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Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
maley2711
in
Advanced Prostate Cancer
4 months ago
Update on Treatment
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
Sushupthi
in
Advanced Prostate Cancer
15 days ago
Saliva Cortisol results, the investigation continues...
Hi everyone š, Me again! My investigations continue and this is my most recent test to try to piece together what's going on. Any input most welcome please š Backstory since joining HU last November - Iron deficiency anaemia now corrected and ferritin getting close to optimal. All other vitamins
Hi everyone š, Me again! My investigations continue and this is my most recent test to try to piece together what's going on. Any input most welcome please š Backstory since joining HU last November - Iron deficiency anaemia now corrected and ferritin getting close to optimal. All other vitamins
Bertiepuss
in
Thyroid UK
4 months ago
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ADT questions
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
SherpaT
in
Prostate Cancer Network
18 days ago
Addition of an ARSI to standard ADT significantly increases the risk of fractures and falls in men with prostate cancer
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Graham49
in
Advanced Prostate Cancer
4 months ago
Starting clinical trial of AVR-766
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
rsgdmd
in
Advanced Prostate Cancer
4 months ago
Sporadically fall backwards with no warning
3 weeks into new dose of 100 levothyroxine (on waking) + 2 doses of 7.5 t3 (one on waking and one at 3pm - [built up gradually]). Back to suddenly, out of nowhere just falling backwards and fatigue beyond all comprehension. This falling symptom only started after my 15 days off levothyroxine, nearly
3 weeks into new dose of 100 levothyroxine (on waking) + 2 doses of 7.5 t3 (one on waking and one at 3pm - [built up gradually]). Back to suddenly, out of nowhere just falling backwards and fatigue beyond all comprehension. This falling symptom only started after my 15 days off levothyroxine, nearly
woofa27
in
Thyroid UK
4 months ago
Constantly bleeding / zoladex
I'm coming to to my 3rd shot of zoladex next week but for the last 5 weeks I've had 3 periods and all have been a week long. I had 5 days respite between 2 and my current period. I'm currently on day 7 and is not letting up, so don't know how much longer this 3rd will go on for. They aren't light,
I'm coming to to my 3rd shot of zoladex next week but for the last 5 weeks I've had 3 periods and all have been a week long. I had 5 days respite between 2 and my current period. I'm currently on day 7 and is not letting up, so don't know how much longer this 3rd will go on for. They aren't light,
Aino26
in
Endometriosis UK
4 months ago
Is there any evidence that ADT deteriorates the myelin insulating neuropathways?
That's the question.
That's the question.
Eadgbe
in
Advanced Prostate Cancer
4 months ago
Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no āevidence of diseaseā. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no āevidence of diseaseā. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
4 months ago
Reassurance please
Hi, I have a diagnosis of an autoimmune thyroid condition. Went privately as NHS tests all within range on tests. Waiting on further bloods, which has been difficult to get done, so I can have follow up appointment with private GP for thyroid treatment. Appointment in July. In the interim I did see NHS
Hi, I have a diagnosis of an autoimmune thyroid condition. Went privately as NHS tests all within range on tests. Waiting on further bloods, which has been difficult to get done, so I can have follow up appointment with private GP for thyroid treatment. Appointment in July. In the interim I did see NHS
Fizzwhizz
in
Thyroid UK
4 months ago
Urinary urgency after treatment .. occasional
One side effect Iāve noticed is an occasional sudden need to urinate. Like when you were a young kid stuck on a school bus and had to really really go. This doesnāt happen all the time but maybe 20% of the time so several times a day. Iāve had brachytherapy (5 months ago), external radiation (3 months
One side effect Iāve noticed is an occasional sudden need to urinate. Like when you were a young kid stuck on a school bus and had to really really go. This doesnāt happen all the time but maybe 20% of the time so several times a day. Iāve had brachytherapy (5 months ago), external radiation (3 months
Yokohama2023
in
Prostate Cancer Network
4 months ago
Gleason 9 prostate cancer
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
69HumptyDumpty
in
Prostate Cancer Network
26 days ago
Impact of brief CBT on chronic pain and anxiety
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
audreycosta
in
Pain Concern
4 months ago
Does this sound like Hashimoto's please?
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Gyrosgirl
in
Thyroid UK
4 months ago
DENOSUNAB
I have stage 4 incurable lung cancerI have been on this drug for 20 months in respect of my bone cancer. My scans to date have all been stable and continue to show that the cancer has shrunk or disappeared to date. However, as my targeted therapy treatment (Brigatinib) is working, I am enquiring whether
I have stage 4 incurable lung cancerI have been on this drug for 20 months in respect of my bone cancer. My scans to date have all been stable and continue to show that the cancer has shrunk or disappeared to date. However, as my targeted therapy treatment (Brigatinib) is working, I am enquiring whether
Gymbuddie
in
The Roy Castle Lung Cancer Foundation
9 months ago
Tibolone HRT offered for pain relief of Pudendal Nueralgia alongside 3 injections of Zoladex into the abdominal wall?
Hi everyone, I had a gynecologist offer me Tibolone HRT tablets alongside 3 injections of Zoladex into the abdominal wall 4x weekly. Looking these medications up I've seen a ton of side effects like most meds. The gynaecologist agreed I had normal hormones and no gyno problems or endometriosis but being
Hi everyone, I had a gynecologist offer me Tibolone HRT tablets alongside 3 injections of Zoladex into the abdominal wall 4x weekly. Looking these medications up I've seen a ton of side effects like most meds. The gynaecologist agreed I had normal hormones and no gyno problems or endometriosis but being
Jobie18
in
Pelvic Pain Support Network
4 months ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
4 months ago
Affect of Alendronic acid if needing dental work?
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
moconnolly
in
PMRGCAuk
4 months ago
High TSH and High T4
Hi all! Hoping someone can answer this for me. The last week I have been getting serious symptoms with bradycardia, PVCs, and then Tachycardia, sweating, chest pressure/tightness, severe arm and leg aches. I finally ended up going to emergency. They kept me for observation and checked my heart which
Hi all! Hoping someone can answer this for me. The last week I have been getting serious symptoms with bradycardia, PVCs, and then Tachycardia, sweating, chest pressure/tightness, severe arm and leg aches. I finally ended up going to emergency. They kept me for observation and checked my heart which
brethor9
in
Thyroid UK
4 months ago
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