Who I am

[orlanw]

I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.

[Tricity125]

Hi. I waiting on double lung TX. I've been ill 10 yrs. my fev1 was 12 now I got back up to 16. Do you have A1AD.

[orlanw in reply to Tricity125]

No, I don't

[Tricity125]

Where about USA r you. Orlanw u ever been to London uk

[orlanw in reply to Tricity125]

Indiana and never been to London

[Ergendl in reply to orlanw]

Sort of snap: born south London and have never been to Indiana.

[Tricity125]

What's your Fev 1 score now. Any idea. I have been waiting 8 months and had 5 donors declined. No match enough but 5 in 8 months very good. I am Candidate quite tall 53 yrs male common blood group. How long did you wait. And how many offers did you do

[orlanw]

Hanging around 92 FEV1. I waited 3 years. Had one offer and it has been successful. It hasn't been easy,but I would do it again.

[Hidden in reply to orlanw]

How low can ones Fev1 get yet one is still alive? 12%/16%😳😳

[Tricity125]

Is that south of New York State was you born there. What health care like there. Are you rich. How's your health. Now 7 yrs after. Your lung. TX

[orlanw]

No, I was born in Washington State. I am on the Medicare system in United States. Wish i was rich. LOL

[Hidden in reply to orlanw]

Where in wa st?

[Hidden in reply to Hidden]

I live in Eastern WA State now however, was born in Western WA

[orlanw in reply to Hidden]

Spokane area

[Hidden in reply to orlanw]

We’re close

[Tricity125]

It's very late now 4 am I most get some shut eye cos planning a trip out of the city. So must rest. Sleep & plan Got big day. Tomorrow just back driving my car in 16 months I went Saturday gone and proved I can. So very happy to be still able to drive so. Bye. And. Maybe we chat another Time and you explain how you survived. Until now. Well done bye Paul

[orlanw in reply to Tricity125]

Sweet dreams, chat with you another day

[Fleurbaby]

Hi orlanw, I just want to say thank you for sharing your story I really appreciate you explaining what has happened, I am nothing, if not a planner, I try to allow for all eventualities!

I have always been keen on hearing from anyone who has had a transplant, you are proof transplants can work long term! Getting people to open up about long term goals is hard! WE ALL WANT TO LIVE, but, if people know the "recipe" please tell us! Don't wait until we find out the hard way. At least if I have a few choices, I can make an adult choice, as to what to do!

[hypercat54]

Hi well done. I bet it was amazing to be able to breathe again and to have a much more active life. There are a few on here who are waiting for lung transplants and this can only hearten them. x

[peege]

That's really good to know, one of our members had a transplant very recently so this will be cheering news for her 👍