 6 month ADT?
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
epfj3333
in
Advanced Prostate Cancer
8 months ago
Lupron Shot - Numbness in Quads Muscles
I got my 1st Lupron shot into right hip muscle 4 weeks ago. It was painful! But pain went away in 5 min. 3 weeks later I started experiencing pain in my quads and some numbness. I was told that next time, it's preferred to do it in the left hip. I'm afraid, I might have the same problems with my left
I got my 1st Lupron shot into right hip muscle 4 weeks ago. It was painful! But pain went away in 5 min. 3 weeks later I started experiencing pain in my quads and some numbness. I was told that next time, it's preferred to do it in the left hip. I'm afraid, I might have the same problems with my left
FightCancer101
in
Advanced Prostate Cancer
8 months ago
1
...
17
18
19
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3428 results
Prostate Cancer Network
184 results
Endometriosis UK
110 results
View top 10 communities
Sort by
Most Relevant
Newest