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PSA on the rise
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
JD-guy
in
Advanced Prostate Cancer
7 months ago
Fallout from PET/CT Scan
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
dac500
in
Advanced Prostate Cancer
7 months ago
PSA Numbers and 3rd Round of Docetaxel
Hi all - so first an update. Had 3rd chemo session out of 6 yesterday and at least in my experience things are going really well all things considered. Lost hair on balls first then finally head and facial but elsewhere it is good. No issues with hand or feets. No nausea or fatigue. In fact I had
Hi all - so first an update. Had 3rd chemo session out of 6 yesterday and at least in my experience things are going really well all things considered. Lost hair on balls first then finally head and facial but elsewhere it is good. No issues with hand or feets. No nausea or fatigue. In fact I had
Yzinger
in
Advanced Prostate Cancer
7 months ago
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A quick introduction
Good day to all! I’ve been faithfully reading this forum for a little while, and have found it interesting and helpful, sometimes even encouraging. So, my diagnosis was in April of this year (2023): stage four prostate cancer with considerable metastasis to bone (ribs, sternum, pelvis). PSA was
Good day to all! I’ve been faithfully reading this forum for a little while, and have found it interesting and helpful, sometimes even encouraging. So, my diagnosis was in April of this year (2023): stage four prostate cancer with considerable metastasis to bone (ribs, sternum, pelvis). PSA was
Pinkyboy
in
Advanced Prostate Cancer
7 months ago
Now what? Second go-around of docetaxel not responding.
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
westjl2
in
Advanced Prostate Cancer
7 months ago
Lupron injection not working
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
woppaginny
in
Advanced Prostate Cancer
7 months ago
Small cell advanced prostate cancer spread to liver and lungs.
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
lcfcpolo
in
Advanced Prostate Cancer
7 months ago
Intense jaw pain (pt.2)
Three months ago my husband developed intense right jaw pain. After multiple scans showing "something" (thankfully no PSMA activity) he had a surgical bone biopsy 11/29. Two days ago we received the pathology report but have not been able to speak with the Dr. to help us understand it. The good news
Three months ago my husband developed intense right jaw pain. After multiple scans showing "something" (thankfully no PSMA activity) he had a surgical bone biopsy 11/29. Two days ago we received the pathology report but have not been able to speak with the Dr. to help us understand it. The good news
Decktime
in
Advanced Prostate Cancer
7 months ago
Testosterone issue.
I had a follow up visit with my PCP last month. Of course he knows about my advanced PC. He ordered a round of lab blood exams, as always. About a week later, I got a call from his office to tell me PCP is is concerned about low testosterone count<50 and wants to repeat lab exam, they told me come early
I had a follow up visit with my PCP last month. Of course he knows about my advanced PC. He ordered a round of lab blood exams, as always. About a week later, I got a call from his office to tell me PCP is is concerned about low testosterone count<50 and wants to repeat lab exam, they told me come early
Blueribbon63
in
Advanced Prostate Cancer
7 months ago
PSA of <0.1 undetectable?
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
pj1121
in
Advanced Prostate Cancer
7 months ago
orgovyx
I have 5 unopened bottles of orgovyx 120. My husband can no longer tolerate the side effects and is going back on Lupron… Looking to donate them as they were 100% covered by his insurance so didn’t cost us anything
I have 5 unopened bottles of orgovyx 120. My husband can no longer tolerate the side effects and is going back on Lupron… Looking to donate them as they were 100% covered by his insurance so didn’t cost us anything
Lalajoy
in
Advanced Prostate Cancer
7 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
7 months ago
Anyone tried cabazitaxel (Jevtana) monotherapy?
If you've tried cabazitaxel [u]
without
[/u] ADT, I would appreciate hearing about your side effects and effectiveness. I'm currently in excellent shape at age 72. Previously I tolerated docetaxel (which along with radiation of abdominal lymph nodes helped me return to undetectable PSA for 4+ years
If you've tried cabazitaxel [u]
without
[/u] ADT, I would appreciate hearing about your side effects and effectiveness. I'm currently in excellent shape at age 72. Previously I tolerated docetaxel (which along with radiation of abdominal lymph nodes helped me return to undetectable PSA for 4+ years
ron_bucher
in
Advanced Prostate Cancer
8 months ago
Does Gabapentin for hot flashes?
Hello - My Med Onc recommended black cohosh for hot flashes under Lupron and abi. After more than 2 months it is not working well enough for me. Last night I tried 300mg of Gabapentin left over from back problems last year and it seemed to do much better, no episodes all night. I was a bit groggy
Hello - My Med Onc recommended black cohosh for hot flashes under Lupron and abi. After more than 2 months it is not working well enough for me. Last night I tried 300mg of Gabapentin left over from back problems last year and it seemed to do much better, no episodes all night. I was a bit groggy
jackwfrench
in
Prostate Cancer Network
8 months ago
What do you think?
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
docbulldog
in
Advanced Prostate Cancer
8 months ago
Break from ADT or not?
Hi everyone, my Dad was recommended 18-24 months of Lupron/Zytiga/Prednisone after Radiation Therapy. We reached that time and MO said that is up to my Dad if he wants to continue the treatment or not. Lately my dad had high blood pressure over 200 and he ended up in ER, but now the blood pressure is
Hi everyone, my Dad was recommended 18-24 months of Lupron/Zytiga/Prednisone after Radiation Therapy. We reached that time and MO said that is up to my Dad if he wants to continue the treatment or not. Lately my dad had high blood pressure over 200 and he ended up in ER, but now the blood pressure is
Simonapo
in
Advanced Prostate Cancer
8 months ago
Lupron and prostate cancer
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
rolex1951
in
Advanced Prostate Cancer
8 months ago
Recurrence after prostatectomy
I have a relative who had surgery 6.5 years ago. Pathology was very favorable, 3+3+tertiary 4 i.e. less than 5%, no pos margins, no ECE, no nodes. He remained undetectable for 6.5 years, but now is .07 verified. What would SOC be for him? Prostate bed or wide radiation, length of ADT, just Lupron or
I have a relative who had surgery 6.5 years ago. Pathology was very favorable, 3+3+tertiary 4 i.e. less than 5%, no pos margins, no ECE, no nodes. He remained undetectable for 6.5 years, but now is .07 verified. What would SOC be for him? Prostate bed or wide radiation, length of ADT, just Lupron or
Fred312
in
Advanced Prostate Cancer
8 months ago
Do Sulforaphane, Melatonin, and Cayenne Pepper work?
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
SisuMike
in
Advanced Prostate Cancer
8 months ago
bicalutamide no longer as effective?
After more than two years of bicalutamide monotherapy and repeated PSA<0.1 I just received a 0.6. Before the bicalutamide my PSMA scan showed activity in only the seminal vesicle region. PSA was 2.5 at that time. Lupron had ceased being effective. Bicalutamide had a terrific response. I don’t think PSMA
After more than two years of bicalutamide monotherapy and repeated PSA<0.1 I just received a 0.6. Before the bicalutamide my PSMA scan showed activity in only the seminal vesicle region. PSA was 2.5 at that time. Lupron had ceased being effective. Bicalutamide had a terrific response. I don’t think PSMA
kreg001
in
Advanced Prostate Cancer
8 months ago
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