CLL + nephrotic syndrome: furosemide problem

[BMFCDRW]

Hello, I'm here to share something with the community that may be important for those who have had nephrotic syndrome related to an infiltration of CLL in the kidneys. Normally, when there is a lot of swelling, it's common to be prescribed furosemide. In my case, I'm being treated with obinutuzumab, which has improved a little, but then I was prescribed 60 mg/day of furosemide (Lasix) to help with swelling. The problem is that it's done exactly the opposite and has overloaded my kidneys. I was already retaining some albumin and I lost it again. After some research, I realised that in this specific case, furosemide can damage the glomeruli and have an adverse effect. I don't know if anyone else has had this experience but I wanted to share it with you in the hope that it might help someone.

[studebaker]

sorry for your troubles. Why was the dose of Furosemide so high to begin with and I truly hope it is reversible situation. 🤞🏻

Good luck 😉

Dana

[BMFCDRW in reply to studebaker]

Thank you! They are trying to see if it makes something with the Nephrotic syndrome but I think it’s the opposite.

[Ptown]

Hello and thank you for sharing this information with our community. Pooling our experiences only serves to strengthen our collective knowledge. Take good care and let us know how you are getting along, if you have time. Carolyn

[Poodle2]

Sorry to hear this. I hope things will start taking a turn to better. Keep us posted, you deserve some relief.

[BMFCDRW]

Thank you so much! It really hasn't been easy! But I think at the moment most of the problems I have are more from the kidneys than the CLL. I've had my third treatment with obinituzumab and it's been a lot easier. Now I really just need to see what's going to happen with the kidneys. Especially the fact that my stomach and feet are very swollen. Thank you all