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Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
Psoriatic Arthritis
Does anyone have any experience with this? From my research from, yes, Dr. Google, on a Saturday night when I'm fed up and after my pedicurist suggested that the red scaly patches on both legs could be psorisis. Apparently psoriatic arthritis is very closely related to Lupus and you can have both.
Does anyone have any experience with this? From my research from, yes, Dr. Google, on a Saturday night when I'm fed up and after my pedicurist suggested that the red scaly patches on both legs could be psorisis. Apparently psoriatic arthritis is very closely related to Lupus and you can have both.
CavendishCool
in
LUPUS UK
1 year ago
Latest PSA - drop baby drop💙
https://youtu.be/yKd-xMb_Kow A continued decline post IMRTs, 28th done two months ago. Yea, yea, I know that I'm not supposed to check it this soon. But, over 8 yrs post #stageIVpca Dx (39 chemos) has gotten me obsessed with #s 🤣 Rock on, Laugh on, Live on, QoL on 💙 Randy
https://youtu.be/yKd-xMb_Kow A continued decline post IMRTs, 28th done two months ago. Yea, yea, I know that I'm not supposed to check it this soon. But, over 8 yrs post #stageIVpca Dx (39 chemos) has gotten me obsessed with #s 🤣 Rock on, Laugh on, Live on, QoL on 💙 Randy
dockam
in
Advanced Prostate Cancer
1 year ago
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Hurdle
Finished 6 pluvicto in May. PSA started at 15 ended at 35. Bone scans at end say many Mets to bone. I particularly felt very winded towards end of pluvicto treatments. I was walking 3-5 miles until April then achiness in femur, and loss off breath. MO had me scheduled to start xofigo 3 weeks ago but
Finished 6 pluvicto in May. PSA started at 15 ended at 35. Bone scans at end say many Mets to bone. I particularly felt very winded towards end of pluvicto treatments. I was walking 3-5 miles until April then achiness in femur, and loss off breath. MO had me scheduled to start xofigo 3 weeks ago but
RunThru
in
Advanced Prostate Cancer
1 year ago
Radiation after triple therapy?
Finished triple therapy (6 cycles 85% docetaxel + 250mg Abiraterone with yogurt + 10mg Prednisone w/yogurt + Lupron (3 month) + XGeve monthly. After 3rd cycle, a CT scan identified a new 3rd bone lesion (L1). Original bone scan identified lesion on Pelvis and C4. MO believes new legion occurred between
Finished triple therapy (6 cycles 85% docetaxel + 250mg Abiraterone with yogurt + 10mg Prednisone w/yogurt + Lupron (3 month) + XGeve monthly. After 3rd cycle, a CT scan identified a new 3rd bone lesion (L1). Original bone scan identified lesion on Pelvis and C4. MO believes new legion occurred between
TMcgee
in
Advanced Prostate Cancer
1 year ago
X ray results
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
Brian1977
in
NRAS
1 year ago
Survival outcomes and prognostic factors for first-line abiraterone acetate or enzalutamide in patients with metastatic CRPC
Patients with mCRPC who received first-line ARATs had better survival if they had a PSA nadir≦2 ng/mL or a TTN≧7 months. Further study is needed to determine if an early switch in therapy for those in whom neither is achieved may impact OS. https://bmccancer.biomedcentral.com/articles/10.1186/s12885
Patients with mCRPC who received first-line ARATs had better survival if they had a PSA nadir≦2 ng/mL or a TTN≧7 months. Further study is needed to determine if an early switch in therapy for those in whom neither is achieved may impact OS. https://bmccancer.biomedcentral.com/articles/10.1186/s12885
Seasid
in
Advanced Prostate Cancer
1 year ago
No Increase in Major Cardiac Events With Testosterone-Replacement Therapy, MedPage Today, June 16, 2023.
This is a post I started a week ago - and Patrick's post earlier today on Supraphysiological Androgens effects on tumor suppression has given me the impetus to complete it. It is based on a MedPage Today article on the TRAVERS trial that seems to debunk most of the former concerns over cardiac issues
This is a post I started a week ago - and Patrick's post earlier today on Supraphysiological Androgens effects on tumor suppression has given me the impetus to complete it. It is based on a MedPage Today article on the TRAVERS trial that seems to debunk most of the former concerns over cardiac issues
cujoe
in
Fight Prostate Cancer
1 year ago
Should I have RT, given the possible permanent SEs
I had an RP in 2015, and was clear until diagnosed in Dec 2022 with metastatic Pc, PSA .61. Started Bicalutamide and have had 2 Zoladex injections . PSA is now.01. My OC now wants to start RT with 33 sessions. I want to know if I can avoid RT altogether, because of the damage and side effects that might
I had an RP in 2015, and was clear until diagnosed in Dec 2022 with metastatic Pc, PSA .61. Started Bicalutamide and have had 2 Zoladex injections . PSA is now.01. My OC now wants to start RT with 33 sessions. I want to know if I can avoid RT altogether, because of the damage and side effects that might
Dazzaboy
in
Advanced Prostate Cancer
1 year ago
help please 😊
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
Hidden
in
NRAS
1 year ago
No Rheumatologist currently available 🙀
Bit of a rant but need to get it off my chest . You couldn’t believe what I was told when I called my help line to ask for advice after a major flare up , ( both my knees where so swollen I couldn’t walk ) , firstly the help line is now closed permanently and e-mail is the only contact method I have
Bit of a rant but need to get it off my chest . You couldn’t believe what I was told when I called my help line to ask for advice after a major flare up , ( both my knees where so swollen I couldn’t walk ) , firstly the help line is now closed permanently and e-mail is the only contact method I have
Gaz227
in
PMRGCAuk
1 year ago
Gleason 7, diagnosed last november
Hi All, My father got diagnosed with prostate cancer in November, PSA 245, Gleason 4+3. He was taking triplet therapy, 6 rounds of doxitacel, enzulamite (xandti) and monthly injections. His PSA has been under control, it has been .4 in the last two tests. Few days back, he started experiencing some
Hi All, My father got diagnosed with prostate cancer in November, PSA 245, Gleason 4+3. He was taking triplet therapy, 6 rounds of doxitacel, enzulamite (xandti) and monthly injections. His PSA has been under control, it has been .4 in the last two tests. Few days back, he started experiencing some
Priyamvada91
in
Advanced Prostate Cancer
1 year ago
Appetite and taste
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
mogs231
in
NRAS
1 year ago
Clopidogrel - Joint Pain
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Lulu_Lollipop
in
Arthritis Action
1 year ago
Intake question MSKCC
I had a RP/PND 5 years ago at MSKCC (Dr. Touijer). I had called up cold and was given an appointment for an MRI, followed by a TRUS biopsy (Dr. Ehdaie); everything followed from there. Now, my twin brother presents with an elevated PSA, and wants to be evaluated at MSK. He calls and is told they will
I had a RP/PND 5 years ago at MSKCC (Dr. Touijer). I had called up cold and was given an appointment for an MRI, followed by a TRUS biopsy (Dr. Ehdaie); everything followed from there. Now, my twin brother presents with an elevated PSA, and wants to be evaluated at MSK. He calls and is told they will
dentaltwin
in
Prostate Cancer Network
1 year ago
ACA marketplace options for APC
HI, My father recently had his Permanent Residence ( Green Card) approved to USA. He is a chemo naive mCRPC patient with current PSA of 3.41 ( full case history in profile) . However, he isn't eligible for medicare due to insufficient residence and employment requirements. We are hoping to buy insurance
HI, My father recently had his Permanent Residence ( Green Card) approved to USA. He is a chemo naive mCRPC patient with current PSA of 3.41 ( full case history in profile) . However, he isn't eligible for medicare due to insufficient residence and employment requirements. We are hoping to buy insurance
meowlicious99
in
Advanced Prostate Cancer
1 year ago
OVM 200 clinical trial on TV
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
Brysonal
in
Fight Prostate Cancer
1 year ago
ADT before and after IMRT
So my husband had 5 Cycles of Taxotere in 2019, was first line treatment, started Lupron fall of 2019, then PSA creeped up and MO started him on Casadex. Worked till 2022 when PSMA scan showed lymph nodes, started Zytiga in November 2022 , started with 44 Tomotherapy/IMRT in Feb 2023, My question is
So my husband had 5 Cycles of Taxotere in 2019, was first line treatment, started Lupron fall of 2019, then PSA creeped up and MO started him on Casadex. Worked till 2022 when PSMA scan showed lymph nodes, started Zytiga in November 2022 , started with 44 Tomotherapy/IMRT in Feb 2023, My question is
Keeper70
in
Prostate Cancer Network
1 year ago
Hello, dear People!
Hello, my dears! I have to ask u for some informations because I am very confused. My father îs on Xtandi for 6 months. After the first three months psa came down from 10.87 to 7.15. Yesterday, after another 3 months, his PSA îs 6.87. Stiller very high, I think. I guess it should have go down much more
Hello, my dears! I have to ask u for some informations because I am very confused. My father îs on Xtandi for 6 months. After the first three months psa came down from 10.87 to 7.15. Yesterday, after another 3 months, his PSA îs 6.87. Stiller very high, I think. I guess it should have go down much more
tuta1960
in
Advanced Prostate Cancer
1 year ago
51 yo recently diagnosed
I was recently diagnosed with prostate cancer. I am 51 with no family history. PSA 20, 2 lesions on MRI, and biopsy showed one was 3/4 and the other 4/3. I am pretty much exclusively bottom. I read here about how gay men should not get a prostatectomy. Whatever little information I have read seem
I was recently diagnosed with prostate cancer. I am 51 with no family history. PSA 20, 2 lesions on MRI, and biopsy showed one was 3/4 and the other 4/3. I am pretty much exclusively bottom. I read here about how gay men should not get a prostatectomy. Whatever little information I have read seem
sydney1972
in
Prostate Cancer And Gay Men
1 year ago
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