COVID-19 Infection effect on Urinary Incontinence and Mirabegron.

[Ernest2]

Dear Simon Foundation,

I'm an old member of HU as a CLL type Leukaemia patient in the UK, but only just discovered your Simon foundation.

Now I've always had poor bladder control and that could be due to bladder sensitivity, BPH, or damaged nerves in my lower back or all three, or more.

I've gone through the drugs in order: Tolterodine Tartrate (dryness issues), Tamsulosin (soreness), Mirabegron (great, but your "full" indicator stops working), and currently Finasteride 5mg for suspect (but unproven) BPH.

My digestive system is not in the greatest shape due to the antibiotics I've taken over the years for chemo and other issues, so invasive diagnostic tests are ruled out, and I'm trying to figure it out by trial and error with the different drugs.

Now being a Leukaemia patient I'm immune compromised, BUT very luckily only mildly so in my case. So I take care in public spaces with hand squirt etc.

Due to that, amazingly I've only just had my first COVID infection, with positive LFT tests for about 12 days. My first clear test was about 6 days ago.

Now my two questions please:

1. My bladder control for the last few days has gone from bad to completely awful. Could this be the COVID 19 lingering ? I still don't feel well.

2. The key question: Is it worth me trying restarting Mirabegron ? (and perhaps drop the Finasteride down to 1mg) ? I've been on the full 5mg Finasteride dose for about 5 months now since the middle of June.

Just at the moment I'm trying to get a private GP. I have a new job starting 4th Dec after 5 years of unemployment. That job will be tricky with the problem above. I'll do my best to work round it.

Thank you for reading, and best wishes to all,

Ernest

[incon1982 Administrator]

First, I must let you know that the staff at the Simon Foundation for Continence are not doctors, pharmacists or nurses. So we are unable to answer your question in regards to the medication. You will need to consult your new GP about and see if some changes might help.

Secondly, yes, there have been some reports in regards to adverse effects from Covid on the urinary system. I am linking you to two reports:

simonfoundation.org/symptom...

medrxiv.org/content/10.1101...

These two articles may be pointing out why you are having increased issues, but again, this should be checked out by your GP to determine whether or not it is the after effects of Covid or something else going on.

Wishing you all the best with the new job!!!

[Ernest2 in reply to incon1982]

Many thanks for the two articles.

I have via a new GP now got a referral to a specialist to start a proper investigation.

Best wishes,

Ernest

[Vasiliki99]

Hi I have bladderr pain I think the COVID made my bowel n bladder worse n I am used to bowel n bladder and it stings I got immuno comprimisations

[Ernest2 in reply to Vasiliki99]

Dear Vasiliki,

Really sorry to read that.

I'm just wondering if you are a member of the excellent Thyroid UK group e.g.

healthunlocked.com/thyroidu...

. . . and any others for the immunocompromised status. In my case I've joined many different wonderful HU groups over the years to try to understand various health issues.

Best wishes,

Ernest

[Vasiliki99]

Hi Ernest, thanks for the message it's a group I'm in I think it'd good ta !!