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PALB2 genetic defect-Lynparza
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
Azores1
in
Advanced Prostate Cancer
8 months ago
jaundice
Just a quick question. Is Jaundice always present in worsening of Liver/cholestatic problems?
Just a quick question. Is Jaundice always present in worsening of Liver/cholestatic problems?
MrMidnight2021
in
British Liver Trust
8 months ago
Palliative care, does it still exist?
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
wheezyof
in
Lung Conditions Community Forum
8 months ago
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Severe reaction to Targinact - please help
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Claire_lc
in
Restless Legs Syndrome
5 months ago
Amlodipine
Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down (see previous posts) to the adrenals not wanting to play ball after their nice long holiday, due to Pred, but it suddenly dawned on me that this
Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down (see previous posts) to the adrenals not wanting to play ball after their nice long holiday, due to Pred, but it suddenly dawned on me that this
Mrsd12f
in
PMRGCAuk
8 months ago
Simvastatin v Atorvastatin
Just had a conversation with my Surgery employed Pharmacist. she asked me if I would object to switching from Simvastatin to Atorvastatin as the Simvastatin was rather an old drug. I was put on it around 2007. I told her to go ahead ... no problems. The following quote is what I found during an ultra
Just had a conversation with my Surgery employed Pharmacist. she asked me if I would object to switching from Simvastatin to Atorvastatin as the Simvastatin was rather an old drug. I was put on it around 2007. I told her to go ahead ... no problems. The following quote is what I found during an ultra
BenHall1
in
Atrial Fibrillation Support
8 months ago
cochlear implants
Hello , I have been away from the tInnitus group but thought I would just put a message out there . I have had really bad tinnitus for 7 years now as a result of a grommet being put in my ear. I have had 8 operations on my ear …a grommet put in and out twice , a stapadectomy ( bone removed) and I am
Hello , I have been away from the tInnitus group but thought I would just put a message out there . I have had really bad tinnitus for 7 years now as a result of a grommet being put in my ear. I have had 8 operations on my ear …a grommet put in and out twice , a stapadectomy ( bone removed) and I am
1Dar
in
Tinnitus UK
8 months ago
High ferritin and high TSH
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
Dylan555
in
Thyroid UK
8 months ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
8 months ago
APS or sticky blood syndrome
having suffered from PA for 20-30 years was sort of resigned to my fate of suffering from painful arms /hands and general lack of energy , anyway I then develop a Deep Vein Thrombosis in my calf muscle which I am advised could be caused by APS - also an auto immune response - was give Apixaban for
having suffered from PA for 20-30 years was sort of resigned to my fate of suffering from painful arms /hands and general lack of energy , anyway I then develop a Deep Vein Thrombosis in my calf muscle which I am advised could be caused by APS - also an auto immune response - was give Apixaban for
pj1954
in
Pernicious Anaemia Society
8 months ago
Somatic tinnitus
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Sassyjax1
in
Tinnitus UK
8 months ago
Pseudomonas colonised.
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
falcon68
in
Lung Conditions Community Forum
5 months ago
Prednisolene
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Portopetro
in
PMRGCAuk
8 months ago
after gallbladder op in septemmber
hi after i had my gallbladder op in september i felt fine a few weeks after i felt like i was rushing to the toilet more id feel like my bladder was full and id rush urgently than i would do a fair drop of urine more than normal and it happens more so i took my urine in incase i had a urine infection
hi after i had my gallbladder op in september i felt fine a few weeks after i felt like i was rushing to the toilet more id feel like my bladder was full and id rush urgently than i would do a fair drop of urine more than normal and it happens more so i took my urine in incase i had a urine infection
Mrshappyme
in
Pelvic Pain Support Network
8 months ago
Ketamine - a profound experience
Three weeks ago I went for a Ketamine therapy visit. My goal was to reduce my anxiety and get help with my existential fears. Had tried Effexor, but didn't like the way it made me feel and was concerned other anti-anxiety meds would do same. Ketamine is a short acting anesthetic, but at a lower dose
Three weeks ago I went for a Ketamine therapy visit. My goal was to reduce my anxiety and get help with my existential fears. Had tried Effexor, but didn't like the way it made me feel and was concerned other anti-anxiety meds would do same. Ketamine is a short acting anesthetic, but at a lower dose
rsgdmd
in
Advanced Prostate Cancer
8 months ago
GENERALLY! Is there a correct sleeping position, right recovery position, left recovery position, back, high back support, v pillow, etc?
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
Adlon57
in
Healthy Evidence
8 months ago
4 year old (5 in May) soiling at school
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Senmumma
in
ERIC
5 months ago
antispasmodic medication for irritable bowel syndrome
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
halperinchen
in
Restless Legs Syndrome
5 months ago
V + O and elevate blood pressure, A1C and tricglyerides
My blood pressure and triglycerides were all in outstanding form a year ago. I started V + O 8 months ago and my most recent labs showed A1C up from 4.1 to 5.1 Blood pressures from 100-110/60-70 to 140-160/80-100 Triglycerides from less than 100 up to 500. My weight is the same, my diet has
My blood pressure and triglycerides were all in outstanding form a year ago. I started V + O 8 months ago and my most recent labs showed A1C up from 4.1 to 5.1 Blood pressures from 100-110/60-70 to 140-160/80-100 Triglycerides from less than 100 up to 500. My weight is the same, my diet has
skipro
in
CLL Support
8 months ago
Switching from Gabapentin to Horizant?
I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing..my plan is to switch to Horizant/Gabapentin enacarbil. Does anyone know how much Gabapentin I need to be taking, in order to switch to 600mg of Horizant? I'm looking for a website that will give me this specific info
I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing..my plan is to switch to Horizant/Gabapentin enacarbil. Does anyone know how much Gabapentin I need to be taking, in order to switch to 600mg of Horizant? I'm looking for a website that will give me this specific info
pianoplayerPLMD
in
Restless Legs Syndrome
8 months ago
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