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Non-small-cell lung carcinoma
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Non small cell adenoma carcinoma
It is Ncpoet again. I forgot to put in my first post that I was told that I had Stage 4 lung cancer.
It is Ncpoet again. I forgot to put in my first post that I was told that I had Stage 4 lung cancer.
Ncpoet
in
Lung Cancer Support
7 years ago
Non small cell adenoma carcinoma
Hi, I am new here and was diagnosed with NSC adenoma carcinoma lung cancer in 2013. I started off with carboplatin and alimta for 2 months, then switched to Xalkori for 7 months, Zykadia for 5 months and then back on Alimta every 3 weeks for a year. After all that, my cancer was inactive and only
Hi, I am new here and was diagnosed with NSC adenoma carcinoma lung cancer in 2013. I started off with carboplatin and alimta for 2 months, then switched to Xalkori for 7 months, Zykadia for 5 months and then back on Alimta every 3 weeks for a year. After all that, my cancer was inactive and only
Ncpoet
in
Lung Cancer Support
7 years ago
GVHD after a stem cell transplant
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
Christian057
in
CLL Support
7 years ago
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Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
PMR / CRA assesment
I have had complete blood work up relative to a PMR ~ ESR 61 2-30mm/hr; LO Hemoglobin, Hematocrit, RBC, Albumin ~ HI Neutrophils, Leukocyte Esterase, Alpha 1 Globulin. Rest of flags ok. There must be food, exercise to bring these in line without use of steroids
I have had complete blood work up relative to a PMR ~ ESR 61 2-30mm/hr; LO Hemoglobin, Hematocrit, RBC, Albumin ~ HI Neutrophils, Leukocyte Esterase, Alpha 1 Globulin. Rest of flags ok. There must be food, exercise to bring these in line without use of steroids
hedgehog8
in
PMRGCAuk
7 years ago
First call for transplant
Had my first call last night, they told me I would be the back up for a heart lung transplant, if the heart was not acceptable I would get the lungs. So stressful for not only me but my family as it turned out not to be my time. Not sure how I feel today but can say wythenshawe hospital made the whole
Had my first call last night, they told me I would be the back up for a heart lung transplant, if the heart was not acceptable I would get the lungs. So stressful for not only me but my family as it turned out not to be my time. Not sure how I feel today but can say wythenshawe hospital made the whole
southy
in
Lung Conditions Community Forum
7 years ago
Derealisation / dissociation disorder
Hi guys, So my journey started May 2016 I lost my mother aged 28. After months of excruciating grief I got a terrible virus (labrynthitis) in December last year which by January hadn't gone. In January 2017 I got a dissociation disorder. This presented itself as derealisation. It's hard to explain
Hi guys, So my journey started May 2016 I lost my mother aged 28. After months of excruciating grief I got a terrible virus (labrynthitis) in December last year which by January hadn't gone. In January 2017 I got a dissociation disorder. This presented itself as derealisation. It's hard to explain
wowserclo
in
Thyroid UK
7 years ago
Lung Cancer and New Carpets
Just thought I would tell you about our experience. We bought a new carpet and due to the smell from the carpet and the filaments that came off the carpet both my and my partners breathing were affected. I have stage 4 lung cancer and my partner has had asthma since he was a child. We thought we were
Just thought I would tell you about our experience. We bought a new carpet and due to the smell from the carpet and the filaments that came off the carpet both my and my partners breathing were affected. I have stage 4 lung cancer and my partner has had asthma since he was a child. We thought we were
Bow-19
in
The Roy Castle Lung Cancer Foundation
7 years ago
Study presented at the European Society for Medical Oncology (ESMO) Congress may mean a new way to treat patients with stage 3 lung cancer
This past week, results of some key studies were presented at a major meeting in Spain. One study, called the PACIFIC trial, could change the way that patients with stage 3 lung cancer are treated. The study showed that patients with stage 3 lung cancer who took an immunotherapy drug (durvalumab, brand
This past week, results of some key studies were presented at a major meeting in Spain. One study, called the PACIFIC trial, could change the way that patients with stage 3 lung cancer are treated. The study showed that patients with stage 3 lung cancer who took an immunotherapy drug (durvalumab, brand
MFH_Advocate
in
Lung Cancer Support
7 years ago
Positive news
Went to see my husbands oncologist Monday following the recent CT scan. We both went in with intrepidation but the news was fantastic. The tumour has shrunk again and some that had disappeared has not returned. In January 2017 we were hit with the news that he had lung cancer. It's been a roller coaster
Went to see my husbands oncologist Monday following the recent CT scan. We both went in with intrepidation but the news was fantastic. The tumour has shrunk again and some that had disappeared has not returned. In January 2017 we were hit with the news that he had lung cancer. It's been a roller coaster
CaroleH1949
in
The Roy Castle Lung Cancer Foundation
7 years ago
Stem Cell Transplant research
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
More seizures!!
Hi all thought i would bring you up to date as not posted for a while. After having a seizure in feb I was told it could be a one off, no such luck as had another in june again at night and almost the same time as before! They kept me in hospital for a few days so I could see the Neurologist, bit of
Hi all thought i would bring you up to date as not posted for a while. After having a seizure in feb I was told it could be a one off, no such luck as had another in june again at night and almost the same time as before! They kept me in hospital for a few days so I could see the Neurologist, bit of
jlyndauk2002
in
PMRGCAuk
7 years ago
discovering your own sickle cell as it is not anyone else's
I have had sickle cell all my life 45 years but only did I discover it in the last few years mainly just an ache in the lower region and then later when I was doing boot camp exercises. I had been seeing a physio for 2 years and always monthly I had my lower section re-adjusted but then it moved to upper
I have had sickle cell all my life 45 years but only did I discover it in the last few years mainly just an ache in the lower region and then later when I was doing boot camp exercises. I had been seeing a physio for 2 years and always monthly I had my lower section re-adjusted but then it moved to upper
kilincli
in
Sickle Cell Society
7 years ago
surgery
I have sickle cell anemia homozygous and it is killing me I wish to undergo a bone marrow transplant surgery but as you my know it very expensive thus I am writing to ask is there an organizations that would fund my surgery . please enlighten me .
I have sickle cell anemia homozygous and it is killing me I wish to undergo a bone marrow transplant surgery but as you my know it very expensive thus I am writing to ask is there an organizations that would fund my surgery . please enlighten me .
Hidden
in
Sickle Cell Society
7 years ago
judg69
Maxed out on lung radiation, 2+ years heavy duty chemo, right lung lobectomy, and now a 5+ year survivor of Stage III A/B lung cancer. Have severe Stage III COPD and am on oxygen 24/7.
Maxed out on lung radiation, 2+ years heavy duty chemo, right lung lobectomy, and now a 5+ year survivor of Stage III A/B lung cancer. Have severe Stage III COPD and am on oxygen 24/7.
judg69
in
Lung Cancer Support
7 years ago
Weight loss with lung cancer
Hi,82 years old,have cancer top of right lung,Doc says no treetment due to my weight loss,so need to gain some .can anyone advise on have to do it PLEASE
Hi,82 years old,have cancer top of right lung,Doc says no treetment due to my weight loss,so need to gain some .can anyone advise on have to do it PLEASE
BRIANB123
in
Lung Cancer Support
7 years ago
Update to Specialist 1st visit
Hi everyone, Thank you for the support and information shared to my original post. As promised, I’m sharing what was explained to me by my referring hematologist regarding the letter sent her by the specialist. This is my experience and I want to be careful to not alarm any other forum members. This
Hi everyone, Thank you for the support and information shared to my original post. As promised, I’m sharing what was explained to me by my referring hematologist regarding the letter sent her by the specialist. This is my experience and I want to be careful to not alarm any other forum members. This
Cmg5935
in
MPN Voice
7 years ago
Myleofibrosis and acute myeloid leukaemia
I am 47 and have no family able to give me bone marrow for a transplant, has anybody got any advice about treatmen or even prognosis. All I can find on the net is your gonna die, so am desperate for some proper sensible advice. I was only told 3 days ago, but told I would need 2 weeks of chemo and a
I am 47 and have no family able to give me bone marrow for a transplant, has anybody got any advice about treatmen or even prognosis. All I can find on the net is your gonna die, so am desperate for some proper sensible advice. I was only told 3 days ago, but told I would need 2 weeks of chemo and a
Paul278mc
in
MPN Voice
7 years ago
Fresh from first visit to oncologist Is palliative chemo worth it?
This is my first post here. Today I saw my specialist for the first time. I've had all manner of tests to find a cause for my upset stomach and weight loss. He tells me I have almost certainly got an aggressive stage 4 lung cancer in one lung, spleen, adrenal gland and possibly in my larynx. He seems
This is my first post here. Today I saw my specialist for the first time. I've had all manner of tests to find a cause for my upset stomach and weight loss. He tells me I have almost certainly got an aggressive stage 4 lung cancer in one lung, spleen, adrenal gland and possibly in my larynx. He seems
Ghost-by-the-coast
in
The Roy Castle Lung Cancer Foundation
7 years ago
3 day program for Lung transplant list
Hello everyone, Tomorrow I continue my journey at Wythenshawe hospital at Manchester in the UK. I arrive there Monday and I will be released on the Wednesday after I have had all the testing I am hoping to make it onto the lung transplant list for a double lung transplant. I have severe Bronchiectasis
Hello everyone, Tomorrow I continue my journey at Wythenshawe hospital at Manchester in the UK. I arrive there Monday and I will be released on the Wednesday after I have had all the testing I am hoping to make it onto the lung transplant list for a double lung transplant. I have severe Bronchiectasis
Joseph260268
in
Lung Conditions Community Forum
7 years ago
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