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Non-small-cell lung carcinoma
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New Roy Castle booklets - can you help?
Hello. I am the Information Officer at Roy Castle Lung Cancer Foundation and I am working on two new booklets: - Understanding bone metastases and lung cancer, and - Immunotherapy for lung cancer We like to put supportive quotes in our booklets to help others going through similar treatments or living
Hello. I am the Information Officer at Roy Castle Lung Cancer Foundation and I am working on two new booklets: - Understanding bone metastases and lung cancer, and - Immunotherapy for lung cancer We like to put supportive quotes in our booklets to help others going through similar treatments or living
Hidden
in
The Roy Castle Lung Cancer Foundation
5 years ago
PATCH ON LUNG - 2
To Savanna01 and for all the kind people that have replied to my initial post. The CT scan my wife had was not conclusive and on 28th June had a Bronchoscopy and was to wait until the results were through and an appointment was made for 11th July. However, she got a telephone call yesterday morning
To Savanna01 and for all the kind people that have replied to my initial post. The CT scan my wife had was not conclusive and on 28th June had a Bronchoscopy and was to wait until the results were through and an appointment was made for 11th July. However, she got a telephone call yesterday morning
Hidden
in
The Roy Castle Lung Cancer Foundation
5 years ago
AURA & LUNG DISEASE Experiment #1
Yup by no means scienctific BUT given my lung disease SOMETHING seems missing from my person AND I want it back. Recently I used my phone app called iaura that shows you your AURA BIT of fun really BUT when I tested my AURA there was no response GOSH like I was not there. Anyway I tested others and worked
Yup by no means scienctific BUT given my lung disease SOMETHING seems missing from my person AND I want it back. Recently I used my phone app called iaura that shows you your AURA BIT of fun really BUT when I tested my AURA there was no response GOSH like I was not there. Anyway I tested others and worked
Hidden
in
Lung Conditions Community Forum
5 years ago
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Comparing other countries treatment.
Hi everyone, my mum has been recently diagnosed with Stage 4 NON SMALL CELL LUNG CANCER ADENOCARSINOMA confined to both lungs with one enlarged lymph node on the chest. She’s 61 and was never a smoker. Just wondering anyone with the similar diagnosis out here is able to help us. We would like to know
Hi everyone, my mum has been recently diagnosed with Stage 4 NON SMALL CELL LUNG CANCER ADENOCARSINOMA confined to both lungs with one enlarged lymph node on the chest. She’s 61 and was never a smoker. Just wondering anyone with the similar diagnosis out here is able to help us. We would like to know
Workaddict58
in
Lung Cancer Support
5 years ago
Comparing other countries treatment.
Hi everyone, my mum has been recently diagnosed with Stage 4 NON SMALL CELL LUNG CANCER ADENOCARSINOMA confined to both lungs with one enlarged lymph node on the chest. She’s 61 and was never a smoker. Just wondering anyone with the similar diagnosis out here is able to help us. We would like to know
Hi everyone, my mum has been recently diagnosed with Stage 4 NON SMALL CELL LUNG CANCER ADENOCARSINOMA confined to both lungs with one enlarged lymph node on the chest. She’s 61 and was never a smoker. Just wondering anyone with the similar diagnosis out here is able to help us. We would like to know
Workaddict58
in
The Roy Castle Lung Cancer Foundation
5 years ago
PAP
Well I had a single lung transplant 2.5 years ago and doing great .... I went for my check up at newcastle and they say my lung disease has returned 😥 I have pulmonary alveolar proteinosis... it's in my genes which therefore it will progress , we dont know how long it will take but the option of re
Well I had a single lung transplant 2.5 years ago and doing great .... I went for my check up at newcastle and they say my lung disease has returned 😥 I have pulmonary alveolar proteinosis... it's in my genes which therefore it will progress , we dont know how long it will take but the option of re
Hidden
in
Lung Conditions Community Forum
5 years ago
Farewell to our dear friend Anita
I’ve been sitting here staring at the blinking cursor and I’ve no idea for how long. Words don’t usually fail me but this weeks loss is devastating. You knew her here as Anita Figueras or SciFiKnitter. She was a blogger on this board when it was managed by Free to Breathe. If you have EGFR+ adenocarcinoma
I’ve been sitting here staring at the blinking cursor and I’ve no idea for how long. Words don’t usually fail me but this weeks loss is devastating. You knew her here as Anita Figueras or SciFiKnitter. She was a blogger on this board when it was managed by Free to Breathe. If you have EGFR+ adenocarcinoma
Denzie
Volunteer
in
Lung Cancer Support
5 years ago
Relapse 😔
I didn’t want to write this but yes, I relapsed.. it was a combination of drink and sorrow that led me to light up. My dog, my friend for over 15 years, died. I had him euthanized and that made it even harder. I have quit again - yesterday was completely smoke-free. I guess I smoked off and on for almost
I didn’t want to write this but yes, I relapsed.. it was a combination of drink and sorrow that led me to light up. My dog, my friend for over 15 years, died. I had him euthanized and that made it even harder. I have quit again - yesterday was completely smoke-free. I guess I smoked off and on for almost
ccurn
13 MONTHS WINNER
in
Quit Support
5 years ago
Who I am
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
orlanw
in
Lung Conditions Community Forum
5 years ago
LDH markers
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
Goingcuckoo
in
Lung Cancer Support
5 years ago
KRAS mutation
What does the KRAS mean to a lung cancer patient? Is this really a bad mutation? Do you die sooner?
What does the KRAS mean to a lung cancer patient? Is this really a bad mutation? Do you die sooner?
Lovey1000
in
Lung Cancer Support
5 years ago
Recurrence generic testing
I was wondering why after right middle lung lobectomy for early stage adenocarcinoma they did not do genetic testing? Seems it would be better to know what paths to take if it recurs. Wouldn’t it be better to know before and not have to wait for these results then? Should I feel short changed?
I was wondering why after right middle lung lobectomy for early stage adenocarcinoma they did not do genetic testing? Seems it would be better to know what paths to take if it recurs. Wouldn’t it be better to know before and not have to wait for these results then? Should I feel short changed?
Metafran
in
Lung Cancer Support
5 years ago
It’s Official BURNT TOAST If WOMAN LADY LADIEs Is Cooking Your Beanzs
Anyway It’s all very complicated but rember when that talked about cooking meat 🍖 in beer 🍺 to reduce risk NOT sure that works with bread🍞 Talking about a mess I had lung flare up copd exacerbation AND it coincided with me burning my toast Toast was like glass ANYWAY after my fix felt ok 👌 So
Anyway It’s all very complicated but rember when that talked about cooking meat 🍖 in beer 🍺 to reduce risk NOT sure that works with bread🍞 Talking about a mess I had lung flare up copd exacerbation AND it coincided with me burning my toast Toast was like glass ANYWAY after my fix felt ok 👌 So
Hidden
in
Lung Conditions Community Forum
5 years ago
Maintenance treatment
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Ina3
in
The Roy Castle Lung Cancer Foundation
5 years ago
Maintenance treatment
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Ina3
in
Lung Cancer Support
5 years ago
LDH markers
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
Goingcuckoo
in
The Roy Castle Lung Cancer Foundation
5 years ago
CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Back pains
I had a lower left lung lobectomy 11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued. I am having pains now in my sides where as when I bend down they really hurt mainly around the base of the
I had a lower left lung lobectomy 11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued. I am having pains now in my sides where as when I bend down they really hurt mainly around the base of the
Happy64
in
The Roy Castle Lung Cancer Foundation
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
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