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PwP tune into music for therapy
https://parkinsonsnewstoday.com/news/parkinsons-patients-tune-into-
music
-
therapy
-improve-gait/?utm_source=PAR&utm_campaign=5ae3102317-PAR_ENL_3.0_US&utm_medium=email&utm_term=0_62dd4fb5e3-5ae3102317-74268825
https://parkinsonsnewstoday.com/news/parkinsons-patients-tune-into-
music
-
therapy
-improve-gait/?utm_source=PAR&utm_campaign=5ae3102317-PAR_ENL_3.0_US&utm_medium=email&utm_term=0_62dd4fb5e3-5ae3102317-74268825
PDWarrior1900
in
Cure Parkinson's
1 year ago
NEW BLOODS - getting there, but need advice on a few things please!
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
FallingInReverse
in
Thyroid UK
4 months ago
over 40 conception
I’m 41 going through my first cycle. I wanted to try and improve my chances of success due to my age. So have been taking coenzyme q10, regularly, as well as low dose melatonin, and omega 3 oils, folic acid and multivitamins. Also undergoing acupuncture and light therapy to improve egg quality. I’ve
I’m 41 going through my first cycle. I wanted to try and improve my chances of success due to my age. So have been taking coenzyme q10, regularly, as well as low dose melatonin, and omega 3 oils, folic acid and multivitamins. Also undergoing acupuncture and light therapy to improve egg quality. I’ve
Coffeeone
in
Fertility Network UK
9 months ago
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ADT duration for high risk with Cribriform
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Miko710
in
Prostate Cancer Network
4 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
4 months ago
Pluvicto damaging salivary glands?
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Kayakbob
in
Advanced Prostate Cancer
4 months ago
Rectitis caring
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Karmaji
in
Advanced Prostate Cancer
4 months ago
CBT-I (Cognitive Behavioral Therapy Insomnia) for Parkinson's Insomnia
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
staceysack
in
Cure Parkinson's
7 months ago
Should I insist on Whole Pelvic Radiation Therapy (WPRT)?
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Infamous9597
in
Advanced Prostate Cancer
4 days ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
7 days ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
7 days ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
maley2711
in
Prostate Cancer Network
4 months ago
Asking for my dad!!
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Justgettingitright
in
Advanced Prostate Cancer
4 months ago
A technical question on Radiation
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
Sushupthi
in
Advanced Prostate Cancer
10 days ago
HRT Raises Rheumatoid Arthritis Risk …
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
4 months ago
Thyroid UK list of practitioner recommendations please
I've just requested the above list and tbh, I don't know where to start. There's a consultant on there who I've already visited during this 'journey' who basically told me to go away and work on establishing a full dose HRT regime, referred me to a CFS clinic which never transpired and waved away low
I've just requested the above list and tbh, I don't know where to start. There's a consultant on there who I've already visited during this 'journey' who basically told me to go away and work on establishing a full dose HRT regime, referred me to a CFS clinic which never transpired and waved away low
Jamima
in
Thyroid UK
4 months ago
Thyroid question please...
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Suffering_sunny
in
Thyroid UK
4 months ago
Unusual case
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
npac
in
Advanced Prostate Cancer
13 days ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Horsemadlindy21
in
Thyroid UK
4 months ago
non hormonal suggestions
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
Sophiealice_
in
Endometriosis UK
4 months ago
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