Experiences with

Nephrotic syndrome

Due to nephrotic syndrome caused by CLL, I had to take prednisone (corticosteroids) for three months, specifically 80mg. Has anyone been on cortisone for that long? Did it have many effects? Was weaning off very complicated? Thank you very much

In 1950, Ada and Harry DeBold learned that their infant son had kidney damage from nephrotic syndrome. Today, treatments like dialysis or kidney transplants would give him a chance at life. Back then, these treatments weren’t available. The DeBolds didn’t give up.

Hello, I'm here to share something with the community that may be important for those who have had nephrotic syndrome related to an infiltration of CLL in the kidneys. Normally, when there is a lot of swelling, it's common to be prescribed furosemide.

I will do the treatment not because of my lab results but because CLL filled my kidneys with white cells and led my to nephrotic syndrome. My hematologist is confident that with the treatment they will start to work again because those with cells are gonna disappear from the kidneys.

Just found this article on the internet and thought it would interest you: "We report three patients with restless legs syndrome complicated with severe nephrotic syndrome.

My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP).

I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last for hours along with spasms in the esophagus but now controllable by medication.

Due to CCL, I have proteinuria and nephrotic syndrome, as I have already mentioned here on this wonderful forum. I'm extremely swollen all over my body and nothing I do can reduce this. Feet and legs are almost double.

I asked my doctor he said its nephrotic syndrome which is now in remission. But internet i still saying its ckd 2. I am also worried about my health i am confused will this condition get worse or not? M much worried 😟

Hello, I had my beta HCG blood tests results back today and it was really low at 20 😔 I’ve another blood test on Monday (24th) but feel so deflated that this could be a chemical pregnancy. Anyone had similar results but a positive outcome?

hi, after 4 failed FETs including one pgta euploid 5AA embryo I’ve been diagnosed with recurrent implantation failure. The plan for the next FET is to include innohep, low dose aspirin and low dose steroid. Has anyone tried this? And what were the results? I’m age 40 and have 2 euploid embryos left.

Hi, my name is Deb and I’m hoping to find some answers about proper medication for Burning Mouth Syndrome which would help to relieve the pain and discomfort. I am using a natural toothpaste, as suggested by my dental expert and I’ve dried Dexamethasone rinse which hasn’t really helped as well as a salve

I was interested to read PMRpro's comment within a recent post concerning how Panadol interacts with Pred during metabolism. I am trying to find that comment and would ask PMRpro for any further information and reference to more fully understand the process please. My background is PMR 10 yrs/GCA 6 yrs

hi everyone, woykd you please be able to share your betahcg levels on your blood test day and share whether you transferred 1 or 2 embryos and whether the pregnancy was successful / viable ? Ths question comes often so I thought it would be nice to gather all the data in one place. :-) thanks everyone

has anyone with findings on their biopsy with Nodular regenerative hyperplasia? I hope I spelt it right…. If anyone can tell me what happens after it is found ( tests. Monitoring)I’d be grateful. Thank you!

I've avoided taking alendronate due to being high risk of stomach and throat cancer. My doctor wants me to try risedronate. Has anyone any experience of taking this?

Hi all. I want to record my many test results in a tracker to show current status and trends over time - I'm hoping this will help the right Doctor find the root cause of my issues. Does anybody have a good blank tracker that's already made that they'd be willing to share please? I'm good with excel

Hi everyone The question of oe or de is still tbc but id love your thoughts on pgta If we do go straight to DE our Dr in Spain said they don’t pgta test as the donor is younger than me (I’m 45) but the donor age is 35 and below. I won’t get told until day of transfer what their age is. This has left

basic info: 69 yr old female, Parkinson’s diagnosis Jan 2010. The first 7 yrs I lived close to OHSU in Portland OR and received excellent care. Then moved to a remote area 900 miles away with limited choice for PD care. A neurologist here but no movement specialist. The local hospital performs

happy to report that after all the stress & worry over hubby over the last few months re his spinal stenosis, and then all the hassle with the travel insurers last week, we’ve arrived at our gorgeous Singapore hotel en route for Melbourne and he’s doing really well! Well, he was, until he broke