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Mycophenolate
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Low lymphocyte count and mycophenolate mofetil
Just wanted to see if anyone on
mycophenolate
has a low lymphocyte count. Mine has been getting lower and lower, now on 0.6. I am so worried that they will take me off the
mycophenolate
, it is working so well for me. Has anyone experienced this?
Just wanted to see if anyone on
mycophenolate
has a low lymphocyte count. Mine has been getting lower and lower, now on 0.6. I am so worried that they will take me off the
mycophenolate
, it is working so well for me. Has anyone experienced this?
joannebond360
in
LUPUS UK
10 years ago
Mycophenolate mofetil
Have taken so many antibiotics since starting
mycophenolate
. Should this settle down? Bloods have come back fine apart from lymphocytes borderline too low. Jo
Have taken so many antibiotics since starting
mycophenolate
. Should this settle down? Bloods have come back fine apart from lymphocytes borderline too low. Jo
joannebond360
in
LUPUS UK
10 years ago
Hair Loss - My daughter is on 1grm mycophenolate and 75mg Eltrombopag daily, been on this for about 18 months now.
She has recently noticed that her hair has started to fall out, it wasn't much at first but now when she washes her hair it is quite a noticeable amount that is coming out. Has anyone else been on this medication and noticed this as a side effect. I know she lost a lot of hair when when first got diagnosed
She has recently noticed that her hair has started to fall out, it wasn't much at first but now when she washes her hair it is quite a noticeable amount that is coming out. Has anyone else been on this medication and noticed this as a side effect. I know she lost a lot of hair when when first got diagnosed
Lindylou86
in
ITP Support Association
10 years ago
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Hi I am a first timer user of this site,I have RA with 28 yrs,sjogrens with 20yrs MCTD for 10 yrs.I am currently taking Mycophenolate with
no complaints My query is about tooth decay. I use high content fluoride toothpaste and biotene which helps but this yr lone I have had 19 fillings and am now thinking of getting all my teeth out and getting implant dentures. Has anybody had a similar experience? thanks
no complaints My query is about tooth decay. I use high content fluoride toothpaste and biotene which helps but this yr lone I have had 19 fillings and am now thinking of getting all my teeth out and getting implant dentures. Has anybody had a similar experience? thanks
aggieb
in
NRAS
10 years ago
I don't have a definitive diagnosis but have ongoing problems with headache, blurry vision, jaw/facial pain, myalgia, arthralgia etc.
I am currently taking 8mg of prednisolone and 750mg twice daily of
mycophenolate
motefil. 3 months ago I developed an intermitent red rash on my face, it flares up and down over the course of the day, is worse at work ( hot and stressful environment ) and isn't particularly painful or itchy.
I am currently taking 8mg of prednisolone and 750mg twice daily of
mycophenolate
motefil. 3 months ago I developed an intermitent red rash on my face, it flares up and down over the course of the day, is worse at work ( hot and stressful environment ) and isn't particularly painful or itchy.
Hidden
in
PMRGCAuk
10 years ago
What dose Mycophenolate is "normal"?
My dosage is gradually is going up and I am now on 1.5mg twice a day (3mg total). I was put on this dose today as my antibodies were raised. Is this an average dose? Just wondering what other folk took.
My dosage is gradually is going up and I am now on 1.5mg twice a day (3mg total). I was put on this dose today as my antibodies were raised. Is this an average dose? Just wondering what other folk took.
DaleDiva
in
LUPUS UK
10 years ago
Dall is on the loose again
I am already on
mycophenolate
to suppress my immune system and steroids so no changes in treatment needed as yet. Anyway with all that sorted I headed back to Malvern and obviously had to much time to dream up a challenge for the day as the weather was looking good and I had energy to spare.
I am already on
mycophenolate
to suppress my immune system and steroids so no changes in treatment needed as yet. Anyway with all that sorted I headed back to Malvern and obviously had to much time to dream up a challenge for the day as the weather was looking good and I had energy to spare.
dall05
in
Lung Conditions Community Forum
10 years ago
Dose anyone find it easy working I do a 16hours job a week but finding it hard at the minute I am on mycophenolate 500mg 2 twice a day
diane46
in
LUPUS UK
10 years ago
Does anyone have night sweats and aches and pains tapering steroids?
Been on
mycophenolate
mofetil 2mg a day for 3 months, felt the best I have felt in a long time. Since tapering down last Thursday I am waking up with night sweats and fluey feelings like I used to get with lupus, panicking it's a flare! Does anyone else experience this coming off steroids?
Been on
mycophenolate
mofetil 2mg a day for 3 months, felt the best I have felt in a long time. Since tapering down last Thursday I am waking up with night sweats and fluey feelings like I used to get with lupus, panicking it's a flare! Does anyone else experience this coming off steroids?
joannebond360
in
LUPUS UK
10 years ago
Saying ""hello
I am currently on hydrocortisone bd via a midline, terbutaline sub cut pump and
Mycophenolate
Mofetil.
I am currently on hydrocortisone bd via a midline, terbutaline sub cut pump and
Mycophenolate
Mofetil.
Hidden
in
Asthma Community Forum
10 years ago
2 weeks ago I stopped taking Methotrexate 25mg by s/c injection ( it was wearing off after 5 days ) and have switched to mycophenolate.
I am taking 500 mg of MMF twice daily and will increase it in 2 weeks time, I am also on pred 8mg. Have gradually become more symptomatic again, headaches, facial pain, blurry vision, achy muscles and fatigue etc. Has anyone else changed immunosuppressants and how did you manage your symptoms until
I am taking 500 mg of MMF twice daily and will increase it in 2 weeks time, I am also on pred 8mg. Have gradually become more symptomatic again, headaches, facial pain, blurry vision, achy muscles and fatigue etc. Has anyone else changed immunosuppressants and how did you manage your symptoms until
Hidden
in
Vasculitis UK
10 years ago
Finished 7 treatments of Cyclo' ....
.... going on
Mycophenolate
. What sort of side effects should l look out for.
.... going on
Mycophenolate
. What sort of side effects should l look out for.
Sima1952
in
Vasculitis UK
10 years ago
Starting cellcept (mycophenolate mofetil) , I would love to hear your experience with this.
Do you take it with or without food? Any side effects? If you experience nausea, how long does it normally last after the dose. Any organ involvement?
Do you take it with or without food? Any side effects? If you experience nausea, how long does it normally last after the dose. Any organ involvement?
Cherylv
in
LUPUS UK
10 years ago
Having a 'Why me?' day :-(
I have a lot to be thankful for and have had every test and treatment going to investigate and alleviate my symptoms including an Iloprost infusion, prescribed
Mycophenolate
, Prednisolone, Hydroxychloroquine, Fluoxetine, Lorsatan, Lanzaprozole, Vit D3, had CT scans, MRI of brain and cervical spine, bone
I have a lot to be thankful for and have had every test and treatment going to investigate and alleviate my symptoms including an Iloprost infusion, prescribed
Mycophenolate
, Prednisolone, Hydroxychloroquine, Fluoxetine, Lorsatan, Lanzaprozole, Vit D3, had CT scans, MRI of brain and cervical spine, bone
tcogb
in
LUPUS UK
10 years ago
I am a newby and need to lose 2 st. Am on mycophenolate, budesonide (steroid) and bp meds. Finding it difficult to lose weight :-(
I have autoimmune hepatitis which is a condition where my immune system attacks my liver. Do cycle and walk my dog but am continually tired.
I have autoimmune hepatitis which is a condition where my immune system attacks my liver. Do cycle and walk my dog but am continually tired.
dolliedaze
in
Weight Loss Support
10 years ago
Anyone had problems with mycophenolate?
I have read posts from people who have found this very useful and not had issues with it, but has anyone had problems because I feel I'm not tolerating it well, but then I think maybe that is the Lupus !?! I am having problems with feeling sick, diarrhoea, dizziness and headaches.
I have read posts from people who have found this very useful and not had issues with it, but has anyone had problems because I feel I'm not tolerating it well, but then I think maybe that is the Lupus !?! I am having problems with feeling sick, diarrhoea, dizziness and headaches.
alice_sportyauthor
in
LUPUS UK
10 years ago
Routine blood testing abroad (Italy) for Mycophenolate Mofetil drug?
I shall shortly be moving to Italy to work on a campsite for the summer, as I have SLE and have recently been prescribed Myfenax my rheumatologist has requested that I undertake regular blood testing while in Italy. Has anyone ever had to arrange blood testing abroad before? Where may I find information
I shall shortly be moving to Italy to work on a campsite for the summer, as I have SLE and have recently been prescribed Myfenax my rheumatologist has requested that I undertake regular blood testing while in Italy. Has anyone ever had to arrange blood testing abroad before? Where may I find information
zoerae25
in
LUPUS UK
10 years ago
Hi probably a really silly question but do other Itp sufferes think it will be ok to use Vicks Vaporub
She is 24 and her platelets are very stable at the moment as she is on a combination of eltrombopag and
mycophenolate
.
She is 24 and her platelets are very stable at the moment as she is on a combination of eltrombopag and
mycophenolate
.
Lindylou86
in
ITP Support Association
10 years ago
Mycophenalate and sore swollen lips!
I have been on
mycophenolate
for a few months, been working well but I keep getting really sore lips so using lip balm and Vaseline etc, woke up this morning and it's like they are burnt! So so sore.
I have been on
mycophenolate
for a few months, been working well but I keep getting really sore lips so using lip balm and Vaseline etc, woke up this morning and it's like they are burnt! So so sore.
joannebond360
in
LUPUS UK
10 years ago
Anyone on myfortic (mycophenolate sodium)?
I'm in my 3rd month on
mycophenolate
cellcept. I really really like cellcept!!!!!
I'm in my 3rd month on
mycophenolate
cellcept. I really really like cellcept!!!!!
Barnclown
in
LUPUS UK
10 years ago
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