Recently flare up and new diagnosis

[Cubiche]

I was just released from my last stay in the hospital for 10 days. The doctors found out I have nephritis caused by the lupus which I was diagnosed in 1993 when I was 14 years old. Now the steroids that were given to me in higher dosis have given me diabetes. So after 20some years I have to relearn to know my body signals and how to take care as to not cause more damage or at least make the damage go slower than normal. Thats the goal now but Im hungry from taking so much steroids and have to watch what I eat to not make my glucose higher and need to maintain the glucose in check as to not affect my kidneys. It is to say the least sooo frustrating. Im in quarantine in my home to only go out to the doctors because my inmune system is almost 100% depleted to get me better because I have so much inflamation that I need it to be in pain killers muscle relaxers and the docs gave something to sleep because I cannot sleep and that just make things worse.

Im taking it one day at the time but it is so hard and depressing.

[honeybug]

Soooo sorry Cubiche

😊🌸🌿🦋

All you wanted to do was get well or at least better and the care you’ve gotten has made you sicker. I’m sooo very very sorry this has happened to you. I just prayed for you. Please take care and I hope you find relief soon.

😊🌸🌿🦋 🤗💗😘😇

[Cubiche in reply to honeybug]

Thank you thank you 💖🌷🌷

[honeybug in reply to Cubiche]

You’re welcome dear

🌸🌸🌸🌹🌹🌹🌸🌸🌸

😊🌸🌿🦋🤗💗😘

[Serser]

Hi Cubiche,

Sorry you feel so awful and everything is such a juggling act!

One day at a time is the right attitude. Also a belief that things will be as okay as they can be if you take it slowly and give yourself time to heal both mentally and physically.

Don’t be scared to lean on friends and family for both practical and emotional support, and of course you always have us on here!

Try to think as positively as you can and banish and slippery slopes into negative thinking! I try to find things that I enjoy that engage me when I feel like this. I know this is hard when you feel in so much pain. Even just listening to my favourite, uplifting music helps me.

When I’m not in too much pain I draw-that also helps distract me, reduce stress and then helps me to feel slightly more positive.

I hope you start to feel better soon.

Xxxxx

[yeemun90]

I am so sorry to hear that Cubiche. I have been there and was also hospitalised for 10 days n had to go in n out for dialysis for another month...it was really a tough time. I totally understand you and please stay positive. Overcome this flare n it ll all b good again 😊🌻 it takes time n don’t b too harsh on urself...

[Cubiche in reply to yeemun90]

Thank you thank you 🌷💖