I was diagnosed with SLE Nephritis IV in 2008 (a year after my Daughter was born). I was also diagnosed with anti phospholipid syndrome after having two DVT's. Luckily I was in remission for six years and was not taking any medication. Unfortunately my Lupus flared last November and I had to have another kidney biopsy and was prescribed Prednisalone and MMF etc which. Does anyone else find Prednisolone side effects ('moon face') horrendous?
I find Lupus a very isolating and lonely disease as although people try to understand, only other Lupus sufferers truly understand.
I'd be interested to hear from anybody with SLE and how it effects them and how they deal with it etc.