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Please help needed
Hi, following thyroidectomy in 2017 I was doing okay on thiroyd then true thyroid and then t3 only but iv come to a stump and rapidly running out of medicine with the last company just taking my money but not sending the t3 please if someone could please kindly direct message me information on where
Hi, following thyroidectomy in 2017 I was doing okay on thiroyd then true thyroid and then t3 only but iv come to a stump and rapidly running out of medicine with the last company just taking my money but not sending the t3 please if someone could please kindly direct message me information on where
Tbob
in
Thyroid UK
11 months ago
BCR May Not Be a Strong Surrogate End Point for Prostate Cancer Survival
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
pca2004
in
Fight Prostate Cancer
9 months ago
low back problems
I've been on Eligard and abiraterone+prednisone for slightly more than a year, out of a planned 2 years. I had 44 sessions of proton beam therapy ending 4/7/23. My PSA has been undetectable since early in my ADT regimen, and remained so as recently as 2 weeks ago. I began to have low back pain, sometimes
I've been on Eligard and abiraterone+prednisone for slightly more than a year, out of a planned 2 years. I had 44 sessions of proton beam therapy ending 4/7/23. My PSA has been undetectable since early in my ADT regimen, and remained so as recently as 2 weeks ago. I began to have low back pain, sometimes
Atdabeach
in
Advanced Prostate Cancer
11 months ago
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Red light therapy for PMR pain?
has anyone tried red light therapy for PMR pain? I have found some relief with it, although I think the pain comes back and in different places.
has anyone tried red light therapy for PMR pain? I have found some relief with it, although I think the pain comes back and in different places.
howtotaperdown
in
PMRGCAuk
1 year ago
ADT + darolutamide + docetaxel (ARASENS trial) has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Maxone73
in
Advanced Prostate Cancer
9 months ago
HRT patches
HI My doctor has asked me to consider HRT patches to help with my tiredness, aching joints , hot flushes and belly fat gain. I always thought that HRT can cause weight gain. Does any one have any experience of these patches they can share with me please. I'm so confused and i dont want to start something
HI My doctor has asked me to consider HRT patches to help with my tiredness, aching joints , hot flushes and belly fat gain. I always thought that HRT can cause weight gain. Does any one have any experience of these patches they can share with me please. I'm so confused and i dont want to start something
Gyp101
in
Women's Health
9 months ago
Arrythmias on Zytiga
i am finishing my19th month of degarelix and abiraterone. Over the past 3-4 months pvc/arrythmias have gotten more frequent progressing to daily. In fact at my last two injections the nurses have asked if I have a history of arrythmias given my HR was so irradict. So my question is do I request a dose
i am finishing my19th month of degarelix and abiraterone. Over the past 3-4 months pvc/arrythmias have gotten more frequent progressing to daily. In fact at my last two injections the nurses have asked if I have a history of arrythmias given my HR was so irradict. So my question is do I request a dose
Oceankayaker
in
Advanced Prostate Cancer
9 months ago
New to all this, please help with test results
People on the Hypothyroid UK forum have suggested that I join this forum because of some test results that I received yesterday. Long story short, I've finally been diagnosed with hypothyroid, but I'm still having awful problems with my memory, attention, concentration, finding words and ability to
People on the Hypothyroid UK forum have suggested that I join this forum because of some test results that I received yesterday. Long story short, I've finally been diagnosed with hypothyroid, but I'm still having awful problems with my memory, attention, concentration, finding words and ability to
TheSnufkin
in
Pernicious Anaemia Society
9 months ago
RT without HT
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
Nordman
in
Prostate Cancer Network
8 months ago
HRT and Alzheimer’s after 1 year
I found this article about HRT and Alzheimer’s and know a lot of us ladies are on them …. What is your thoughts on this article?
I found this article about HRT and Alzheimer’s and know a lot of us ladies are on them …. What is your thoughts on this article?
Batty1
in
Thyroid UK
9 months ago
from undetectable to 0.02
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
Peppertree602
in
Advanced Prostate Cancer
9 months ago
Aspirin trials
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
Runner1957
in
Prostate Cancer Network
9 months ago
Latest blood results - any ideas?
Hello Everyone, Here are my most recent BH results obtained as per the forum guidelines - the last test I did was about 3 months ago. Cortisol Following my very low Regenerus cortisol results, I've been on Adrenavive 2 for about 4 weeks now, no digestive or other problems. I've been working upwards
Hello Everyone, Here are my most recent BH results obtained as per the forum guidelines - the last test I did was about 3 months ago. Cortisol Following my very low Regenerus cortisol results, I've been on Adrenavive 2 for about 4 weeks now, no digestive or other problems. I've been working upwards
Sneedle
in
Thyroid UK
9 months ago
endo symptoms on hormonal therapy
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
PBGV24
in
Endometriosis UK
9 months ago
HRT and RLS
Hi, I just saw a reply on a post where Sue talked about HRT being a possible trigger. Are there any safe options? I am currently on Femeton and have just been put on a higher dose because of menopause symptoms. I’m wondering now if this is part of the problem. I would probably be suicidal if I
Hi, I just saw a reply on a post where Sue talked about HRT being a possible trigger. Are there any safe options? I am currently on Femeton and have just been put on a higher dose because of menopause symptoms. I’m wondering now if this is part of the problem. I would probably be suicidal if I
loops1207
in
Restless Legs Syndrome
10 months ago
Starting B12 injections
Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on HRT and I have horrible peripheral neuropathy in my feet and lower legs. I can’t walk well or for long at all. My gait feels really off. I’m stiff and have no muscular strength in my legs anymore so crouching down is impossible
Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on HRT and I have horrible peripheral neuropathy in my feet and lower legs. I can’t walk well or for long at all. My gait feels really off. I’m stiff and have no muscular strength in my legs anymore so crouching down is impossible
FancyPants54
in
Pernicious Anaemia Society
10 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
9 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
10 months ago
Poor converters
Can anyone give me some stats on the percentage of patients in the UK needing combined therapy T4/T3? That is, percentage of poor converters? Percentage of faulty genes Di01 and DI02? Am writing a follow-up article to the one published for Central Bylines https://centralbylines.co.uk/big-pharma-the-nhs-thyroid-disease-and-me
Can anyone give me some stats on the percentage of patients in the UK needing combined therapy T4/T3? That is, percentage of poor converters? Percentage of faulty genes Di01 and DI02? Am writing a follow-up article to the one published for Central Bylines https://centralbylines.co.uk/big-pharma-the-nhs-thyroid-disease-and-me
judycopage
in
Thyroid UK
1 year ago
HRT & RA experiences
hi, I’m wondering if there are others who have experience of RA improvement with HRT. My RA is relatively well managed.. one year in.. have a love / hate relationship with methotrexate (many other posts on this!), but am generally tolerating it better. I am having noticeable flares when I ovulate
hi, I’m wondering if there are others who have experience of RA improvement with HRT. My RA is relatively well managed.. one year in.. have a love / hate relationship with methotrexate (many other posts on this!), but am generally tolerating it better. I am having noticeable flares when I ovulate
Sapphire1701
in
NRAS
10 months ago
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