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Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
Lung Transplant Update
Hi Everyone... I wanted to share with you an update on my mums transplant listing 2 weeks ago we were devastated to be placed on hold on the list after Papworth team determined that my mother was too weak for surgery during review, yesterday we feared the worst but actually they placed mum back on the
Hi Everyone... I wanted to share with you an update on my mums transplant listing 2 weeks ago we were devastated to be placed on hold on the list after Papworth team determined that my mother was too weak for surgery during review, yesterday we feared the worst but actually they placed mum back on the
Queenbean
in
Lung Conditions Community Forum
5 years ago
EGFR mutations on exon 20 and exon 21
Hello, I'm 42M, and I've just been diagnosed with stage 4 lung cancer. My PD-L1 is between 30 and 40%, and I have EGFR S768I (exon 20) and EGFR L858R (exon 21) mutations. Is it normal to have more than one EGFR mutation? I'm starting treatment on osimertinib, how effective is this treatment?
Hello, I'm 42M, and I've just been diagnosed with stage 4 lung cancer. My PD-L1 is between 30 and 40%, and I have EGFR S768I (exon 20) and EGFR L858R (exon 21) mutations. Is it normal to have more than one EGFR mutation? I'm starting treatment on osimertinib, how effective is this treatment?
Ssbastos
in
Lung Cancer Support
5 years ago
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Done with Lutetium
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
Beauxman
in
Advanced Prostate Cancer
5 years ago
Survival With Sirolimus Plus Tacrolimus Maintenance Without Induction Therapy Compared With Standard Immunosuppression After Lung Transplant
Question Which immunosuppressive strategy is associated with the highest survival in lung transplantation? Findings In this cohort study of US recipients of lung transplants, sirolimus plus tacrolimus was associated with significantly better conditional survival from 1 year after transplant compared
Question Which immunosuppressive strategy is associated with the highest survival in lung transplantation? Findings In this cohort study of US recipients of lung transplants, sirolimus plus tacrolimus was associated with significantly better conditional survival from 1 year after transplant compared
2greys
in
Lung Conditions Community Forum
5 years ago
Mother has Giant Cell Arteritis - what does the future hold?
Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxx
Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxx
TheSmartestGiant70
in
PMRGCAuk
5 years ago
Living Room Thursday, August 29 in Washington DC
Please join us in person, facebook live or youtube for a special living room held in Washington DC. Topic:Navigating the Journey of Lung Cancer: From Diagnosis to Treatment and Beyond Speakers:Dr. Benjamin Levy – Johns Hopkins Sidney Kimmel Cancer Center at Sibley Memorial Hospital Rasheda Persinger
Please join us in person, facebook live or youtube for a special living room held in Washington DC. Topic:Navigating the Journey of Lung Cancer: From Diagnosis to Treatment and Beyond Speakers:Dr. Benjamin Levy – Johns Hopkins Sidney Kimmel Cancer Center at Sibley Memorial Hospital Rasheda Persinger
KimGO2
Administrator
in
Lung Cancer Support
5 years ago
New Drug Combination Shows Promising Activity in Non-Small Cell Lung Cancer Patients.
Patients with non-small cell lung cancer (NSCLC) now have more improved treatment options compared to standard of care with the addition of several new agents called immune-checkpoint inhibitors (ICI). Despite these changes, many patients still develop progressive disease after ICI treatment. In a new
Patients with non-small cell lung cancer (NSCLC) now have more improved treatment options compared to standard of care with the addition of several new agents called immune-checkpoint inhibitors (ICI). Despite these changes, many patients still develop progressive disease after ICI treatment. In a new
2greys
in
Lung Conditions Community Forum
5 years ago
Cannabis and impact on immunotherapy study published
Included were 140 patients (89 nivolumab alone, 51 nivolumab plus cannabis) with advanced melanoma,
non
-
small
cell
lung
cancer, and renal clear cell
carcinoma
. The groups were homogenous regarding demographic and disease characteristics. A comparison between the two arms was made.
Included were 140 patients (89 nivolumab alone, 51 nivolumab plus cannabis) with advanced melanoma,
non
-
small
cell
lung
cancer, and renal clear cell
carcinoma
. The groups were homogenous regarding demographic and disease characteristics. A comparison between the two arms was made.
missyrand
Ambassador
in
Melanoma Caregivers
5 years ago
Don’t know where to turn
My dad has been diagnosed with terminal lung cancer he’s 90, he just sits in a chair all day because he can’t breathe but no one is helping us, we’ve asked for oxygen but they have said it won’t make any difference, surely this will help him breathe better. We don’t know where to turn it’s heartbreaking
My dad has been diagnosed with terminal lung cancer he’s 90, he just sits in a chair all day because he can’t breathe but no one is helping us, we’ve asked for oxygen but they have said it won’t make any difference, surely this will help him breathe better. We don’t know where to turn it’s heartbreaking
2703
in
The Roy Castle Lung Cancer Foundation
5 years ago
Good news from Tricity125
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Ali_H
in
Lung Conditions Community Forum
5 years ago
Please watch Video (Giant Cell and PMR and Tocilizumab)
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
lemarie1
in
PMRGCAuk
5 years ago
I’m disappointed at not having targeted therapy!
So I had the results back and Ive been scheduled to start chemo in 2 weeks. I must admit I’m a bit disappointed at not being able to have the targeted therapy. I’d almost pinned the hope on these newer drugs and so being told I didn’t have the right mutation was a bit of a blow. The newer drugs all seem
So I had the results back and Ive been scheduled to start chemo in 2 weeks. I must admit I’m a bit disappointed at not being able to have the targeted therapy. I’d almost pinned the hope on these newer drugs and so being told I didn’t have the right mutation was a bit of a blow. The newer drugs all seem
Llesing
in
The Roy Castle Lung Cancer Foundation
5 years ago
Colonoscopy Whilst on Steroids
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! 😊 My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! 😊 My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Songbird69
in
PMRGCAuk
5 years ago
Vitamin D deficiency and Emphysema?
I am curious to know how many people with Emphysema also had a Vitamin D deficiency? And high cholesterol?
I am curious to know how many people with Emphysema also had a Vitamin D deficiency? And high cholesterol?
Hidden
in
Lung Conditions Community Forum
5 years ago
back pain post op
hope you all have a happy sunday! My mom has been having a bit of back pain after her lobectomy. Is it normal? Not bad back pain, but after she walks and stands up the whole day for a long time, her back starts hurting a bit. Has been about a month since surgery. Her bed is also really uncomfortable
hope you all have a happy sunday! My mom has been having a bit of back pain after her lobectomy. Is it normal? Not bad back pain, but after she walks and stands up the whole day for a long time, her back starts hurting a bit. Has been about a month since surgery. Her bed is also really uncomfortable
janeths466
in
Lung Cancer Support
5 years ago
My cancer is back.
As I previously reported in earlier posts I was an am a pneumonectomy survivor, having required surgery due to lung cancer (left lung) During the latter part of May 2019, following abdominal area discomfort I was sent for tests and a long short have now been diagnosed with secondary lung cancer affecting
As I previously reported in earlier posts I was an am a pneumonectomy survivor, having required surgery due to lung cancer (left lung) During the latter part of May 2019, following abdominal area discomfort I was sent for tests and a long short have now been diagnosed with secondary lung cancer affecting
Colin57
in
The Roy Castle Lung Cancer Foundation
5 years ago
Thank you s dry skin around my boat so. Smile on.
Hi. Big thanks to all for. Your veried advice. Just got back from very long day trying for 6 th go at my lung Transplant. So. A step nearer and 7 th go. Bring it on. Been waiting 9 months. At. Harefield.
Hi. Big thanks to all for. Your veried advice. Just got back from very long day trying for 6 th go at my lung Transplant. So. A step nearer and 7 th go. Bring it on. Been waiting 9 months. At. Harefield.
Tricity125
in
Lung Conditions Community Forum
5 years ago
Didn't go to plan
Had a consultant appt Thursday very mixed feelings about it. Firstly she said my HP was under control- no fibrosis showing on CT scan and granulomas are small and non worrisome. But then listened to my lungs and heard the crackles. And I feel no real improvement has occurred to my lung's day-to-day performance
Had a consultant appt Thursday very mixed feelings about it. Firstly she said my HP was under control- no fibrosis showing on CT scan and granulomas are small and non worrisome. But then listened to my lungs and heard the crackles. And I feel no real improvement has occurred to my lung's day-to-day performance
goat-lady
in
Lung Conditions Community Forum
5 years ago
My search for the perfect anti lymphoma diet
About one year ago I discovered this wonderful site. I had been diagnosed with Mantle cell lymphoma in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great. I suggested that anyone who had lymphoma and an autoimmune
About one year ago I discovered this wonderful site. I had been diagnosed with Mantle cell lymphoma in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great. I suggested that anyone who had lymphoma and an autoimmune
Maltipoo
in
Non Hodgkin's Lymphoma Friends
5 years ago
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