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COVID-19 Infection effect on Urinary Incontinence and Mirabegron.
Dear Simon Foundation, I'm an old member of HU as a CLL type Leukaemia patient in the UK, but only just discovered your Simon foundation. Now I've always had poor bladder control and that could be due to bladder sensitivity, BPH, or damaged nerves in my lower back or all three, or more. I've gone through
Dear Simon Foundation, I'm an old member of HU as a CLL type Leukaemia patient in the UK, but only just discovered your Simon foundation. Now I've always had poor bladder control and that could be due to bladder sensitivity, BPH, or damaged nerves in my lower back or all three, or more. I've gone through
Ernest2
in
The Simon Foundation for Continence
8 months ago
2 acoustic neuromas
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Operalovers
in
Acoustic Neuroma Support
4 months ago
Cold water swimming
Hi all, I have been toying with cold water swimming for some time. ... (Now I'm no longer on the brink of chilblains at all times it seems like it could be a reasonable endeavour!) Does anyone do cold water swimming (or similar) and feel any benefit? I've done some very brief reading about brown
Hi all, I have been toying with cold water swimming for some time. ... (Now I'm no longer on the brink of chilblains at all times it seems like it could be a reasonable endeavour!) Does anyone do cold water swimming (or similar) and feel any benefit? I've done some very brief reading about brown
WitchingHour2point0
in
Thyroid UK
5 months ago
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Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
4 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
4 months ago
Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
4 months ago
Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
4 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
4 months ago
Pneumonia vaccination
Thank you everyone who replied, i hope i missed no-one out . It’s reassuring to have ‘friends’ on here who understand. I shall be having my jab next week. I had no problem after the flu and covid jabs, i really don’t know why i’m worrying. Fear of the unknown i guess,
Thank you everyone who replied, i hope i missed no-one out . It’s reassuring to have ‘friends’ on here who understand. I shall be having my jab next week. I had no problem after the flu and covid jabs, i really don’t know why i’m worrying. Fear of the unknown i guess,
Collie4
in
COPD Friends
5 months ago
Terratoma with a neuroendocrine tumour stage 1 3c, anybody
I think I might be clutching at straws here, anybody have anything similar. Apparently it's rare as hens teeth.I had a 5 kilo terratoma removed, it was on my left ovary. Also my appendix,left ovary and omentum along with 7 litres of fluid. No chemo as they were happy with everything. This all happened
I think I might be clutching at straws here, anybody have anything similar. Apparently it's rare as hens teeth.I had a 5 kilo terratoma removed, it was on my left ovary. Also my appendix,left ovary and omentum along with 7 litres of fluid. No chemo as they were happy with everything. This all happened
Dottieparton22
in
My Ovacome
1 month ago
2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
4 months ago
Colds and flu…🧐🥹?
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
Suvi8901
in
LUPUS UK
8 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
5 months ago
Shingles and MTX
I'm due to go visit family but brother-in-law has shingles. Normally I wouldn't worry as I have had chicken pox but the NHS in advice on taking MTX says to contact the doctor if you've been exposed to shingles (which suggests we should avoid contact with shingles patients). Has anyone been advised to
I'm due to go visit family but brother-in-law has shingles. Normally I wouldn't worry as I have had chicken pox but the NHS in advice on taking MTX says to contact the doctor if you've been exposed to shingles (which suggests we should avoid contact with shingles patients). Has anyone been advised to
Gottarelax
in
NRAS
10 months ago
Alvesco and fostair
I am currently on fostair 100 mart, with the ability to switch to fostair 200 when I need it. Along with spiriva. My asthma is relatively uncontrolled, but spiriva has helped a lot. My consultant has just put Alvesco 160 into the mix twice a day. Any idea of what he is doing, apart from just increasing
I am currently on fostair 100 mart, with the ability to switch to fostair 200 when I need it. Along with spiriva. My asthma is relatively uncontrolled, but spiriva has helped a lot. My consultant has just put Alvesco 160 into the mix twice a day. Any idea of what he is doing, apart from just increasing
Homely2
Administrator
in
Asthma Community Forum
10 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
8 months ago
Covid vax and AFIB
just as an FYI, I had a Covid vaccination (Pfizer) a couple of days ago and I developed AFIB within a few hours. It did resolve itself overnight after I took extra metoprolol.
just as an FYI, I had a Covid vaccination (Pfizer) a couple of days ago and I developed AFIB within a few hours. It did resolve itself overnight after I took extra metoprolol.
Awksom
in
CLL Support
8 months ago
still not diagnosed but concerned about IBS
Sorry for lengthy post I am new here. I started an antibiotics course (one week) Doxycycline on 24 April 2023 for throat infection and fever,as soon I finish it, I started having diarrhoea. That time I was in very stress and depression for another reason. It's been almost over 9 months now. Diarrhea
Sorry for lengthy post I am new here. I started an antibiotics course (one week) Doxycycline on 24 April 2023 for throat infection and fever,as soon I finish it, I started having diarrhoea. That time I was in very stress and depression for another reason. It's been almost over 9 months now. Diarrhea
Fmkhan
in
IBS Network
10 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
4 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
4 months ago
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