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Neomycin / Prednisolone
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Biological Therapy - too soon?
Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb after just over 2 years of struggling with symptoms. Initially I was put on prednisolone and hydroxychloroquine until my bloods came back. My bloods
Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb after just over 2 years of struggling with symptoms. Initially I was put on prednisolone and hydroxychloroquine until my bloods came back. My bloods
EeBeee
in
LUPUS UK
3 months ago
Help sought, AIT and carbimazole
After 3 years on Amiodarone I was diagnosed with thyrotoxicosis. I was put on a combination of prednislone and carbimazole. Nothing much happened for 5 months with levels of T3 T4 very high and totally suppressed TSH. From that point onwards though my T3 T4 levels started to drop quickly until they became
After 3 years on Amiodarone I was diagnosed with thyrotoxicosis. I was put on a combination of prednislone and carbimazole. Nothing much happened for 5 months with levels of T3 T4 very high and totally suppressed TSH. From that point onwards though my T3 T4 levels started to drop quickly until they became
Fallman
in
Thyroid UK
3 months ago
Overactive thyroid diagnosis following blood test for vit B12 and folate deficiency prompted by tingling symptoms.
Whatever next?! I'm currently at 5 mg prednisolone slow tapering, and this latest diagnosis seems to be another reason for the periods of intense fatigue! and I was blaming the steroids! Is it both? I will talk to a clinician on 6th August (if I'm not lucky enough to get an earlier appointment).
Whatever next?! I'm currently at 5 mg prednisolone slow tapering, and this latest diagnosis seems to be another reason for the periods of intense fatigue! and I was blaming the steroids! Is it both? I will talk to a clinician on 6th August (if I'm not lucky enough to get an earlier appointment).
waltztherapy
in
PMRGCAuk
3 months ago
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PMR / Pred & fatigue
I am on 10mg of Prednisolone a day for PMR. Was diagnosed at the back end of 2023 Had all sorts of issues which I posted before. However I also now seem to have a recuring issue. My PMR symptoms are in check. I have no pain & 10mg is working, however I struggle to rouse in the morning & it takes me
I am on 10mg of Prednisolone a day for PMR. Was diagnosed at the back end of 2023 Had all sorts of issues which I posted before. However I also now seem to have a recuring issue. My PMR symptoms are in check. I have no pain & 10mg is working, however I struggle to rouse in the morning & it takes me
Naim1
in
PMRGCAuk
3 months ago
UPDATE: Cod Liver Oil Supplements with Prednisolone
Thank you everyone for your replies. I have lots of information to read and questions for my GP tomorrow. I'm feeling far more in control with the knowledge I now have from you on this group. Really appreciate all the time you've taken to respond to my question. Thank you all once again. I'll sign
Thank you everyone for your replies. I have lots of information to read and questions for my GP tomorrow. I'm feeling far more in control with the knowledge I now have from you on this group. Really appreciate all the time you've taken to respond to my question. Thank you all once again. I'll sign
Sew_And_Sew
in
PMRGCAuk
3 months ago
New journey?
I was diagnosed with PMR in April 2020 and have reduced from initial dose of 40mgs of Prednisolone to 5mgs, where I have become a bit stuck. Today I have been diagnosed with GCAand put on 40mgs and return visit to GP next week, with blood tests in between. Just wondering what my journey will be like
I was diagnosed with PMR in April 2020 and have reduced from initial dose of 40mgs of Prednisolone to 5mgs, where I have become a bit stuck. Today I have been diagnosed with GCAand put on 40mgs and return visit to GP next week, with blood tests in between. Just wondering what my journey will be like
SanG55
in
PMRGCAuk
3 months ago
prednisolone and fibro
Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatica recently and it’s really helping with my Fibro . Now I know it’s not really something the docs want to keep you on due to side effects, but has anyone else found the benefits of this - really interested to hear what you
Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatica recently and it’s really helping with my Fibro . Now I know it’s not really something the docs want to keep you on due to side effects, but has anyone else found the benefits of this - really interested to hear what you
Molliesmamma
in
Fibromyalgia Action UK
3 months ago
Cod Liver Oil Supplements with Prednisolone
Been on prednisolone (UK) since 01/11/2022. I'm currently taking 3mgs/4mgs on alternate days. 3mgs was too much for me. Anyway if on pred, can we take cod liver oil supplements please? The tablets are ginormous so my husband has bought the liquid. Don't want to start unless it's OK to do so. Any opinions
Been on prednisolone (UK) since 01/11/2022. I'm currently taking 3mgs/4mgs on alternate days. 3mgs was too much for me. Anyway if on pred, can we take cod liver oil supplements please? The tablets are ginormous so my husband has bought the liquid. Don't want to start unless it's OK to do so. Any opinions
Sew_And_Sew
in
PMRGCAuk
3 months ago
Rituximab treatment maintenance
Just had second infusion for first round of Rituximab treatment and all is well. Thanks to everyone for getting me through it. And now the follow up. I have a telephone consultation in 3 months - is this time gap standard practice? I'm currently taking 10mg Prednisolone and want to reduce it down. Does
Just had second infusion for first round of Rituximab treatment and all is well. Thanks to everyone for getting me through it. And now the follow up. I have a telephone consultation in 3 months - is this time gap standard practice? I'm currently taking 10mg Prednisolone and want to reduce it down. Does
SALI
in
NRAS
3 months ago
instant relief
I started on prednisolone more than three years ago, and remember that it acted at once.
I started on prednisolone more than three years ago, and remember that it acted at once.
ChoralG
in
PMRGCAuk
3 months ago
Prescription for Pred has been cancelled
I am currently on Week 5 of a 7-week taper from 1mg to 0.75mg. This morning I logged on to my surgery’s website and realised that my repeat prescription for Pred had been cancelled, presumably by the GP in the practice who advised “no further suppression required” after I received the result of my basal
I am currently on Week 5 of a 7-week taper from 1mg to 0.75mg. This morning I logged on to my surgery’s website and realised that my repeat prescription for Pred had been cancelled, presumably by the GP in the practice who advised “no further suppression required” after I received the result of my basal
Billswife
in
PMRGCAuk
3 months ago
Burning sensation. Tapering prednisolone to 3mg
Anyone had this feeling? Coping well whilst tapering and on 3mg for at least 2 months from 4mg. Not reducing whilst I feel unwell. Symptoms intense burning within my body, yet not sweating, and normal temperature, then go cold in limbs. Never felt so ill and A & E 9 days ago checked all vitals as
Anyone had this feeling? Coping well whilst tapering and on 3mg for at least 2 months from 4mg. Not reducing whilst I feel unwell. Symptoms intense burning within my body, yet not sweating, and normal temperature, then go cold in limbs. Never felt so ill and A & E 9 days ago checked all vitals as
moconnolly
in
PMRGCAuk
3 months ago
At last DEXA scan results and comments
Hi 👋 special people Been on prednisolone for 7 years, starting at 15mgs now down to 3.5. Have just had first ever DEXA scan and after 10 weeks now have results. T scores Spine -1.9 Hip -0.8 Neck -1.1 FRAX 10 year risk for major osteoporotic fracture 13%, hip fracture 2.7%. This has been recorded
Hi 👋 special people Been on prednisolone for 7 years, starting at 15mgs now down to 3.5. Have just had first ever DEXA scan and after 10 weeks now have results. T scores Spine -1.9 Hip -0.8 Neck -1.1 FRAX 10 year risk for major osteoporotic fracture 13%, hip fracture 2.7%. This has been recorded
Poshdog
in
PMRGCAuk
3 months ago
degenerate spine pain and steroids
a simple question that’s in my mind, but hubby with chronic pain (either arthritis in the hip and/or pain from his degenerative spine) I just wonder why Prednisolone isn’t offered as a pain relief med?
a simple question that’s in my mind, but hubby with chronic pain (either arthritis in the hip and/or pain from his degenerative spine) I just wonder why Prednisolone isn’t offered as a pain relief med?
Doraflora
in
PMRGCAuk
3 months ago
Medication
how long does it take for Prednisolone to start taking effect?
how long does it take for Prednisolone to start taking effect?
Caterham63
in
PMRGCAuk
3 months ago
PMR headaches - is it the Prednisolone?
Hi there I was diagnosed with PMR 10 weeks ago with classic symptoms: excruciating pain in arms, shoulders, legs with increasing immobility during the day and totally immobile in bed at night. My CRP was 28 and ESR 36. Was put on 15mg Pred for 4 weeks - got rid of the pain but I starting getting mild
Hi there I was diagnosed with PMR 10 weeks ago with classic symptoms: excruciating pain in arms, shoulders, legs with increasing immobility during the day and totally immobile in bed at night. My CRP was 28 and ESR 36. Was put on 15mg Pred for 4 weeks - got rid of the pain but I starting getting mild
Suzanne28
in
PMRGCAuk
3 months ago
Waiting diagnosis/meds
Hi all, happy Saturday. Since March I have been experiencing dreadful aches and pains in my arms wrists shoulders and hands to the point I thought I'd broken my wrists. A trip to the doctor resulted in a referral to rheumatology and series of blood tests where it seemed my ESR and CRP were raised,
Hi all, happy Saturday. Since March I have been experiencing dreadful aches and pains in my arms wrists shoulders and hands to the point I thought I'd broken my wrists. A trip to the doctor resulted in a referral to rheumatology and series of blood tests where it seemed my ESR and CRP were raised,
Fenti
in
NRAS
3 months ago
collagen supplement
Having PMR since 2021 my Hair has now given up and become a wavy mess. I am on 6.5 of Prednisolone and have had a few flares. I wanted to know has anyone tried collagen supplement it is supposed to be good for hair and nails. Will this have any effect on steroids or my PMR. I don’t want to make this
Having PMR since 2021 my Hair has now given up and become a wavy mess. I am on 6.5 of Prednisolone and have had a few flares. I wanted to know has anyone tried collagen supplement it is supposed to be good for hair and nails. Will this have any effect on steroids or my PMR. I don’t want to make this
jsk10
in
PMRGCAuk
3 months ago
Tingling hands, arm and leg occurrence at 5 mg slow tapering, in my 3rd year since PMR diagnosis.
Has anyone had this experience please?I'm familiar with tingling in my left hand since carpal tunnel surgery some years ago, so when this started in my right hand, I gave it little attention. However the tingling started in my left arm and left leg only yesterday and there is a slight feeling of numbness
Has anyone had this experience please?I'm familiar with tingling in my left hand since carpal tunnel surgery some years ago, so when this started in my right hand, I gave it little attention. However the tingling started in my left arm and left leg only yesterday and there is a slight feeling of numbness
waltztherapy
in
PMRGCAuk
3 months ago
Recurring symptoms, bit panicky
I've already posted once when I was first diagnosed with GCA and got loads of good advice, info, reassurance. So grateful. The problem now is that after 12 days on Prednisolone 50mg the headaches started to come back and jaw pain. I wrote in my previous post that an on call doctor came out on the Saturday
I've already posted once when I was first diagnosed with GCA and got loads of good advice, info, reassurance. So grateful. The problem now is that after 12 days on Prednisolone 50mg the headaches started to come back and jaw pain. I wrote in my previous post that an on call doctor came out on the Saturday
Blondgrassblowing
in
PMRGCAuk
3 months ago
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