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Disimpactation 3.5yr old
Hi there I wondered if anyone had any thoughts or advice. My daughter 3.5 is going through disimpactation (8 sachets laxido) and has been withholding for 1.5 years. I thought it was just constipation at first. We’re at day 9 and I thought it had worked but from reading this forum I can see we need to
Hi there I wondered if anyone had any thoughts or advice. My daughter 3.5 is going through disimpactation (8 sachets laxido) and has been withholding for 1.5 years. I thought it was just constipation at first. We’re at day 9 and I thought it had worked but from reading this forum I can see we need to
LisaDS
in
ERIC
4 years ago
Covid ICU coming off sedation
My boyfriend has been in covid ICU for 50 days now..he is a kidney/ pancreas transplant patient.He had trach placed almost 3 weeks ago..He is not requiring the ventilator setting ..all of his stats are good kidney function is good , but he's still testing positive for the virus.they are weaning him
My boyfriend has been in covid ICU for 50 days now..he is a kidney/ pancreas transplant patient.He had trach placed almost 3 weeks ago..He is not requiring the ventilator setting ..all of his stats are good kidney function is good , but he's still testing positive for the virus.they are weaning him
Terrilynn76
in
ICUsteps
4 years ago
A Red Kite and some Bees!
Hello everyone, a little nature post for you this evening! A lot of us have noticed that the wildlife have become a little more adventurous during lockdown and we’ve noticed that a pair of Kites that usual circle the neighbouring farmland have now started to circle above our garden (along with some Buzzards
Hello everyone, a little nature post for you this evening! A lot of us have noticed that the wildlife have become a little more adventurous during lockdown and we’ve noticed that a pair of Kites that usual circle the neighbouring farmland have now started to circle above our garden (along with some Buzzards
Horsewhisper
in
LUPUS UK
4 years ago
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5 year old with constipation/soiling has been told he can't attend school
My 5 year old son has ongoing chronic constipation which causes intermittent soiling at school. Although he returned to school for two days last week he soiled on both days and I have now been told that he is unable to attend without a risk assessment and health care plan (I had asked for health care
My 5 year old son has ongoing chronic constipation which causes intermittent soiling at school. Although he returned to school for two days last week he soiled on both days and I have now been told that he is unable to attend without a risk assessment and health care plan (I had asked for health care
Batman2015
in
ERIC
4 years ago
Help and Advice
Hi, I'm new here. I don't usually post things online but I really need some advice and help My son is 22 years old and he was born with a developmental disability, which affects mostly his speech and communication, as well his fine motor skills. Physically he is fine, he doesn't really have an intellectual
Hi, I'm new here. I don't usually post things online but I really need some advice and help My son is 22 years old and he was born with a developmental disability, which affects mostly his speech and communication, as well his fine motor skills. Physically he is fine, he doesn't really have an intellectual
PinkMango
in
ERIC
4 years ago
Things took a bad turn
Dad had been in ICU for about 56 days on a ventilator due to Covid, he was finally transferred to rehab with a tracheotomy. He was still on dialysis but kidneys were just starting to kick in. He was awake, alert but couldn’t speak yet. Had minimal muscle movement, was using his right hand however his
Dad had been in ICU for about 56 days on a ventilator due to Covid, he was finally transferred to rehab with a tracheotomy. He was still on dialysis but kidneys were just starting to kick in. He was awake, alert but couldn’t speak yet. Had minimal muscle movement, was using his right hand however his
Sarhj
in
ICUsteps
4 years ago
Losing your job
So this is a weird one. My firm have said due to Covid they are asking people to take unpaid leave of undetermined length due to Covid 19. In my job I have to charge 6.5 hours of work per day and effectively my firm have decided the unpaid leave starts with all those not meeting the 6.5 hours as they
So this is a weird one. My firm have said due to Covid they are asking people to take unpaid leave of undetermined length due to Covid 19. In my job I have to charge 6.5 hours of work per day and effectively my firm have decided the unpaid leave starts with all those not meeting the 6.5 hours as they
Ouch2020
in
Headway
4 years ago
Experience of neurology during the coronavirus crisis. Asking for your help!
Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology appointments have been affected by the coronavirus climate that we unfortunately find ourselves in. I would be so grateful if you could let me
Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology appointments have been affected by the coronavirus climate that we unfortunately find ourselves in. I would be so grateful if you could let me
HarryB
Administrator
in
Ataxia UK
4 years ago
NXStage home patient constantly threatened by nurse/doctor if I have questions or concerns. They say then go in center or hospice.
Hello, I’m a 67 year old male on home hemodialysis NXStage since October 2019. My daughter is my partner she is a nurse and has worked in dialysis for years. Everything has gone well with treatments at home. The only problem we have is that every time we have a question about my treatment I’m being
Hello, I’m a 67 year old male on home hemodialysis NXStage since October 2019. My daughter is my partner she is a nurse and has worked in dialysis for years. Everything has gone well with treatments at home. The only problem we have is that every time we have a question about my treatment I’m being
AsheboroNC
in
Dialysis Support
4 years ago
Preliminary research info on Covid-19 in rheumatology patients
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
dawkin_S
in
NRAS
4 years ago
Does anyone on here have experience with Alcohol Related Brain Injury?
My mother has Korsakoffs syndrome caused by alcohol and I would like to connect with other carers that have experiences this.
My mother has Korsakoffs syndrome caused by alcohol and I would like to connect with other carers that have experiences this.
Rachelb94
in
Headway
4 years ago
Thank you for dental advice.
Thank you for your help to the seven ladies who gave me dental advice. I have clove oil now and I will battle for an appointment when the time comes. Pauline, your fall was shocking and I am so glad your teeth were restored. There are so many things that can go wrong with teeth and very vulnerable on
Thank you for your help to the seven ladies who gave me dental advice. I have clove oil now and I will battle for an appointment when the time comes. Pauline, your fall was shocking and I am so glad your teeth were restored. There are so many things that can go wrong with teeth and very vulnerable on
standeasy
in
My Ovacome
4 years ago
New to the group and looking for advice
Hi My son was 5 in March and we have been dealing with issues since he was 6 months old. Hes always had issues with going to the toilet and would prefer to stand to go instead of sitting down. Hes been prescribed both Movicol and Laxido in the past and both resulted in him having accidents all day every
Hi My son was 5 in March and we have been dealing with issues since he was 6 months old. Hes always had issues with going to the toilet and would prefer to stand to go instead of sitting down. Hes been prescribed both Movicol and Laxido in the past and both resulted in him having accidents all day every
daniellejarrett2017
in
ERIC
4 years ago
New here: prolapsed rectum and straining to do soft poos??
Sorry for long post and lots of poo details! My son suddenly started wetting the bed nearly every night a few weeks ago (he's nearly 7). He's had a few wet nights in the past but we'd never worried about it before. No UTI, so we started with an alarm. Then we realised he had been/was having soiling
Sorry for long post and lots of poo details! My son suddenly started wetting the bed nearly every night a few weeks ago (he's nearly 7). He's had a few wet nights in the past but we'd never worried about it before. No UTI, so we started with an alarm. Then we realised he had been/was having soiling
aliums26
in
ERIC
4 years ago
My Dad Tracheostomy failed again
What was a good day yesterday where we managed to get smile and a kiss for the kids. Today his was agitated and uncomfortable and he managed to pull his feeding tube and the trach was leaking, he back in the ventilator and in light sedation. Tomorrow they hope to review it and may redo the Tracheostomy
What was a good day yesterday where we managed to get smile and a kiss for the kids. Today his was agitated and uncomfortable and he managed to pull his feeding tube and the trach was leaking, he back in the ventilator and in light sedation. Tomorrow they hope to review it and may redo the Tracheostomy
avnipiro
in
ICUsteps
4 years ago
Memory Lane Jar
I just wanted to share this wonderful idea! My daughter presented a "Memory Jar" to my Mom yesterday; I have to say it was an absolute home run! All of the grandchildren wrote 10 individual memories to share with Mom, and they were written on colored scrolls, wrapped with a ribbon and placed in the
I just wanted to share this wonderful idea! My daughter presented a "Memory Jar" to my Mom yesterday; I have to say it was an absolute home run! All of the grandchildren wrote 10 individual memories to share with Mom, and they were written on colored scrolls, wrapped with a ribbon and placed in the
bazooka111
in
PSP Association
4 years ago
Pleurx catheter?
I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I am not sure if I am a candidate for a pleurx catheter as it seems the fluid buildup in my lungs is slow, at least for the time being. I noticed that the fluid build up rapidly increases every third treatment after I have
I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I am not sure if I am a candidate for a pleurx catheter as it seems the fluid buildup in my lungs is slow, at least for the time being. I noticed that the fluid build up rapidly increases every third treatment after I have
Natsmb
in
My Ovacome
4 years ago
Nearly 9, bedwetting
Hi, my son has struggled with bed wetting on and off since he was 6. At this stage, his grandad died and he moved schools. Since then he's regularly wet the bed. Since lockdown, he has been better and had a few weeks dry, but this week he's been wet 5 nights in a row. Any suggestions? He's never had
Hi, my son has struggled with bed wetting on and off since he was 6. At this stage, his grandad died and he moved schools. Since then he's regularly wet the bed. Since lockdown, he has been better and had a few weeks dry, but this week he's been wet 5 nights in a row. Any suggestions? He's never had
Samson2020
in
ERIC
4 years ago
Tracheostomy
My husband is still sedated and on the tracheostomy. His oxygen level is still 35% and he requires the ventilator. It has been 5 weeks now since he is in icu and no progress and I am worried.
My husband is still sedated and on the tracheostomy. His oxygen level is still 35% and he requires the ventilator. It has been 5 weeks now since he is in icu and no progress and I am worried.
Rgsable
in
ICUsteps
4 years ago
update on Dad
Dad still sedated, had Tracheostomy last week Wednesday, they have lowered his sedation managed to open his eyes a few times and they have started to wean him of but today he seemed to tired so they stop weaning him today. They also found his left arm weaker and keeping an eye on it.
Dad still sedated, had Tracheostomy last week Wednesday, they have lowered his sedation managed to open his eyes a few times and they have started to wean him of but today he seemed to tired so they stop weaning him today. They also found his left arm weaker and keeping an eye on it.
avnipiro
in
ICUsteps
4 years ago
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