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Non-specific urethritis
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Told 2 years ago i think u got fibromyalgia.
Ive been totally fatigued for last 6years pains all over my body. Some days its in my shoulders n neck. Been told it was arthritis in my neck which affects my shoulders and back. Then another day ive pains and weakness in my arms numbness in my fingers been told i got tennis elbow carpal tunnel. Its
Ive been totally fatigued for last 6years pains all over my body. Some days its in my shoulders n neck. Been told it was arthritis in my neck which affects my shoulders and back. Then another day ive pains and weakness in my arms numbness in my fingers been told i got tennis elbow carpal tunnel. Its
Fg08hvt64tg
in
Fibromyalgia Action UK
10 months ago
PMR & Osteoarthritis in Knees
I have been added to the waiting list for knee replacement. I am trying to loose weight which I feel will help the pain in my knees. They can be very stiff some days and difficult to bend and I do get pain in the back of my thighs and shin splint pain too. I wonder if this is part of PMR ? I would hate
I have been added to the waiting list for knee replacement. I am trying to loose weight which I feel will help the pain in my knees. They can be very stiff some days and difficult to bend and I do get pain in the back of my thighs and shin splint pain too. I wonder if this is part of PMR ? I would hate
jules1955
in
PMRGCAuk
10 months ago
From RA to Lupus. High dose pred questions.
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Chickenkeeper2015
in
LUPUS UK
10 months ago
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How can they really know?
I'm a bit perplexed as to how they can really tell the difference between OA and RA.I have heard of so many people that are told they have RA, to later be told it's OA. My arthritis symptoms have changed somewhat and are affecting other areas of my body and I don't know whether to bother mentioning
I'm a bit perplexed as to how they can really tell the difference between OA and RA.I have heard of so many people that are told they have RA, to later be told it's OA. My arthritis symptoms have changed somewhat and are affecting other areas of my body and I don't know whether to bother mentioning
Soreallover
in
Arthritis Action
10 months ago
Doctor thinks not pmr
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Petertaffy
in
PMRGCAuk
10 months ago
arthritis
just a quick question please, I have arthritis in my hips and knee, finding really painful to walk, waiting for hip replacement , I am using 2 sticks at the mo, has anyone got any bright ideas how I can stop them falling over please as I won’t be able to bend after op thank you
just a quick question please, I have arthritis in my hips and knee, finding really painful to walk, waiting for hip replacement , I am using 2 sticks at the mo, has anyone got any bright ideas how I can stop them falling over please as I won’t be able to bend after op thank you
daisyd
in
Arthritis Action
10 months ago
Total knee replacement
I’m 6 days post total left knee replacement and struggling! I have no muscle strength to help my rehabilitation. The Physio is expecting me to lift my operated leg up and to bend it but I just haven’t got the physical strength to do so. As a result my rehab is way behind and there is a possibility I
I’m 6 days post total left knee replacement and struggling! I have no muscle strength to help my rehabilitation. The Physio is expecting me to lift my operated leg up and to bend it but I just haven’t got the physical strength to do so. As a result my rehab is way behind and there is a possibility I
Toffeeboyblue
in
PMRGCAuk
7 months ago
Chemotherapy- to do or not at 82 years ?
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
Simpson80
in
Advanced Prostate Cancer
2 hours ago
PSMA PET 7/17/2024 vs. Axumin PET 1/3/2024
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
dhccpa
in
Advanced Prostate Cancer
11 hours ago
Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
16 hours ago
3-months medical check
Very happy with results, PSA undetectable and other blood values good, too. No medication since orchiectomy in 02/2024. Still exercising daily and continuing with plant based diet plus some fish. For more details pls see bio. Will invite my wife for dinner tonight.
Very happy with results, PSA undetectable and other blood values good, too. No medication since orchiectomy in 02/2024. Still exercising daily and continuing with plant based diet plus some fish. For more details pls see bio. Will invite my wife for dinner tonight.
Nusch
in
Advanced Prostate Cancer
2 days ago
CRPC and low dose Estradiol patch
Can anyone tell me if being Crpc and doing low dose estradiol have a negative effect on psa
Can anyone tell me if being Crpc and doing low dose estradiol have a negative effect on psa
Knittingque
in
Advanced Prostate Cancer
2 days ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
2 days ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
2 days ago
My MSK Precise / SBRT Journey -- 2.5 Years Post-Treatment
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
Hope4Happiness
in
Prostate Cancer Network
3 days ago
Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
3 days ago
Question
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
lovepockets
in
Advanced Prostate Cancer
3 days ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
3 days ago
Prostate Cancer PSA is detectible again
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
DLetterman
in
Prostate Cancer Network
4 days ago
What treatment next as PSA increasing on Daroludamide & Lupron
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
mklc
in
Advanced Prostate Cancer
4 days ago
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