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Join Us! Tomorrow, June 13th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, June 13th, at 5pm PT/8pm ET. At this meeting
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, June 13th, at 5pm PT/8pm ET. At this meeting
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
BIOMARKER TESTING
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
Info911
in
The Roy Castle Lung Cancer Foundation
1 year ago
hyperventilating
Everytime I cough hard as a result of breathlessness because of any slight movemnt I make Ive started hyperventilating this has only happened very recently Im used to getting sick after it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating
Everytime I cough hard as a result of breathlessness because of any slight movemnt I make Ive started hyperventilating this has only happened very recently Im used to getting sick after it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
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***NEW SUPPORT GROUPS!!***
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ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY
[/i][/u] [i]
GENETIC MUTATION LUNG CANCER - We are looking for people to join our Genetic Mutation Specific support group. This will be our third group and is a great way to get information and meet people in a similar
[u][i]
ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY
[/i][/u] [i]
GENETIC MUTATION LUNG CANCER - We are looking for people to join our Genetic Mutation Specific support group. This will be our third group and is a great way to get information and meet people in a similar
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Home Oxygen is a game changer
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Tooth extraction and tocilizumab
Hi I am going to have to have a tooth extraction....dentist says chance of jaw necrosis from tocilizumab and I wonder if anyone has had this ....I know from here that it is only a small chance but its scary ! Also will I need to come off medications (tocilizumab and methotrexate) first? Advice appreciated
Hi I am going to have to have a tooth extraction....dentist says chance of jaw necrosis from tocilizumab and I wonder if anyone has had this ....I know from here that it is only a small chance but its scary ! Also will I need to come off medications (tocilizumab and methotrexate) first? Advice appreciated
WaltzG
in
PMRGCAuk
10 months ago
has anyone here undergone Lung Surgery for cancer?
hi there, newbie here who has just joined and who is looking to connect with some people who have experienced treatments for lung cancer, in this instance, surgery. my mum has been diagnosed with stage 3a lung cancer and is in the process of gathering information in order to make a decision over what
hi there, newbie here who has just joined and who is looking to connect with some people who have experienced treatments for lung cancer, in this instance, surgery. my mum has been diagnosed with stage 3a lung cancer and is in the process of gathering information in order to make a decision over what
Chambertin-1
in
Lung Conditions Community Forum
1 year ago
lung surgery
morning everyone been a member since 2014 don’t contribute very often but read everyday I have a large lung bulla and waiting to have it removed via robotic surgery I’m hoping someone has had this surgery and tell me there experience I’m 74 so any surgery is higher risk Thanks in advance Lyn
morning everyone been a member since 2014 don’t contribute very often but read everyday I have a large lung bulla and waiting to have it removed via robotic surgery I’m hoping someone has had this surgery and tell me there experience I’m 74 so any surgery is higher risk Thanks in advance Lyn
lynisa48
in
Lung Conditions Community Forum
1 year ago
Start of my stem cell journey 0.3.1 ambulatory care
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
Grizly
in
MPN Voice
9 months ago
Start of my Stem Cell Journey 0.3
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Grizly
in
MPN Voice
9 months ago
CBD; worth a try for pain relief..?
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Autoimmune Registry
I didn't know there was an Autoimmune Registry. However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell arteritis. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got
I didn't know there was an Autoimmune Registry. However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell arteritis. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got
HeronNS
in
PMRGCAuk
10 months ago
Severe reaction to immunotherapy
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
toffeepudding
in
The Roy Castle Lung Cancer Foundation
1 year ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
Blip in Immunitherapy ?
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
Holepunch
in
The Roy Castle Lung Cancer Foundation
1 year ago
Genetics - Children of Lung Cancer Patients
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
JustBreathe82
in
The Roy Castle Lung Cancer Foundation
1 year ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
1 year ago
Diagnosed 5 months post Operation with Fluid on the lung. Is this normal & will it clear up? Should I be concerned?
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Eaglewings1
in
The Roy Castle Lung Cancer Foundation
1 year ago
RA and live flu vaccine
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
Julia31
in
NRAS
10 months ago
Post stem cell transplant vaccinations
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Platelets2022
in
Leukaemia Support
10 months ago
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