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niggles or warnings?
A bit of context before my question. I was diagnosed with PMR in mid August by my GO, who was straight onto it from my telephone description, had me straight in for a blood test, and responded to my face to face description with “polymyalgia” before checking the blood results which confirmed it for
A bit of context before my question. I was diagnosed with PMR in mid August by my GO, who was straight onto it from my telephone description, had me straight in for a blood test, and responded to my face to face description with “polymyalgia” before checking the blood results which confirmed it for
Sibelius5
in
PMRGCAuk
10 months ago
Tapering..What am I battling?
Hello, I have been told my PMR is gone. I am on 7 mg Prednisone. and trying to taper to 0. I am taking one 5mg. and two 1mg to make 7mg. Yesterday, I took off an extremely tiny corner of a 1 mg away with my fingernail. So, I took 6 7/8mg of Prednisone yesterday instead of 7mg. Today I have
Hello, I have been told my PMR is gone. I am on 7 mg Prednisone. and trying to taper to 0. I am taking one 5mg. and two 1mg to make 7mg. Yesterday, I took off an extremely tiny corner of a 1 mg away with my fingernail. So, I took 6 7/8mg of Prednisone yesterday instead of 7mg. Today I have
lisbonportugal
in
PMRGCAuk
8 months ago
PMR or PsA or both
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
Seal49
in
Beyond Psoriasis
8 months ago
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Trying to figure this out.
I was placed on a medication ( diltiazem) for atrial fibrillation) . It turns out it inhibits steroid clearance from the body. I am also on Breo ( fluticasone (steroid ) for asthma. I was off Breo for awhile and restarted( we thought it may have triggered AF) but it didn’t. Since I am in the Breo I feel
I was placed on a medication ( diltiazem) for atrial fibrillation) . It turns out it inhibits steroid clearance from the body. I am also on Breo ( fluticasone (steroid ) for asthma. I was off Breo for awhile and restarted( we thought it may have triggered AF) but it didn’t. Since I am in the Breo I feel
Karenjaninaz
in
PMRGCAuk
8 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
8 months ago
do I need more prednisolone?
Hello fellow sufferers! I was diagnosed PMR in February after 5 months and started 15mg Pred. Now down to 6mg but struggling. Broke my arm in June, put house on market (sale still going through), stepdaughters mental health reached very low point and just had surgery in unbroken arm. Went down from 7
Hello fellow sufferers! I was diagnosed PMR in February after 5 months and started 15mg Pred. Now down to 6mg but struggling. Broke my arm in June, put house on market (sale still going through), stepdaughters mental health reached very low point and just had surgery in unbroken arm. Went down from 7
Bobbiegirl
in
PMRGCAuk
10 months ago
Adrenals
Still having problems with digestion Mood is very low and tired all the time On 3.5 Prednisolone GP not interested at all If this is Adrenals how long does it take to get back on track
Still having problems with digestion Mood is very low and tired all the time On 3.5 Prednisolone GP not interested at all If this is Adrenals how long does it take to get back on track
Harry8388
in
PMRGCAuk
10 months ago
Should I sell and retire with PSA at 0.1 following 9 months undetectable?
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
LakeT
in
Advanced Prostate Cancer
8 months ago
odd question
5 years with PMR and GCA Mostly a pretty easy ride .Second flare right now .. waiting to talk to Rheumy about next steps.But…. My question is this…for the past month I have experienced burning and itching but mostly burning in my shoulders …no rash…very very irritating . Taking usual Benadryl and applying
5 years with PMR and GCA Mostly a pretty easy ride .Second flare right now .. waiting to talk to Rheumy about next steps.But…. My question is this…for the past month I have experienced burning and itching but mostly burning in my shoulders …no rash…very very irritating . Taking usual Benadryl and applying
Darcy2000
in
PMRGCAuk
8 months ago
PMR and Breast Pain
I was diagnosed with GCA in 2016 and after many failed attempts managed to gradually reduce the steroids. Recently, I was diagnosed with PMR and am currently taking 10mg prednisolone. I have an ache from under my arms down into the side of both breasts. The left aside is worse than the right. I have
I was diagnosed with GCA in 2016 and after many failed attempts managed to gradually reduce the steroids. Recently, I was diagnosed with PMR and am currently taking 10mg prednisolone. I have an ache from under my arms down into the side of both breasts. The left aside is worse than the right. I have
040547RJH
in
PMRGCAuk
10 months ago
Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
8 months ago
Dentistry.
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
Busyrobyn
in
PMRGCAuk
8 months ago
GCA symptoms
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
pomeranion
in
PMRGCAuk
10 months ago
Hives and reducing pred
I’ve had terrible itchy hives on my arms, back, chest and neck for weeks now which is just not getting any better, it started from heat rash whilst on holiday in the summer. I’ve had a small amount of relief from antihistamines (Fexofenadine 180mg) and 2 weeks of Eumovate steroid cream and I’m slathering
I’ve had terrible itchy hives on my arms, back, chest and neck for weeks now which is just not getting any better, it started from heat rash whilst on holiday in the summer. I’ve had a small amount of relief from antihistamines (Fexofenadine 180mg) and 2 weeks of Eumovate steroid cream and I’m slathering
JoLou12
in
PMRGCAuk
10 months ago
Zytiga , prednesone , Options ?
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
reconjj
in
Advanced Prostate Cancer
8 months ago
PMR and Parkinson's Disease
Background: I have PMR diagnosed 2016 and GCA/extensive LVV diagnosed 2019. I have been on 5mg Prednisolone daily for the past year. I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial lung disease (now resolved).
Background: I have PMR diagnosed 2016 and GCA/extensive LVV diagnosed 2019. I have been on 5mg Prednisolone daily for the past year. I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial lung disease (now resolved).
JanetRosslyn
in
PMRGCAuk
10 months ago
Food poisoning
Some advice please,I have food poisoning,sickness and diarrhoea,although the sickness seems to have cleared up! There is no way I can eat anything,I have some Omeprazole 20mg capsules,should I take one of these about half an hour before my prednisolone( 8mg,non e/c),also should I take any extra prednisolone
Some advice please,I have food poisoning,sickness and diarrhoea,although the sickness seems to have cleared up! There is no way I can eat anything,I have some Omeprazole 20mg capsules,should I take one of these about half an hour before my prednisolone( 8mg,non e/c),also should I take any extra prednisolone
Seamab
in
PMRGCAuk
10 months ago
Undiagnosed inflammatory disease
After two weeks of severe and increasing pain in my legs and three GP appointments my blood was checked and I was admitted to hospital with a CRP of 330. I was initially put on Prednisolone at 60mg and gradually my CRP score improved. I then went through months where the pain seemed to move through my
After two weeks of severe and increasing pain in my legs and three GP appointments my blood was checked and I was admitted to hospital with a CRP of 330. I was initially put on Prednisolone at 60mg and gradually my CRP score improved. I then went through months where the pain seemed to move through my
Hightower62
in
NRAS
10 months ago
Sudden anxiety attacks and mood swing on first Prednisone taper
Hi there I’m 44 and was put on Prednisone, 20mg, 3.5 weeks ago for suspected PMR. My mum also had PMR at a young age of 42. I’m still waiting for my rheumatology appointment, but meanwhile the GP prescribed steroids that are working well, where all other pain medication was not. So the joint pain
Hi there I’m 44 and was put on Prednisone, 20mg, 3.5 weeks ago for suspected PMR. My mum also had PMR at a young age of 42. I’m still waiting for my rheumatology appointment, but meanwhile the GP prescribed steroids that are working well, where all other pain medication was not. So the joint pain
Jaybird22
in
PMRGCAuk
8 months ago
Vasculitis/Tocilizumab
I have posted before regarding the fact that after a year on steroids and having many side effects I was told to reduce them by 1mg a month. My rheumatologist did not think I had PMR (diagnosed originally by GP). After 6 months of increasing pain and stiffness and down to 2mg I was able to have a
I have posted before regarding the fact that after a year on steroids and having many side effects I was told to reduce them by 1mg a month. My rheumatologist did not think I had PMR (diagnosed originally by GP). After 6 months of increasing pain and stiffness and down to 2mg I was able to have a
Daniella7
in
PMRGCAuk
10 months ago
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