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stage 4 endo
hi all, I’m 20 and just been diagnosed with stage 4 endo. My endo specialist has given me a couple of options. Either take norethisterone and see how that goes or surgery for excision. I want a family and he said some women can conceive naturally and others need help. I just wondered what other people
hi all, I’m 20 and just been diagnosed with stage 4 endo. My endo specialist has given me a couple of options. Either take norethisterone and see how that goes or surgery for excision. I want a family and he said some women can conceive naturally and others need help. I just wondered what other people
Magsag
in
Endometriosis UK
1 month ago
Zanubrutinib and hair loss?
Hello and Happy Holidays to all! After almost 5 years post captivate trial, I will likely start Zanubrutinib in February or March. My specialist suggested taking Simvastatin in combination with Celebrex experimentally for a couple of months to see if my numbers remain stable. If not, then I will begin
Hello and Happy Holidays to all! After almost 5 years post captivate trial, I will likely start Zanubrutinib in February or March. My specialist suggested taking Simvastatin in combination with Celebrex experimentally for a couple of months to see if my numbers remain stable. If not, then I will begin
fell
in
CLL Support
7 months ago
Overcoming anxiety about going out
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Gingergus
in
The Roy Castle Lung Cancer Foundation
2 months ago
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Benapali and developing eczema
Has anyone else noticed that their skin on face and scalp has areas of flaky skin, especially at the edges of your hairline behind ears and on scalp. I bought E45 eczema cream but it doesn’t seem to work ? Any advice welcome 🙏
Has anyone else noticed that their skin on face and scalp has areas of flaky skin, especially at the edges of your hairline behind ears and on scalp. I bought E45 eczema cream but it doesn’t seem to work ? Any advice welcome 🙏
Gjbrose
in
NRAS
2 months ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Pluvicto patient
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
Reltubs
in
Advanced Prostate Cancer
2 months ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
2 months ago
Stomach rumbling growling and pain
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
spiderman5674
in
IBS Network
7 months ago
Anyone have withdrawal symptoms when dropping a treatment?
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
Elle713
in
SHARE Metastatic Breast Cancer
2 months ago
Ethanol Ablation
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Maggiesmum
in
Thyroid UK
2 months ago
Piqray/alpelesib. Oncologists. And various.
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Timtam56
in
SHARE Metastatic Breast Cancer
2 months ago
help determining stage
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
blackchurch
in
Advanced Prostate Cancer
2 months ago
My diagnosis after 6 years, Lymphoma EMZL, AL Amyloidosis and Myeloma
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Pipido36
in
The Roy Castle Lung Cancer Foundation
2 months ago
Op update
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
georgiageorgia182
in
My Ovacome
2 months ago
Stomach pain and nauseous
Hi All, Its long story about 9 years only daughter. Since December 2022, my had Covid vaccine in 2021 and she had exposed to Covid on 2022 December. After this, She had first episode of 25 times of Vomitings in an hour and stomach pain on December 24th morning, We rushed to ER they said it
Hi All, Its long story about 9 years only daughter. Since December 2022, my had Covid vaccine in 2021 and she had exposed to Covid on 2022 December. After this, She had first episode of 25 times of Vomitings in an hour and stomach pain on December 24th morning, We rushed to ER they said it
Vicoria
in
IBS Network
10 months ago
Why do MO have one stop Zytiga and Prednisone during Cabazitaxel And Carboplatin treatment for pca Adenocarcinoma liver Mets?
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Jak2 question and PV question (have medical anxiety so nervous)
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
HockeyFan47
in
MPN Voice
2 months ago
New treatment
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
JulieB76
in
SHARE Metastatic Breast Cancer
2 months ago
Cancer Clinical Trial Participation May Not Actually Improve Survival, Study Says, MedPage Today May 22, 2024
[i]While an admittedly imperfect pooled analysis (w/ PCa trials amounting to 7% of total), this paper illuminates the effects of patient selection bias in clinical trial outcomes. [/i][i]
(emphasis is added.)
[/i][i] Along with the accompanying editorial, it should serve to provide some new guidance
[i]While an admittedly imperfect pooled analysis (w/ PCa trials amounting to 7% of total), this paper illuminates the effects of patient selection bias in clinical trial outcomes. [/i][i]
(emphasis is added.)
[/i][i] Along with the accompanying editorial, it should serve to provide some new guidance
cujoe
in
Fight Prostate Cancer
2 months ago
My Bladder Cancer Update.
My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn 2023 and that was a complete turn-around. Seems my BCG has worked in as far as there si no tumour growth. I still have cancer cells because I have cancer in situ (CIS) but at moment is low grade. So
My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn 2023 and that was a complete turn-around. Seems my BCG has worked in as far as there si no tumour growth. I still have cancer cells because I have cancer in situ (CIS) but at moment is low grade. So
Ern007
in
Lung Conditions Community Forum
5 months ago
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