Search
Search
About
Log in
Join
Experiences with
Mycophenolate
Posts
Communities
767 public posts
Filter results
Weakness
I am on week three of
mycophenolate
. I have been experiencing the feeling of my legs being weaker and my hands shaking. Anyone else experience this?
I am on week three of
mycophenolate
. I have been experiencing the feeling of my legs being weaker and my hands shaking. Anyone else experience this?
adrienneioannou
in
LUPUS UK
9 years ago
my dr says sjogrens can predispose me to infections: comments anyone?
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
Barnclown
in
The Australian Sjögren's Syndrome Association
9 years ago
Rheumatologist says sjogrens can predispose me to infections: comments anyone?
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
I'm responding well to a treatment plan of daily hydroxychloroquine 400mg +
Mycophenolate
mofetil 1000mg, with low dose 4 week pred tapers during neuro cerebral flares.
Barnclown
in
LUPUS UK
9 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Mychophenalate 509 mg Drug side effects
I have TAK and I have just been started on
Mycophenolate
mofetil 500mg tablet per day with a view to increasing every week until I hit the necessary dosage. I am having awful side effects nausea, bad stomach, severe headache, generalised aches and pains and diahorrea.
I have TAK and I have just been started on
Mycophenolate
mofetil 500mg tablet per day with a view to increasing every week until I hit the necessary dosage. I am having awful side effects nausea, bad stomach, severe headache, generalised aches and pains and diahorrea.
Coffeebixuk
in
Vasculitis UK
9 years ago
Appointment with Rheumatology cancelled again!
Now I'm currently reducing my Prednisolone with a view to stopping it in March and I wanted to talk about tapering off the
Mycophenolate
(MMF) as we are now at the two year period when it could be considered.
Now I'm currently reducing my Prednisolone with a view to stopping it in March and I wanted to talk about tapering off the
Mycophenolate
(MMF) as we are now at the two year period when it could be considered.
Albasain
in
Vasculitis UK
9 years ago
Effective emollient moisturisers: tips please?
Am on daily hydroxychloroquine +
mycophenolate
with other repeat prescription meds - mainly topical steroids & antibiotics I've had enough years learning to manage all this, and trying various over the counter moisturising products.
Am on daily hydroxychloroquine +
mycophenolate
with other repeat prescription meds - mainly topical steroids & antibiotics I've had enough years learning to manage all this, and trying various over the counter moisturising products.
Barnclown
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Diaphragm question
I am 47 year old, fairly fit female with longstanding mildish lupus for which I take low dose prednisolone, Hydroxychloroquine and
Mycophenolate
. I also have Eklira and Flutiform inhalers for narrowing of the small airways.
I am 47 year old, fairly fit female with longstanding mildish lupus for which I take low dose prednisolone, Hydroxychloroquine and
Mycophenolate
. I also have Eklira and Flutiform inhalers for narrowing of the small airways.
Fennella02
in
Lung Conditions Community Forum
9 years ago
Anyone here with experience of pilocarpine (salagen)?
none of my sicca type conditions are dramatically benefitting from my lupus meds (but my chronic joint pain & neuro cerebral symptoms are damped down well by daily hydroxychloroquine 400mg + amitriptyline 20mg +
mycophenolate
1000mg with 3 x 10 mg oral Prednisolone tapers per year as required).
none of my sicca type conditions are dramatically benefitting from my lupus meds (but my chronic joint pain & neuro cerebral symptoms are damped down well by daily hydroxychloroquine 400mg + amitriptyline 20mg +
mycophenolate
1000mg with 3 x 10 mg oral Prednisolone tapers per year as required).
Barnclown
in
The Australian Sjögren's Syndrome Association
9 years ago
Can Kidney Function fluctuate in the early stages of Lupus Nephritis treatment with Mycophenolate?
Is it normal for eGFR values to fluctuate whilst in the early stages of taking
Mycophenolate
sodium or MMF ? How long does it take for kidney function to stabilise if ever with
Mycophenolate
?
Is it normal for eGFR values to fluctuate whilst in the early stages of taking
Mycophenolate
sodium or MMF ? How long does it take for kidney function to stabilise if ever with
Mycophenolate
?
marni04
in
LUPUS UK
9 years ago
Leflunomide Not Working
Any information about
Mycophenolate
would be gratefully received and any other words of hope or comfort while I am feeling a bit hopeless about ever making progress with either the drugs or with the PMR reducing or dying away.
Any information about
Mycophenolate
would be gratefully received and any other words of hope or comfort while I am feeling a bit hopeless about ever making progress with either the drugs or with the PMR reducing or dying away.
suzy1959
in
PMRGCAuk
9 years ago
Mycophenolateand flu like symptoms
I was building up to a full dose of
mycophenolate
. As the dose was increasing I started getting pain like I have the flu. This is then making me not sleep. My nurse has had me stop my medication to see if pain stops. Any one else experienced this?
I was building up to a full dose of
mycophenolate
. As the dose was increasing I started getting pain like I have the flu. This is then making me not sleep. My nurse has had me stop my medication to see if pain stops. Any one else experienced this?
adrienneioannou
in
LUPUS UK
9 years ago
Thank you xx
I am now on
mycophenolate
prednisolone hydroxchloaquin and have to see a renal and lupus specialist after every two weeks A new problem is sleep. Last week in total i had around 20 hours of sleep and felt wide awake all week.
I am now on
mycophenolate
prednisolone hydroxchloaquin and have to see a renal and lupus specialist after every two weeks A new problem is sleep. Last week in total i had around 20 hours of sleep and felt wide awake all week.
pearl123
in
LUPUS UK
9 years ago
Mycophenolate and decreased appetite
I have started week three of
mycophenolate
. I have found I have had a decreased appetite since starting on it. Has anybody experienced this?
I have started week three of
mycophenolate
. I have found I have had a decreased appetite since starting on it. Has anybody experienced this?
adrienneioannou
in
LUPUS UK
9 years ago
Chesty cough/cold for 5 days. When to seek medical advice?
I have sle. ( On
mycophenolate
and hydroxychloroquine. Had steroid injection 2 weeks ago.) Started a cough and cold on boxing day. Cough really productive and feeling exhausted. No temperature though. I think its probably just a viral thing but, when to see a doctor??
I have sle. ( On
mycophenolate
and hydroxychloroquine. Had steroid injection 2 weeks ago.) Started a cough and cold on boxing day. Cough really productive and feeling exhausted. No temperature though. I think its probably just a viral thing but, when to see a doctor??
jo100
in
LUPUS UK
9 years ago
Salty tasting saliva
I have ITP and have been on
mycophenolate
for two and a half years and also take penicillin twice a day, a result of my splenectomy, but recently my saliva has started tasting very salty I have had this for over two months and is is very unpleasant. My diet has not changed, nor my medication.
I have ITP and have been on
mycophenolate
for two and a half years and also take penicillin twice a day, a result of my splenectomy, but recently my saliva has started tasting very salty I have had this for over two months and is is very unpleasant. My diet has not changed, nor my medication.
NickyD
in
ITP Support Association
9 years ago
Sleep apnoea/laryngospasm
I take
Mycophenolate
& low dose prednisolone for lupus and have weak resp muscles (?cause) so can find it hard to breathe well when lying down. My Consultant uses the terms Sleep apnoea and laryngospasm interchangeably but is not investigating/treating for either. I am 47, female & slim.
I take
Mycophenolate
& low dose prednisolone for lupus and have weak resp muscles (?cause) so can find it hard to breathe well when lying down. My Consultant uses the terms Sleep apnoea and laryngospasm interchangeably but is not investigating/treating for either. I am 47, female & slim.
Fennella02
in
Lung Conditions Community Forum
9 years ago
Ciclosporin and neuro-toxicity
I've recently changed drugs - from
mycophenolate
to Ciclosporin - because
mycophenolate
wasn't effective in controlling my lupus anymore (after only 18 months of taking it).
I've recently changed drugs - from
mycophenolate
to Ciclosporin - because
mycophenolate
wasn't effective in controlling my lupus anymore (after only 18 months of taking it).
Purpletop
in
LUPUS UK
9 years ago
Medication change
I've been on Azathioprine &
Mycophenolate
Mofetil both with no success. These have come up so I was wondering what they were like? Fighting on in hope something will work. :-)
I've been on Azathioprine &
Mycophenolate
Mofetil both with no success. These have come up so I was wondering what they were like? Fighting on in hope something will work. :-)
Snow-Drop
in
Behçet's UK
9 years ago
Mycophenolate and low blood pressure
Does anyone get they have low blood pressure as a side effect of
mycophenolate
? I have been getting unexplained dizziness for a long time which no one can explain and now it has been noted how low my blood pressure can drop which I have been told can be a side effect of the medication.
Does anyone get they have low blood pressure as a side effect of
mycophenolate
? I have been getting unexplained dizziness for a long time which no one can explain and now it has been noted how low my blood pressure can drop which I have been told can be a side effect of the medication.
Galaxy2
in
Vasculitis UK
9 years ago
New plan of action
Have decided I will start
mycophenolate
in December and get another steroid injection to get me through the holidays. Lets hope this works.
Have decided I will start
mycophenolate
in December and get another steroid injection to get me through the holidays. Lets hope this works.
adrienneioannou
in
LUPUS UK
9 years ago
1
...
30
31
32
...
39
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
LUPUS UK
288 results
Vasculitis UK
102 results
Scleroderma & Raynaud's UK (SRUK)
90 results
View top 10 communities
Sort by
Most Relevant
Newest