Search
Search
About
Log in
Join
Experiences with
Methylenetetrahydrofolate reductase (MTHFR) deficiency
Posts
Communities
1,234 public posts
Filter results
Anaemia
Hi there can anyone please advise if there is anything I can do . Been told I have anemia but my iron panel is ok so therefore there is no treatment . Pretty sure I have sympt9ms but it can get mixed up with thyroid probs Total white count 4.6. Range 4-11. Red blood counT 3.6 Range
Hi there can anyone please advise if there is anything I can do . Been told I have anemia but my iron panel is ok so therefore there is no treatment . Pretty sure I have sympt9ms but it can get mixed up with thyroid probs Total white count 4.6. Range 4-11. Red blood counT 3.6 Range
Gcart
in
Thyroid UK
7 years ago
Blood test
Hi all, following up on my post of 2 months ago.low iron, ferritin and B 12. Have been on iron tablets and taking B12,folic acid, vitC, having a fasting blood test in the morning, what tests should my doctor be asking for. Many thanks for all your advice.
Hi all, following up on my post of 2 months ago.low iron, ferritin and B 12. Have been on iron tablets and taking B12,folic acid, vitC, having a fasting blood test in the morning, what tests should my doctor be asking for. Many thanks for all your advice.
Pearlanncollins
in
Thyroid UK
7 years ago
Help needed
Below I have attached my blood results from latest bloods I have a diagnose of under active thyroid pernicious anemia low Iron and low Vid D I am on life long medication for all of these I take 175mg thyroxine B12 Injections every 8 weeks 2 ferrous fumarate daily and 2 but D tablets daily I feel so
Below I have attached my blood results from latest bloods I have a diagnose of under active thyroid pernicious anemia low Iron and low Vid D I am on life long medication for all of these I take 175mg thyroxine B12 Injections every 8 weeks 2 ferrous fumarate daily and 2 but D tablets daily I feel so
Urbansky
in
Thyroid UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anaemia
Does anyone still have problems with iron deficiency anaemia even with the gluten free diet? I seem to still have some absorption problem. Thanks everyone.
Does anyone still have problems with iron deficiency anaemia even with the gluten free diet? I seem to still have some absorption problem. Thanks everyone.
Remainer
in
Gluten Free Guerrillas
7 years ago
Tired legs that feel as if made of lead and a sense of collapsing.
Hi, diagnosed as hypothyroid nearly 3 years ago. I'm on 75mg of levothyroxine and taking ferrous sulphate as low on iron in my last blood test. My question is if anyone else has this symptom: legs that feel as if made of lead and a feeling of collapsing. What do people recommend to solve or improve
Hi, diagnosed as hypothyroid nearly 3 years ago. I'm on 75mg of levothyroxine and taking ferrous sulphate as low on iron in my last blood test. My question is if anyone else has this symptom: legs that feel as if made of lead and a feeling of collapsing. What do people recommend to solve or improve
Catyjess
in
Thyroid UK
7 years ago
Can I now take T3
Sorry about last post, something went wrong. I have posted before and had very good advice from greygoose, Clutter, and many others. I now have a B12 reading of 1133 Previously 311(range 180-900) Folate is now 20 . Previously 4.2 (RANGE IS >3.8) I don't have
Sorry about last post, something went wrong. I have posted before and had very good advice from greygoose, Clutter, and many others. I now have a B12 reading of 1133 Previously 311(range 180-900) Folate is now 20 . Previously 4.2 (RANGE IS >3.8) I don't have
ladyabosso
in
Thyroid UK
7 years ago
Can NHS test for the DIO2 gene?
I’ve a telephone consultation tomorrow with my Endo - probably will be my last one as he can no longer look after me if I self medicate. However I thought I’d ask him to test me for the DIO2 gene so if this is abnormal he could then prescribe T3 on the NHS and override the CCG? Is that correct? Surely
I’ve a telephone consultation tomorrow with my Endo - probably will be my last one as he can no longer look after me if I self medicate. However I thought I’d ask him to test me for the DIO2 gene so if this is abnormal he could then prescribe T3 on the NHS and override the CCG? Is that correct? Surely
MissFG
in
Thyroid UK
7 years ago
3 year old daughter - B12/folate deficiency
Hi I am posting on behalf of my 3 year old daughter, she has iron deficiency but not on iron. Also has underactive thyroid and Hashimotos. Plan to see GP tomorrow to ask why no action has been taken on below results. Advice before then appreciated thankyou Folate *2.2 (2.5 - 19.5 ug/L) Vitamin B12 *
Hi I am posting on behalf of my 3 year old daughter, she has iron deficiency but not on iron. Also has underactive thyroid and Hashimotos. Plan to see GP tomorrow to ask why no action has been taken on below results. Advice before then appreciated thankyou Folate *2.2 (2.5 - 19.5 ug/L) Vitamin B12 *
Kellie2203
in
Pernicious Anaemia Society
7 years ago
Bad indegestion with under active thyroid
Has anyone tried BETAINE hydrochloride with pepsin for bad indegestion and digestive issues , what are you experiencies , been suffering 3 months now and Omeprazole doesn’t do anything for me . Had endoscopy and results were mild gastritis, duodenal ulcer and duodentis, thanks
Has anyone tried BETAINE hydrochloride with pepsin for bad indegestion and digestive issues , what are you experiencies , been suffering 3 months now and Omeprazole doesn’t do anything for me . Had endoscopy and results were mild gastritis, duodenal ulcer and duodentis, thanks
Ajwag
in
Thyroid UK
7 years ago
B12/folate/vitamin D
Feedback welcome. Thanks! VITAMIN B12 201 (190 - 900) FOLATE 2.3 (2.5 - 19.5) GP comments - a bit low VITAMIN D TOTAL 30.6 (25 - 50 VITAMIN D DEFICIENCY. SUPPLEMENTATION IS INDICATED)
Feedback welcome. Thanks! VITAMIN B12 201 (190 - 900) FOLATE 2.3 (2.5 - 19.5) GP comments - a bit low VITAMIN D TOTAL 30.6 (25 - 50 VITAMIN D DEFICIENCY. SUPPLEMENTATION IS INDICATED)
Sam1995
in
Thyroid UK
7 years ago
Supplementation advice please
In June 2017 Ferritin 56 (30 - 400) probably lower now due to heavy periods, complete blood count and iron profile still showing iron deficiency Folate 2.38 (2.50 - 19.50) Vitamin B12 335 (190 - 900) on B12 injections due to low B12 symptoms Vitamin D total 28.6 (25 - 50 deficiency) taking 800iu D3
In June 2017 Ferritin 56 (30 - 400) probably lower now due to heavy periods, complete blood count and iron profile still showing iron deficiency Folate 2.38 (2.50 - 19.50) Vitamin B12 335 (190 - 900) on B12 injections due to low B12 symptoms Vitamin D total 28.6 (25 - 50 deficiency) taking 800iu D3
Katyaz
in
Thyroid UK
7 years ago
Iron supplements?
Recently had some blood taken, and it showed that my ferritin and B12 was 'normal' but it's in the low end of normal. Ferritin 45 ug/L (15-300) Folate is 20. 7 ug/ L (2-20 ug/L) B12 259 ng/l (130- 900) I've been suffering with frequent and heavy periods for years which I think it causing the lower ferritin
Recently had some blood taken, and it showed that my ferritin and B12 was 'normal' but it's in the low end of normal. Ferritin 45 ug/L (15-300) Folate is 20. 7 ug/ L (2-20 ug/L) B12 259 ng/l (130- 900) I've been suffering with frequent and heavy periods for years which I think it causing the lower ferritin
lily82
in
Thyroid UK
7 years ago
Advice/low iron/ferrous sulphate
Hi all, I went to discuss my latest blood results with my Doctor a few days ago. My latest ferritin was 28. This was taken about 6 weeks ago.However as it is not below 17,she said she could not prescribe me iron meds. Been awful last few weeks,tired,achy,tingly hands and feet,palpitations and hair is
Hi all, I went to discuss my latest blood results with my Doctor a few days ago. My latest ferritin was 28. This was taken about 6 weeks ago.However as it is not below 17,she said she could not prescribe me iron meds. Been awful last few weeks,tired,achy,tingly hands and feet,palpitations and hair is
Pemby1984
in
Pernicious Anaemia Society
7 years ago
Trying to conceive
Hi I'm 21 and trying to conceive. Just wondering with these levels if I can? Thanks Ferritin 22 (30 - 400) MCV 80.8 (83 - 98) MCHC 388 (310 - 360) Haemoglobin 116 (120 - 150) MCV 28.1 (28 - 32) Iron 6.2 (6 - 26) Transferrin 12 (12 - 45) Folate 2.3 (2.5 - 19.5) Vitamin B12 226 (180 - 900) Vitamin D 30.6
Hi I'm 21 and trying to conceive. Just wondering with these levels if I can? Thanks Ferritin 22 (30 - 400) MCV 80.8 (83 - 98) MCHC 388 (310 - 360) Haemoglobin 116 (120 - 150) MCV 28.1 (28 - 32) Iron 6.2 (6 - 26) Transferrin 12 (12 - 45) Folate 2.3 (2.5 - 19.5) Vitamin B12 226 (180 - 900) Vitamin D 30.6
Viki456
in
Thyroid UK
7 years ago
Anaemia and iron deficiencies
Hello everyone. Well, after a couple of years of feeling awful and depressed I have been diagnosed with anaemia. The terrible thing about it is just how it has affected everything about my life. I mean everything. I often want to just not wake up in the morning rather than face the whole day. Anyone
Hello everyone. Well, after a couple of years of feeling awful and depressed I have been diagnosed with anaemia. The terrible thing about it is just how it has affected everything about my life. I mean everything. I often want to just not wake up in the morning rather than face the whole day. Anyone
Honeychild54
in
Thyroid UK
7 years ago
RLS/Pain with BP and sugar
Hi every one, I am new in the group. My mother suffering from RLS in legs and in arms and pain in lega as well along with rest less legs since 10 years. She is currently using Ropinirol 1mg at night and 1mg after breakfast + Pregabalin 75mg, but she is not getting normal , i mean she feel relax sometimes
Hi every one, I am new in the group. My mother suffering from RLS in legs and in arms and pain in lega as well along with rest less legs since 10 years. She is currently using Ropinirol 1mg at night and 1mg after breakfast + Pregabalin 75mg, but she is not getting normal , i mean she feel relax sometimes
Wajidali25
in
Restless Legs Syndrome
7 years ago
Looking for a doctor in UK, or Europe who treats Wisons Syndrome
Hi all I've been experimenting with all sorts of atrategies to get my energy back; just recently I have been getting my temperature up artificially, then I completely cut grains, and for the last week I gave been swimming daily despite the tiredness in the hope that my body would rebalance... Nothing
Hi all I've been experimenting with all sorts of atrategies to get my energy back; just recently I have been getting my temperature up artificially, then I completely cut grains, and for the last week I gave been swimming daily despite the tiredness in the hope that my body would rebalance... Nothing
RobinPaulWilliams
in
Thyroid UK
7 years ago
Vitamin and mineral levels
Endo has said ferritin was low in range and has ordered new panel. Here are results taken 3 months ago thanks Ferritin 61.1 (30 - 400) iron infusion done 2016 taking 1 iron tablet for iron deficiency MCV 82.5 (83 - 98) Iron 8.3 (6 - 26) Transferrin saturation 12 (12 - 45) Folate 2.3 (2.5 - 19.5) taking
Endo has said ferritin was low in range and has ordered new panel. Here are results taken 3 months ago thanks Ferritin 61.1 (30 - 400) iron infusion done 2016 taking 1 iron tablet for iron deficiency MCV 82.5 (83 - 98) Iron 8.3 (6 - 26) Transferrin saturation 12 (12 - 45) Folate 2.3 (2.5 - 19.5) taking
Ellieb774
in
Thyroid UK
7 years ago
Letters to doctor which led to treatment - feel free to copy any parts
Hi all, I said on another post (https://healthunlocked.com/pasoc/posts/136700379/stunned-in-a-good-way) that I'd post the contents of the letter I'd sent my GP when someone asked, just in case it was of any use to anyone else to use bits of. Certainly, a few months ago when I was much more ill I wouldn't
Hi all, I said on another post (https://healthunlocked.com/pasoc/posts/136700379/stunned-in-a-good-way) that I'd post the contents of the letter I'd sent my GP when someone asked, just in case it was of any use to anyone else to use bits of. Certainly, a few months ago when I was much more ill I wouldn't
ktwing
in
Pernicious Anaemia Society
7 years ago
Chromium Picolinate with Levothyroxine
I have read that taking Chromium Picolinate is good for lowering Bloody Sugar and to help with sugar cravings. I take levothyroxine of 175mcs at night and have been hypothyroid for over 20 odd years. I was just about to pop my first pill (as such) and someone said that I shouldn't take them with hypothyroidism
I have read that taking Chromium Picolinate is good for lowering Bloody Sugar and to help with sugar cravings. I take levothyroxine of 175mcs at night and have been hypothyroid for over 20 odd years. I was just about to pop my first pill (as such) and someone said that I shouldn't take them with hypothyroidism
tuf5ty
in
Thyroid UK
7 years ago
1
...
38
39
40
...
62
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
Thyroid UK
643 results
Pernicious Anaemia Society
300 results
Restless Legs Syndrome
146 results
View top 10 communities
Sort by
Most Relevant
Newest