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24 public communities
Functional Neurological Disorder - FND Hope
5,711 members
FND Hope supports patients and families impacted by Functional Neurological Disorder. We advocate for the men, women, and children who have had their lives turned upside down with physical and often debilitating symptoms. Many of which, were sent home with little information and the reassurance that it will go away on its own. We give FND patients a voice, we lend them our ear. We give everyone a place to call their own and a place to feel secure. We give our members the courage to keep going and the strength they need to endure each day. Most of all… We give them hope.
Lupus Foundation of Florida
775 members
The Lupus Foundation of Florida provides support, education, referrals, advocacy and hope to those affected by lupus.
Glaucoma UK
2,584 members
Glaucoma UK is the UK's charity for anyone affected by glaucoma. We hope to end preventable glaucoma sight loss, by providing information, advice and support to help people live well with the condition. We fund research into glaucoma and raise awareness of the condition.
Parents of ALD Newborns
98 members
We are here to offer support as you navigate through your babies first few years of life after a diagnosis of adrenoleukodystrophy. Knowledge is power and now you have the power to save your child's life. Some of the information that is floating around on the internet is not correct and we hope to fix that by closely monitoring the info that is posted on this forum.
Healthy Happy Woman
2,019 members
Back in 1997 I started an organisation called the Hysterectomy Association. 22 years later it closed and all the information moved to a new website called Healthy Happy Woman. The new site is about health, happiness and writing in the 21st century and will share posts, flash fiction and health and well-being information mostly for women. I hope you’ll join me in the latest part of a long journey to wellness.
Epilepsy Research Institute
2,339 members
Epilepsy Research UK is the only national organisation exclusively dedicated to funding research into all areas of epilepsy. Epilepsy can be a very debilitating condition that leaves many people feeling isolated, so we set up this community to provide a forum for people to share their experiences. Whilst we cannot provide specific medical advice, we hope that you will be able to find answers to some of your questions about epilepsy here.
Myeloma UK
317 members
The aim of this community is to provide a supportive, informative and friendly community for people affected by myeloma. Myeloma UK is the only organisation in the UK focused exclusively on myeloma, a bone marrow cancer for which there is no currently no cure. You can also call our Myeloma Infoline on 0800 980 3332 (UK) from 9-5, Monday-Friday to speak to one of our Myeloma Information Specialists. We hope you feel welcomed, supported and able to ask questions in our community and do visit our website for more information, resources and support.
The Roy Castle Lung Cancer Foundation
5,818 members
Roy Castle Lung Cancer Foundation is the charity that gives help and hope to people affected by lung cancer. The charity has two aims - supporting people living with lung cancer and saving lives. Working closely with lung cancer nurses we provide information, run lung cancer support groups and offer telephone and online support. We fund research, campaign for better treatment and care for people who have lung cancer. We raise awareness of the importance of early diagnosis. Our lung cancer prevention work helps people to quit smoking and encourages young people not to start smoking.
Facial Palsy UK
1,155 members
Facial Palsy UK exists to ensure that every person in the UK affected by facial palsy is given access to the best information, treatment and support available. We also support research which we hope will help anyone affected by facial palsy. Please remember the content on this site does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them. Views expressed are those of individuals and not of Facial Palsy UK, meaning we may not necessarily endorse a treatment discussed by our members. Privacy Policy: https://www.facialpalsy.org.uk/policies/privacy/
HIV Partners
2,323 members
Forum Link has joined forces with the HealthUnlocked team to create this HIV positive online community. We want to make it easier for HIV positive people to find a range of information and support we all need, particularly when we have just been diagnosed with HIV. We do this by highlighting resources from selected other community sites and encouraging members of this community to post messages online. Whether you are newly diagnosed or have been living with HIV for some time we hope you will find this online community of other people living with HIV useful. For more details see the Forum Link web site at http://www.forum-link.org
The Simon Foundation for Continence
640 members
Welcome to The Simon Foundation for Continence online support community. The Foundation is dedicated to providing educational information, resources, and support to people with incontinence and their caregivers, both professional and family/friends. We provide educational support to both urinary and/or bowel incontinence issues. Established in 1982 in the US, we have been continually dedicated to: Bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care. While we are based in the US, we work internationally. And you can learn more about us and our history on our main website: https://www.simonfoundation.org/
My MSAA Community
9,096 members
The Multiple Sclerosis Association of America (MSAA) is a nonprofit organization improving lives today for the MS community through our vital services and support. We provide direct services and ongoing support to individuals with MS, their families, and their care partners throughout the United States. Some of our free services include: Helpline with trained specialists, safety and mobility equipment distribution, award-winning educational videos and publications, cooling accessories for heat-sensitive individuals, educational programs held across the US, and more. We hope that My MSAA Community on HealthUnlocked is a safe and inviting space for you to connect with other members of the MS community in order to both find and provide support for your shared experiences.
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