Experiences with

Nephrotic syndrome

Due to nephrotic syndrome caused by CLL, I had to take prednisone (corticosteroids) for three months, specifically 80mg. Has anyone been on cortisone for that long? Did it have many effects? Was weaning off very complicated? Thank you very much

Hello, I'm here to share something with the community that may be important for those who have had nephrotic syndrome related to an infiltration of CLL in the kidneys. Normally, when there is a lot of swelling, it's common to be prescribed furosemide.

I will do the treatment not because of my lab results but because CLL filled my kidneys with white cells and led my to nephrotic syndrome. My hematologist is confident that with the treatment they will start to work again because those with cells are gonna disappear from the kidneys.

Just found this article on the internet and thought it would interest you: "We report three patients with restless legs syndrome complicated with severe nephrotic syndrome.

I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last for hours along with spasms in the esophagus but now controllable by medication.

My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP).

I asked my doctor he said its nephrotic syndrome which is now in remission. But internet i still saying its ckd 2. I am also worried about my health i am confused will this condition get worse or not? M much worried 😟

Due to CCL, I have proteinuria and nephrotic syndrome, as I have already mentioned here on this wonderful forum. I'm extremely swollen all over my body and nothing I do can reduce this. Feet and legs are almost double.

I wanted to ask if anyone had to contemplate FET cycle that falls over Christmas? I had failed FET in January it took 12 months to reach this point because I decided to go attend RIF clinic but all the waiting time then treatment to hopefully deal with implant failure has meant my next cycle can start

It was nephrotic syndrome and something else for the kidneys. I made peace with okay this is forever we'll make her comfortable and treat it Etc. Then she had stomach pains rushed to the hospital. A major spleen removal surgery she almost died needing tons of blood transfusions.

Part of AI's response to "acetyl-l-leucine anxiety" Elevated lactate levels in the brain can occur with several neurological disorders, including anxiety, major depressive disorder, and Parkinson's disease. High levels of lactate can lower the brain's pH, which can affect neuronal activity and the

Bit of a random question. For the past few days I’ve had painful gums in one area, to the point where I went to the dentist today to get it looked at. She thinks it could be gum related and possibly due to additional hormones I’m taking. I was wondering whether anyone else has experienced this? I’ve

since having a total hysterectomy in 2019 for very early stage cancer which cured it I have developed nagging pain near the perineum which at times feels as if I’ve been kicked in that area. I also developed urge incontinence and changes to bowel function. Recently I saw a physiotherapist who specialised

I have had PBC since 2000 and coped well so it didn`t stop me doing anything I wanted to do. 10 years ago I was diagnosed with Sjogrens because of symptons I had at that time. 9 years passed without a worry but last year I started with Sjogren problems. It is now difficult to work out whether the issues

Hi I hope someone can help. I have been struggling a while, I had a scan which revealed thyroiditis and a small grade 2 cyst. Drs won't give me any support as bloods are normal. I went back again, after prodding and poking my neck which was uncomfortable suddenly I am on the pathway for throat cancer

Hi All, I just found out last week my first FET failed. I couldn't get my lining up above 6.3mm and the clinic were happy to go ahead as I had a lovely triple line and even during my egg collection my lining only made it to 6.8mm. I was taking pomegranate juice and l-arginine throughout to hopefully

Hi i would like to know if anyone alsof experiencing extreme lockjaw, tetanus with fnd? I have this for several years and i was diagnosed with fnd last year. Symptoms spams, tics, walking difficulties. But i try to find out if the lockjaw was an early sign.

I want everyone to have the choice of trying anything they like - so long as they are fully informed and all information is readily accessible. Trouble is, a lot of information is hard to access for many reasons including language, paywalls, time, and having the required time and skills to get to the

As you all know I have been on low dose buprenorphine tablets for one year & I simply cannot believe I have been free of the dreaded RLS for 12 whole months after 40 years of suffering.However, as we have all discussed I am invariably wide awake during 🤨the night & by the afternoons I simply have to

Question for those using Kevzara: We’re going to be going on a couple of trips and I’m wondering how to deal with my used syringes. What they send me are not the pen type of injection, but a syringe that has ‘finger grips’ that are 1.5 inch wide. They don’t fit in all sharps disposal containers because