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SICKLE CELL NEWS (Jan-March 2018)
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
scnews
in
Sickle Cell Society
7 years ago
Port install experience
Hello- I am 50yo woman and have been battling stage 4 nsc lung cancer for a little over a year now. I've have chemo (Carboplatin and Alimta) , then maintenance with only Alimta. The full chemo had good progress but once I went on maintenance it started to grow and the pain in my bones is coming back
Hello- I am 50yo woman and have been battling stage 4 nsc lung cancer for a little over a year now. I've have chemo (Carboplatin and Alimta) , then maintenance with only Alimta. The full chemo had good progress but once I went on maintenance it started to grow and the pain in my bones is coming back
Lexis6767
in
Lung Cancer Support
7 years ago
Are you a man affected by cancer, if so can you help with some research
hello all, below are details from a research project looking for men who have viewed support services as part of managing their cancer. Please use the contact below if you are able to assist. Male cancer patients are invited for a research, which aims to examine the impact of non-clinical services on
hello all, below are details from a research project looking for men who have viewed support services as part of managing their cancer. Please use the contact below if you are able to assist. Male cancer patients are invited for a research, which aims to examine the impact of non-clinical services on
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
7 years ago
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Tracheobroncomalacia
Hi after several studies to see if I am a candidate for a long transplant, de doctor said that I have a test tracheobroncomalacia. They referral me from doing the lung transplant there because they said that they have no experience. This happens at the SaintJoseph Hospital in Arizona. They suggest it
Hi after several studies to see if I am a candidate for a long transplant, de doctor said that I have a test tracheobroncomalacia. They referral me from doing the lung transplant there because they said that they have no experience. This happens at the SaintJoseph Hospital in Arizona. They suggest it
ajua
in
COPD Friends
7 years ago
CAR-T Therapy Inquiry
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
Naka
in
CLL Support
7 years ago
Lung Surgery is on Hold
After visiting my consultant ideas told that I needed major lung surgery as my right lung is in a really bad state. This was going to be a problem as I was told years ago by the army physician that I am allergic to general anesthetic. On seeing the Surgeon I explained to him about this and I was told
After visiting my consultant ideas told that I needed major lung surgery as my right lung is in a really bad state. This was going to be a problem as I was told years ago by the army physician that I am allergic to general anesthetic. On seeing the Surgeon I explained to him about this and I was told
Goalsetterphil
in
COPD Friends
7 years ago
Lung transplant having a celebratory drink.
Good morning everyone, I am currently trying to get on the lung transplant list in the UK. I occasionally at party’s and Birthday celebrations toast a glass or two to the person celebrating. My question is if I am successful in getting on the list and having the surgery is the rule that you don’t drink
Good morning everyone, I am currently trying to get on the lung transplant list in the UK. I occasionally at party’s and Birthday celebrations toast a glass or two to the person celebrating. My question is if I am successful in getting on the list and having the surgery is the rule that you don’t drink
Joseph260268
in
Lung Conditions Community Forum
7 years ago
Are you receiving or have you received immunotherapy for non small cell lung cancer (NSCLC) in the last 12 months?
I've had a request from Patient Power for help from UK lung cancer patients who may be eligible to take part in a survey about their experience with their immunotherapy treatments. If you or anyone you know is eligible, please contact Laura directly at laura@patientpower.info if you or they fit the
I've had a request from Patient Power for help from UK lung cancer patients who may be eligible to take part in a survey about their experience with their immunotherapy treatments. If you or anyone you know is eligible, please contact Laura directly at laura@patientpower.info if you or they fit the
JanetteR57
in
The Roy Castle Lung Cancer Foundation
7 years ago
Salt lamps
Hi everyone merry Christmas! I'm one year post op single lung transplant, I'm currently going thru a chest infection for which I'm on extremely strong antibiotics for, I have a salt lamp and use eucalyptus oil and peppermint in it, I don't know if it's supposed to be doing its job or not!! Does anyone
Hi everyone merry Christmas! I'm one year post op single lung transplant, I'm currently going thru a chest infection for which I'm on extremely strong antibiotics for, I have a salt lamp and use eucalyptus oil and peppermint in it, I don't know if it's supposed to be doing its job or not!! Does anyone
Hidden
in
Lung Conditions Community Forum
7 years ago
Opdivo..What do You Know
Help. Doctor has changed mind again. He is now checking my insurance to see if it will approve me trying Opdivo. I have read about the side affects and am worried. Has anyone tried this immunotherapy drug? I read an article recently that Keytruda was doing better for certain people but it appears
Help. Doctor has changed mind again. He is now checking my insurance to see if it will approve me trying Opdivo. I have read about the side affects and am worried. Has anyone tried this immunotherapy drug? I read an article recently that Keytruda was doing better for certain people but it appears
Marymac4441
in
Lung Cancer Support
7 years ago
Severe Anxiety!
I thought I had got on top of this issue but.... about 7 weeks ago it returned!!! I call it my wobbles!!! Psyching myself up to go anywhere even to work in the morning or home in the evening!!! I get shortness of breath, tight back, tight tummy and an obsessive need for the toilet!!! I always calm myself
I thought I had got on top of this issue but.... about 7 weeks ago it returned!!! I call it my wobbles!!! Psyching myself up to go anywhere even to work in the morning or home in the evening!!! I get shortness of breath, tight back, tight tummy and an obsessive need for the toilet!!! I always calm myself
Lynnelovessunshine
in
Lung Conditions Community Forum
7 years ago
Matt says hi
So Matt hasn't been on much as his RA has been bad and his hands hurt. He's now concerned that the RA might affect the requirements for lung transplant but still waiting to see. He sends his love to all. I hope you could send him some healing thoughts and I will get him to read them .
So Matt hasn't been on much as his RA has been bad and his hands hurt. He's now concerned that the RA might affect the requirements for lung transplant but still waiting to see. He sends his love to all. I hope you could send him some healing thoughts and I will get him to read them .
allanah
in
NRAS
7 years ago
Taking A Deep Breath
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
7 years ago
The FDA approves a new test to look at mutations in many types of cancers, including lung cancer
Yesterday the FDA approved a test that can detect mutations in 324 genes and two genomic signatures in any type of solid tumor (including lung cancer). The Centers for Medicare & Medicaid Services (CMS) also proposed coverage of this test. This one test could allow doctors to better understand the profile
Yesterday the FDA approved a test that can detect mutations in 324 genes and two genomic signatures in any type of solid tumor (including lung cancer). The Centers for Medicare & Medicaid Services (CMS) also proposed coverage of this test. This one test could allow doctors to better understand the profile
MFH_Advocate
in
Lung Cancer Support
7 years ago
Anxious and scared
I have a shadow on my lung 4cm , waiting for pet scan to see if it's anywhere else or just my right lung, I have cried given my self death sentence, all very strange had a cough for 4/6 weeks had x ray then ct scan 5 days later had my first lung clinic appointment past all the tests 100% not breathless
I have a shadow on my lung 4cm , waiting for pet scan to see if it's anywhere else or just my right lung, I have cried given my self death sentence, all very strange had a cough for 4/6 weeks had x ray then ct scan 5 days later had my first lung clinic appointment past all the tests 100% not breathless
Sherriehope
in
Lung Conditions Community Forum
7 years ago
Bone Marrow Transplant Begins
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
Beauxman
in
Advanced Prostate Cancer
7 years ago
11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
Stem cell transplant
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
DebLeeCox
in
CLL Support
7 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. Kate Gilbert PhD
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!
Hidden
in
PMRGCAuk
7 years ago
B12 deficient steak lover
HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went to my GP with what I thought were Hypothyroid symptoms on my Mother's advice since she has this condition. I was shocked to learn that my thyroid was fine (given a family history of thyroid problems) but found that I had
HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went to my GP with what I thought were Hypothyroid symptoms on my Mother's advice since she has this condition. I was shocked to learn that my thyroid was fine (given a family history of thyroid problems) but found that I had
TMur1990
in
Pernicious Anaemia Society
7 years ago
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