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Update – surgery tomorrow, then on to Xeloda
Hello all – hope that the new year is finding you all on a good journey to healing and wellness. I unfortunately have been in and out of the hospital for 21 days with seven new MRIs as they are trying to discover the root cause of my back pain and inability to walk. In addition to the extensive bone
Hello all – hope that the new year is finding you all on a good journey to healing and wellness. I unfortunately have been in and out of the hospital for 21 days with seven new MRIs as they are trying to discover the root cause of my back pain and inability to walk. In addition to the extensive bone
Saltandlight
in
SHARE Metastatic Breast Cancer
5 months ago
Cold symptoms with suppressants
Just trying to figure out how my system is different with the immune suppressants. I recently had a cold but it never got really bad but it is also lasting a long-time. I know someone who had a blood infection and her immune system didn't kick in until it was very severe. She was on immune suppressants
Just trying to figure out how my system is different with the immune suppressants. I recently had a cold but it never got really bad but it is also lasting a long-time. I know someone who had a blood infection and her immune system didn't kick in until it was very severe. She was on immune suppressants
smilelines
in
NRAS
6 months ago
Heart Issues post Ivor Lewis
Hi, wondering if any of you that have had the Ivor Lewis surgery have had heart issues post surgery? At 3 years post surgery I started having atrial fibralation. Now 5 years post surgery and the afib is worse but I also have Braychardia ( very low heart rate) Looks like I will need a cardiac ablation
Hi, wondering if any of you that have had the Ivor Lewis surgery have had heart issues post surgery? At 3 years post surgery I started having atrial fibralation. Now 5 years post surgery and the afib is worse but I also have Braychardia ( very low heart rate) Looks like I will need a cardiac ablation
Janashlin
in
Oesophageal & Gastric Cancer
5 months ago
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meds fir a cold
I have cll and finally got a stuffy nose and a bit of cough. last time I had this I took sinutab but now I wonder if that is safe. I am not allowed ibuprofen.. By the way I had 5 covid vaccines and and the last one was october 26 and had the RSV vaccine last October 6, 2023. any suggestion?
I have cll and finally got a stuffy nose and a bit of cough. last time I had this I took sinutab but now I wonder if that is safe. I am not allowed ibuprofen.. By the way I had 5 covid vaccines and and the last one was october 26 and had the RSV vaccine last October 6, 2023. any suggestion?
Kmegood
in
CLL Support
6 months ago
bumped up moms scans
So I had shared that her markers had went up last week. When she had the progression in July she also had a plural effusion. Which she’s had drained only twice in 6 months. But her ribs have started being sore. So she goes into tomorrow for ultra sound to see if the fluid has built back up. So her
So I had shared that her markers had went up last week. When she had the progression in July she also had a plural effusion. Which she’s had drained only twice in 6 months. But her ribs have started being sore. So she goes into tomorrow for ultra sound to see if the fluid has built back up. So her
Flower1513
in
SHARE Metastatic Breast Cancer
5 months ago
lung ca and Crizotinib
hi I had been actually diagnosed with leimyosarcoma in calf muscle two years ago and successfully it was surgically removed and later no chemo was given. However in my scans there was a lung lesion that was there is scans but it was missed and left untreated till it reached stage 4. Now that I have been
hi I had been actually diagnosed with leimyosarcoma in calf muscle two years ago and successfully it was surgically removed and later no chemo was given. However in my scans there was a lung lesion that was there is scans but it was missed and left untreated till it reached stage 4. Now that I have been
Hassan786
in
Lung Cancer Support
5 months ago
Shingles
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
heathermc
in
MPN Voice
6 months ago
Taste Issues and finger neuropathy on Xtandi( enzalutamide) ?
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
bandgeek
in
Advanced Prostate Cancer
5 months ago
my cancer comic…
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
Jpburns
in
Advanced Prostate Cancer
5 months ago
Cough
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
54chelle
in
Asthma Community Forum
6 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
5 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
5 months ago
MODERNA SPIKEVAX (2022) COVID Vaccine Availability Autumn 2023 Uk
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
thyreoidea
in
Thyroid UK
9 months ago
covid vaccine
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
joecirillo
in
ITP Support Association
9 months ago
Update and advice needed x
Thank you all for your lovely comments. CT scan result shows a small area on the outside of the bowel which needs further investigation. Really shocked to hear this! After the procedure had been told cancer removed. Has anybody had a similar experience? Oncologist unable to say if it’s ovarian/bowel
Thank you all for your lovely comments. CT scan result shows a small area on the outside of the bowel which needs further investigation. Really shocked to hear this! After the procedure had been told cancer removed. Has anybody had a similar experience? Oncologist unable to say if it’s ovarian/bowel
ORGM
in
My Ovacome
5 months ago
Not what I expected!
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
Greensleeves
in
PMRGCAuk
9 months ago
Covid 19 booster and pneumonia vaccine
Hi has any one had any flares after these vaccines. GP Practice slow so will have to chase. Had the flu one OK had to go to pharmacy as Gp had stopped doing them. Bit concerned about Covid one and RA flares.
Hi has any one had any flares after these vaccines. GP Practice slow so will have to chase. Had the flu one OK had to go to pharmacy as Gp had stopped doing them. Bit concerned about Covid one and RA flares.
welsh12
in
NRAS
8 months ago
😵💫Crazy COVID story 😷🤧
So My friend who was infected a couple weeks ago for the first time with COVID saw his Dr and was prescribed paxlovid, one of 2 main antiviral treatment that is given to COVID infected people. He recovered, tested negative and returned to work last weekend. He text me last night...started feeling like
So My friend who was infected a couple weeks ago for the first time with COVID saw his Dr and was prescribed paxlovid, one of 2 main antiviral treatment that is given to COVID infected people. He recovered, tested negative and returned to work last weekend. He text me last night...started feeling like
LifeIsThePitts
in
Anxiety and Depression Support
10 months ago
Bladder Cancer, biopsy and operation.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
sandybrown
in
Lung Conditions Community Forum
5 months ago
Abdominal and decending aorta aneurysms
Back in June 2023 I had a PET Scan. The results were negative, no matastisim, no other findings except divertculosis which I have had for years.Early January 2024, I had another PET Scan. No matastisism was found but, this time they found an abdominal Aorta Aneurysm 3.5 cm and an the makings of a decending
Back in June 2023 I had a PET Scan. The results were negative, no matastisim, no other findings except divertculosis which I have had for years.Early January 2024, I had another PET Scan. No matastisism was found but, this time they found an abdominal Aorta Aneurysm 3.5 cm and an the makings of a decending
woppaginny
in
Advanced Prostate Cancer
5 months ago
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