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What would you do?
Brothers: Two pelvic lymph nodes, tumor burden in one, was 2.7cm, in the other it was 2.5cm. Now, one year later, with only 150mg daily of casodex monotherapy, both nodes have been reduced to 1.6cm. PSA one year ago was 105; now it is 6.7 I am thinking of adding Advodart and monitoring the two nodes
Brothers: Two pelvic lymph nodes, tumor burden in one, was 2.7cm, in the other it was 2.5cm. Now, one year later, with only 150mg daily of casodex monotherapy, both nodes have been reduced to 1.6cm. PSA one year ago was 105; now it is 6.7 I am thinking of adding Advodart and monitoring the two nodes
BigRich
in
Advanced Prostate Cancer
8 years ago
Starting the journey with family
Hi all, My father was diagnosed about a month ago with advanced prostate cancer that has metastasized. English is not his first language and he is still absorbing all the information and its implications, so I am doing my best to research and communicate information. We are being treated at NYU Langone
Hi all, My father was diagnosed about a month ago with advanced prostate cancer that has metastasized. English is not his first language and he is still absorbing all the information and its implications, so I am doing my best to research and communicate information. We are being treated at NYU Langone
anya6
in
Advanced Prostate Cancer
8 years ago
Support Group in Los Angeles anyone?
I am wondering if anyone knows of a support group in Los Angeles area. I am stage 4 with bone and visceral Mets and failing chemo. PSA 150 and all prior stuff like Lupron Casodex zytiga xtandi etc. Insurance won't pay for xofigo. Need some advice. Can't get any at my hospital as I only see interns
I am wondering if anyone knows of a support group in Los Angeles area. I am stage 4 with bone and visceral Mets and failing chemo. PSA 150 and all prior stuff like Lupron Casodex zytiga xtandi etc. Insurance won't pay for xofigo. Need some advice. Can't get any at my hospital as I only see interns
sinjonn
in
Advanced Prostate Cancer
8 years ago
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Finally might get better!
I'm on 30mg prednisolone was supposed to be reducing from 40mg not got below 25mg ever yet), symbicort 400/12, montelukast, Spiriva respimat, (started at my last admission)
Nasonex
nasal spray, Omeprazole, calcium tablets, Cetirizine, I am so fed up of being ill and in and out of hospital where they
I'm on 30mg prednisolone was supposed to be reducing from 40mg not got below 25mg ever yet), symbicort 400/12, montelukast, Spiriva respimat, (started at my last admission)
Nasonex
nasal spray, Omeprazole, calcium tablets, Cetirizine, I am so fed up of being ill and in and out of hospital where they
Jenhcat
in
Asthma Community Forum
8 years ago
Salvage Radiation Update Success?
On 10/27/13 I had a prostatectomy at age 49 and PSA of 12. My diagnosis was Gleason (4+5), epe, Nx0, Dx0, extensive SVI, and negative margins. PSA after prostatectomy was 0.0 for 6 months then a slow rise for 30 months to a level 0.182. On 6/30/16 I started radiation with 37 treatments to prostate
On 10/27/13 I had a prostatectomy at age 49 and PSA of 12. My diagnosis was Gleason (4+5), epe, Nx0, Dx0, extensive SVI, and negative margins. PSA after prostatectomy was 0.0 for 6 months then a slow rise for 30 months to a level 0.182. On 6/30/16 I started radiation with 37 treatments to prostate
bitittle
in
Advanced Prostate Cancer
8 years ago
GODFIDENCE!
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Kimlovesshoes
in
My MSAA Community
8 years ago
MS for 19 years but holding my own
I was diagnosed in 1997, injected Avonex for 10 years, then switched to Tysabri. Just had my 113th infusion at Johns Hopkins!
I was diagnosed in 1997, injected Avonex for 10 years, then switched to Tysabri. Just had my 113th infusion at Johns Hopkins!
sophiekerr1977
in
My MSAA Community
8 years ago
Still going after ALL these years.
Hi everyone! I am Mary Ellen Anderson, and I have MS. I was diagnosed Sept 10, 1998. I had mono that spring, and I think THAT is why I got MS. I wasn't put on meds until 2000, cause I didn't need them, or so my dr thought. I first went on Avonex, and was on that for 8 1/2 years. I had SIDE EFFECTS
Hi everyone! I am Mary Ellen Anderson, and I have MS. I was diagnosed Sept 10, 1998. I had mono that spring, and I think THAT is why I got MS. I wasn't put on meds until 2000, cause I didn't need them, or so my dr thought. I first went on Avonex, and was on that for 8 1/2 years. I had SIDE EFFECTS
mepilot61
in
My MSAA Community
8 years ago
New here and looking for advice!
Hello Everyone, My name is Joshua Mallicoat and was diagnosed with Multiple Sclerosis in September of this year and I am new to this. I am on Avonex that I take once every Friday. I finally decided to come on here and talk to you guys and be in the community to help out. I tried to make friends here
Hello Everyone, My name is Joshua Mallicoat and was diagnosed with Multiple Sclerosis in September of this year and I am new to this. I am on Avonex that I take once every Friday. I finally decided to come on here and talk to you guys and be in the community to help out. I tried to make friends here
jinxxie201025
in
Healthy Eating
8 years ago
New to the group with questions and to make friends!
Hello Everyone, My name is Joshua Mallicoat and was diagnosed with Multiple Sclerosis in September of this year and I am new to this. I am on Avonex that I take once every Friday. I finally decided to come on here and talk to you guys and be in the community to help out. I tried to make friends here
Hello Everyone, My name is Joshua Mallicoat and was diagnosed with Multiple Sclerosis in September of this year and I am new to this. I am on Avonex that I take once every Friday. I finally decided to come on here and talk to you guys and be in the community to help out. I tried to make friends here
jinxxie201025
in
My MSAA Community
8 years ago
Cycling T and ADT?
I sure like the concept of Cycling T and ADT to prevent CRPC. Dr. Myers does not use this protocol and when I asked an oncologist at The Mayo Clinic about it, he drew a diagram of PCa, and said it would not work because PCa is made up of many different genetic variants including populations of cancer
I sure like the concept of Cycling T and ADT to prevent CRPC. Dr. Myers does not use this protocol and when I asked an oncologist at The Mayo Clinic about it, he drew a diagram of PCa, and said it would not work because PCa is made up of many different genetic variants including populations of cancer
gusgold
in
Advanced Prostate Cancer
8 years ago
Foods/Supplements-Vitamins: Ashwagandha (Withania somnifera)
Ashwagandha is an adaptogen (one of those mysterious herbs that are claimed to restore homeostasis). Better known for its effects on thyroid balance & cortisol control, there have also been some prostate studies. Ashwagandha has a long history of use in Ayurvedic medicine. "The leaves contain the steroidal
Ashwagandha is an adaptogen (one of those mysterious herbs that are claimed to restore homeostasis). Better known for its effects on thyroid balance & cortisol control, there have also been some prostate studies. Ashwagandha has a long history of use in Ayurvedic medicine. "The leaves contain the steroidal
pjoshea13
in
Advanced Prostate Cancer
8 years ago
Lupron Here I Come
Summary Age 63 Diagnosed 2001. PSA 10 Gleason 7 Ext Beam + Brachytherapy.Eventually PSA went undetectable. Relapse in late 2011 began Casodex monotherapy and later Avodart added. In Oct 2016 PSA 2.95 and began Lupron 22.5mg 3 mos. cycle.Also beginning exercise program through The Male Plan recommended
Summary Age 63 Diagnosed 2001. PSA 10 Gleason 7 Ext Beam + Brachytherapy.Eventually PSA went undetectable. Relapse in late 2011 began Casodex monotherapy and later Avodart added. In Oct 2016 PSA 2.95 and began Lupron 22.5mg 3 mos. cycle.Also beginning exercise program through The Male Plan recommended
jsatt11
in
Advanced Prostate Cancer
8 years ago
Long term use of Avonex, after age 60, new to site
I will be 64 in November and this year I will have been on Avonex 7 years. My doctor wants me to continue on Avonex, I would like to stop taking this or any other DM drug because of side effects. I am certain these drugs are not tested on the older population, but worry about the "what if I did stop,
I will be 64 in November and this year I will have been on Avonex 7 years. My doctor wants me to continue on Avonex, I would like to stop taking this or any other DM drug because of side effects. I am certain these drugs are not tested on the older population, but worry about the "what if I did stop,
Hjr4
in
My MSAA Community
8 years ago
statins (lipitor) and metastatic prostate cancer
Hello all, My doctor recently recommended that I consider starting Lipitor. My current cancer meds are casodex and lupron. Has anyone have any positive, negative reactions with Lipitor. I'm in the metastatic phase of my battle, mets to bone, a few enlarged lymph nodes. I'm getting some information that
Hello all, My doctor recently recommended that I consider starting Lipitor. My current cancer meds are casodex and lupron. Has anyone have any positive, negative reactions with Lipitor. I'm in the metastatic phase of my battle, mets to bone, a few enlarged lymph nodes. I'm getting some information that
Hidden
in
Advanced Prostate Cancer
8 years ago
M.A.S. Multiple Autoimmune Syndrome
Diagnosed with MS in 2000, I injected betaseron then rebif then finally avonex for 9 years. My body began rejecting the interferons, injection sites were even leaking. I had no place left to poke. I then opted to stop treatment and go as healthy natural as I could. I found Charlotte's Web CBD oil
Diagnosed with MS in 2000, I injected betaseron then rebif then finally avonex for 9 years. My body began rejecting the interferons, injection sites were even leaking. I had no place left to poke. I then opted to stop treatment and go as healthy natural as I could. I found Charlotte's Web CBD oil
Sierranne
in
My MSAA Community
8 years ago
Hello, anyone else in a similar situation
Dec of 2013 had a kidney stone on each side. During the process small lowgrade cancerous tumors were found in my bladder. I had to go to a urologist every 3 months to have a cycstoscope run in me to check for tumors. After about 6 months I was given an Xray and they possibly saw a mass on my right kidney
Dec of 2013 had a kidney stone on each side. During the process small lowgrade cancerous tumors were found in my bladder. I had to go to a urologist every 3 months to have a cycstoscope run in me to check for tumors. After about 6 months I was given an Xray and they possibly saw a mass on my right kidney
Michael1961
in
My MSAA Community
8 years ago
casodex side effect
recently i posted that i had side effects from taking casodex in that it made me cry on an ongoing basis. i quit taking it some time ago but i asked if anyone else had this experience. being as i never heard from anyone i began to question if i was successful in posting the question, or no one else has
recently i posted that i had side effects from taking casodex in that it made me cry on an ongoing basis. i quit taking it some time ago but i asked if anyone else had this experience. being as i never heard from anyone i began to question if i was successful in posting the question, or no one else has
joeoconnell
in
Advanced Prostate Cancer
8 years ago
hormone treatment and lack of energy
Any advice regarding complete lack of energy would be most gratefully received , I have been on monthly injections of Degrelix for just over 2 years and in April I was put on a daily tablet of casodex and I have to say at times I am completely worn out and I am in and out of the toilet so much having
Any advice regarding complete lack of energy would be most gratefully received , I have been on monthly injections of Degrelix for just over 2 years and in April I was put on a daily tablet of casodex and I have to say at times I am completely worn out and I am in and out of the toilet so much having
durango
in
Advanced Prostate Cancer
8 years ago
Avonex vs Copaxone
Hi everyone! I was just diagnosed Aug. 2nd and will be starting treatment Septmeber 12th. I have narrowed it down to avonex and Copaxone, yet I'm still unsure which one to go with. Does anyone have any experience or could possibly help me weigh out the pros and cons. Feeling a little overwhelmed. Thank
Hi everyone! I was just diagnosed Aug. 2nd and will be starting treatment Septmeber 12th. I have narrowed it down to avonex and Copaxone, yet I'm still unsure which one to go with. Does anyone have any experience or could possibly help me weigh out the pros and cons. Feeling a little overwhelmed. Thank
Jmredd92
in
My MSAA Community
8 years ago
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