Shingles Vaccine : Hi just a quick question regarding... - NRAS

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Shingles Vaccine

Otto11 profile image
69 Replies

Hi just a quick question regarding the Shingles Vaccine. I spoke to a GP on the phone today & asked about having the Shingles Vaccine. She told me that she dosnt think im eligible. I told her I think I am. She said you don’t qualify just because your are on Methotrexate I told her I'm not on Methotrexate im on Biologics & have been for 20 years. I believe that makes me eligible. Im 68 years old.

Has anyone on Biologics my age had the vaccine?

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Otto11 profile image
Otto11
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69 Replies
Titch55 profile image
Titch55

I am 62 on Biologics and I have had the shingles vaccine. See pages 6 & 7 on this link assets.publishing.service.g...

VeronicaF profile image
VeronicaF in reply toTitch55

I am 59 and I had the shingles vaccine a few years ago because I got put on Biologics but it didn't agree ,with me, I had an allergic reaction to it, so I was taken off it

Otto11 profile image
Otto11 in reply toVeronicaF

Thanks.

Otto11 profile image
Otto11 in reply toTitch55

Thanks for that info. I’ve been on Biologics for 20 years so should have had it a long time ago I think.

bpeal1 profile image
bpeal1

According to the Green book (see the link in Titch55’s post everyone over the age of 65 is now eligible. Maybe (politely) point this out to your GP.

Bookworm55 profile image
Bookworm55 in reply tobpeal1

As I understand it, the complication with this is that you can now have the shingles vaccine when you have your 65th birthday but if you’re already past that birthday you have to wait. until you’re 70!

It sort of makes sense - and anyway will only apply for the next couple of years by which time everyone over the age of 65 should have been offered it.

Those on dmards cannot have the standard shingles vaccine as it’s live so have to ask for the non-live version.

Of course this all seems to apply to the UK general public and those with RA may get it sooner. I haven’t- and I’m 68 on biologics.

GinnyE profile image
GinnyE in reply toBookworm55

Yes, if you read the advice it says the roll out, for all the population, starts with those people 65 AND 70, not 65 to 70. Its VERY badly written in my view.

And then there's the additional advice regarding immunosuppressed people.

Paula-C profile image
Paula-C in reply toGinnyE

Bit ridiculous really. If you turned 65 after the 1st of September this year you could have it, but if you was already 65 you've got to wait until your 70. Really can't understand the logic in that at all. If you're severely immunosuppressed you can have it if you 50 or over, that's two doses of the Shingrix.

Lolabridge profile image
Lolabridge in reply toBookworm55

I think you are eligible because you are 50 or older AND ON BIOLOGICS which are immune suppressing drugs. See my reply to Otto!

Otto11 profile image
Otto11 in reply tobpeal1

Yes I’ve looked at it but GP says Biologics don’t qualify 🤷🏻‍♀️

Jacey15 profile image
Jacey15 in reply toOtto11

Your GP is wrong. I'm 53 and got it because it's in the green book recommendations. It's the last category.

Otto11 profile image
Otto11 in reply toJacey15

I know. My GP is useless unfortunately & we have to fight for everything. I’m sure they get paid by the government for doing them so I don’t understand their issue with it.

Jacey15 profile image
Jacey15 in reply toOtto11

I convinced my GPs nurses when I explained that my biologic was an anti tnf. They had no idea.

Otto11 profile image
Otto11 in reply toJacey15

You are probably right. Looks like my GP dosnt know either.

Bon1 profile image
Bon1

there seems to be some confusion amongst GPs about this but you are definitely eligible! I had to explain to several different receptionists (I’m 53) but got there in the end.

Bon

Otto11 profile image
Otto11 in reply toBon1

Thanks glad you got sorted.

Otto11 profile image
Otto11 in reply toBon1

Yes thanks I'm sure i will get there in the end too after speaking to everyone here I'm definitely eligible.

Sebastian247 profile image
Sebastian247

I'm on methotrexate aged 60 and had both shingles and pneumonia vaccines after several text reminders from the NHS. I really don't understand how there can be any confusion amongst GPs. This is basic stuff.

I don't recommend having both simultaneously in each arm as I did. My arms hurt for days after which I've not experienced before. And I felt unwell the day after, but soon recovered.

welsh12 profile image
welsh12 in reply toSebastian247

Lot of confusion was recommended pneumonia Pharmacy said no. Not recommended Shingles one

Otto11 profile image
Otto11 in reply toSebastian247

Thanks. I had the Pneumonia Vaccine a few years ago & that was a battle as the nurse said she was keeping them for over 65’s. I said it’s my 65th birthday in 2 weeks so she eventually let me have it. Not sure why I’m having this battle yet again 🤷🏻‍♀️

Otto11 profile image
Otto11 in reply toSebastian247

Thanks I did have the Pneumonia one at 65 I asked about the shingles one then but told it was over 70.

Sebastian247 profile image
Sebastian247 in reply toOtto11

The confusion and inconsistent approach is ridiculous. Fingers crossed its sorted for you.

MadisonCounty profile image
MadisonCounty

I am 58 and on methotrexate and hydroxy, I have already had the first injection of the vaccine and get the second one on 3rd January. I was told that in September they changed the criteria and many more people are now eligible. I needed a letter from the rheumatology team sent to my GP.

Otto11 profile image
Otto11 in reply toMadisonCounty

Thanks. I spoke to my Rheumatologist a few weeks ago who told me to get it so maybe I can get a letter.

Jackie1947 profile image
Jackie1947

I had to have mine earlier because I was due to go on biologics. However there is a non live one as well . My advice is to contact your rheumatology dept

Otto11 profile image
Otto11 in reply toJackie1947

Thanks Yes my Rheumatology team told me to get it. I can always go back to them if GP continues to refuse.

Jackie1947 profile image
Jackie1947 in reply toOtto11

Well done!

Madmusiclover profile image
Madmusiclover

Having mine in Jan. I’m 64. Your doc is wrong.

Otto11 profile image
Otto11 in reply toMadmusiclover

I know. Thanks.

Prunes profile image
Prunes

I'm 61, only on HCQ and having my second jab today.

nhs.uk/conditions/vaccinati...

Regardless, you are 68 so you are eligible, see above link.

PS seems that it's only those turning 65 or turning 70 so there's a gap in between which seems odd.

Otto11 profile image
Otto11 in reply toPrunes

Yes I can see that but I’ve been on Biologics for 20 years so should have had it long ago but never had an invite. Oh well 🤷🏻‍♀️

Craftywonky profile image
Craftywonky

I'm 66 and on methotrexate and was told I'm eligible. Had the non-live injection and will repeat after 8 weeks. Was told people with weakened immune systems should always have the non-live and so should my hubby cos he lives with me but he must wait until he's 70.

Otto11 profile image
Otto11 in reply toCraftywonky

Thanks.

Hightower62 profile image
Hightower62

Don’t get me started on this one!

As others have pointed out I’m sure you will be eligible 😊. In my case as I am on 20mg MTX and no other qualifying medication I have been advised by my GP and Rheumatology that I am not eligible.

This is apparently because I need to be taking OVER 20mg (See attachment from Green Book). talk about splittIng hairs! I realise there has to be a cut-off but the most annoying thing is that these rules are not being applied consistently as I know of others in different areas who are being offered the vaccine who are just on 20mg MTX.

So I will have to wait for another three years or pay privately at £440 which I am seriously considering. Good luck😊

Green Book
GinnyE profile image
GinnyE in reply toHightower62

Same here. The nurse and I poured over the guidance and because I'm ONLY on 20 mg methotrexate I have to wait until 70 (I'm 69). She had reams of paperwork, and she had to make these decisions. I felt sorry for her in the end.

Prunes profile image
Prunes in reply toGinnyE

But you are over 65 so you are eligible regardless of what treatment you are or are not having.

Seems that it currently is only those turning 65 or turning 70 who are eligible. Currently a gap in-between.

Hightower62 profile image
Hightower62 in reply toGinnyE

You should definitely push back as I believe the guidance has recently changed so that all over 65’s are now eligible.

Otto11 profile image
Otto11 in reply toHightower62

Bless you. I didn’t realise they were that much. Probably why our GP’s havnt sent for me.

Craftywonky profile image
Craftywonky in reply toHightower62

I'm only on 10mg per week and was told I could have it.

Otto11 profile image
Otto11 in reply toHightower62

thanks. Yes that's an issue for you isn't it. The Pneumonia one didnt stop me from being hospitalised with Pneumonia unfortunately. Its a lot to pay though. 🤞 you dont need it.

Hightower62 profile image
Hightower62 in reply toOtto11

Thank you 😊

MadBunny profile image
MadBunny

I'm on Mtx (10mg) and Cimzia and I got a text from NHS saying I was eligible . Without the biologic I understand I wouldn't have been, as the mtx dosage is too low. Yet when I went to the GP surgery to have it, the nurse said 'oh you're on methotrexate, so that's why you're having it .'

Otto11 profile image
Otto11 in reply toMadBunny

That sounds like our surgery 🤷🏻‍♀️

MadBunny profile image
MadBunny in reply toOtto11

She saw the word methotrexate and that was it. Unless of course it came from NHS and was a generic email.

AgedCrone profile image
AgedCrone

Why not send this to your GP?

From 1 September 2023, you're eligible for the shingles vaccine when you turn 65.

You'll be offered 2 doses of the vaccine. These are given between 6 and 12 months apart.

Your GP should contact you to make an appointment to have your shingles vaccine. Contact your GP surgery if you think you're eligible for the shingles vaccine and you've not been contacted about it.

You'll remain eligible until your 80th birthday.

Otto11 profile image
Otto11 in reply toAgedCrone

Thanks. I think I’ve slipped through the net so will now need to wait till I’m 70. I’ve spoken to a GP so unless she gets in touch I guess it a no 🤷🏻‍♀️

AgedCrone profile image
AgedCrone in reply toOtto11

This is from the NHS WEBSITE;

AS EVERYONE SAYS….YOU ARE ELIGIBLE….DON’T BE DETERRED

Half GP practices are not up to speed on vaccinations….I received letters every year when only the Live vaccine was available telling me I’d got to have the vaccination. I wrote back every year…saying NO I couldn’t have the vaccination because of the drugs I was taking. This happened every year for about five years ….then when Shingrix apappeared I was too old….but I took great pleasure in telling the practice nurse I’d already had shingles…..Thank you very much, and it wasn’t much of a problem at all!

“The shingles vaccine is recommended for some older adults and people with a severely weakened immune system. “From 1 September 2023, you're eligible for the shingles vaccine when you turn 65. You'll be offered 2 doses of the vaccine. These are given between 6 and 12 months apart.”

nhs.uk › vaccinations

Shingles vaccine - NHS

Otto11 profile image
Otto11 in reply toAgedCrone

Thank you. Im sorry you had such problems getting yours sorted. I’m sure I am eligible but a bit concerned about the wording of the new rules. I’m having horrendous problems with our GP Practice not seeing patients & basically refusing almost everything due to cost. Far more interested in their budget than their patients well being unfortunately. I’ve already got a fight on my hands regarding T3 which the hospital prescribed but GP not currently agreeing to prescribe due to cost so don’t want to rock the boat too much.

AgedCrone profile image
AgedCrone in reply toOtto11

I know what you mean…..my GP surgery is doing exactly the same.Luckily I have been with my rheumy for many years…& he just orescribes….what he had already prescribed on a Shared care agreement …on a hospital scrip. But how long that will lasting don’t know.

But keep,pushing for that shingles vaccination.

Sheila_G profile image
Sheila_G

There is a strange rule about the year you were born. You had to be 65 by such a date or wait until you are 70. It makes no sense to me or anyone else I have spoken too but I can't remember exactly what it is.

MadBunny profile image
MadBunny in reply toSheila_G

Yes that's happened to my husband . He was 65 in April but was told it was only if you were 65 after 1st September that you are eligible. Makes no sense at all.

Prunes profile image
Prunes in reply toMadBunny

I've just come back from my surgery and yes that does seem to be the case. Seems very odd.

MadBunny profile image
MadBunny in reply toPrunes

Thanks. His gp surgery hasn't contacted him so I guess he won't be eligible Ridiculous 🙄

Otto11 profile image
Otto11 in reply toSheila_G

Yes I know. It’s the new rule that’s brought it to my attention but it seems I should have had it years ago 🤷🏻‍♀️

oldtimer2 profile image
oldtimer2

Official advice:

Who should have the shingles vaccine

The shingles vaccine is recommended for some older adults and people with a severely weakened immune system.

People who turn 65 on or after 1 September 2023

From 1 September 2023, you're eligible for the shingles vaccine when you turn 65.

You'll be offered 2 doses of the vaccine. These are given between 6 and 12 months apart.

Your GP should contact you to make an appointment to have your shingles vaccine. Contact your GP surgery if you think you're eligible for the shingles vaccine and you've not been contacted about it.

You'll remain eligible until your 80th birthday.

Information:

If you turned 65 before 1 September 2023, you'll be eligible for the shingles vaccine when you turn 70.

People aged 70 to 79

Everyone aged 70 to 79 is eligible for the shingles vaccine.

Depending on the type of vaccine you have, you'll have either 1 dose or 2 doses (given between 6 and 12 months apart).

Contact your GP surgery if you missed your vaccine. You're eligible up until your 80th birthday.

People aged 50 and over with a severely weakened immune system

Otto11 profile image
Otto11 in reply tooldtimer2

Thanks. Yes it seems I should have had it a long time ago I think.

Hightower62 profile image
Hightower62 in reply tooldtimer2

This is a bit confusing, it should read ‘People aged 50 or over with a severely weakened immune system depending on medication’ which is quite different.

Otto11 profile image
Otto11 in reply toHightower62

I agree.

medway-lady profile image
medway-lady

Yes me

Spanelmad profile image
Spanelmad

I'm 53 on Mtx and hydroxy and have had the shingles jab

Otto11 profile image
Otto11 in reply toSpanelmad

Thanks.

Lolabridge profile image
Lolabridge

Yes you qualify for the two-shot SHINGRIX vaccination (non-live) because you are immune suppressed as you are on a biologic drug for your condition and you are 50 years of age or more. I suggest you contact your GP again and draw attention to the Green Book Chapter 28a page 6 where this is clearly stated.

Do check that your GP has the fact that you take an immune suppressing biologic drug recorded on your patient notes. A surprising number of GPs did not in the past and that came to light at the start of the Covid pandemic. I had to go to a lot of trouble to make sure that it was recorded in my notes so that the GP then knew I am clinically extremely vulnerable and qualify for all the Covid jabs, booster and antiviral medications!

Otto11 profile image
Otto11 in reply toLolabridge

Yes you’re right. I didn’t get anti virals when I had Covid as the GP’s procrastinated until it was day 5 & too late. I had a GP put it on my repeat prescription a while ago but obviously they don’t know what it is 🤷🏻‍♀️

helenlw7 profile image
helenlw7

I’m 67 and asked the nurse who was doing a blood test if I was eligible. She looked at my notes and said I should have been on their priority list because I’m on methotrexate. She did it for me there and then.

Otto11 profile image
Otto11 in reply tohelenlw7

Gosh that’s good service.

Scottishlad profile image
Scottishlad

The age based system has been designed to spread the load on the vaccine production and vaccination centres and GPs. It would simply not be possible to vaccinate everyone over 65 in one year.

I'm in Scotland and got my letter with my appointment at the local vaccination centre. I'm 67 and on Cimzia so would not normally be eligible for another 3 years otherwise.

I'm not sure about the policy in the rest of the UK, but everyone here is being offered 2 doses of the Shingrix vaccine which is a non live vaccine and suitable people on immunosuppressive treatments.

Otto11 profile image
Otto11 in reply toScottishlad

Thanks. I understand that & that's why it came to my attention. I should have had it years ago as been on Biologics for 20 years. I will be annoyed if they say I have to wait because of their oversight.

Scottishlad profile image
Scottishlad

To be fair it's only fairly recently that Shingrix has become more widely available. Possibly one of the benefits of COVID vaccine programme is improved production of recombinant vaccines.

The previous vaccine was a live vaccine and not suitable for those with compromised immune systems.

At least now those over 50 on certain medications which affect immunity can easily get the vaccination.

Otto11 profile image
Otto11 in reply toScottishlad

Fair point I guess. Thanks.

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