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CHAPTER 6.THE SEARCH FOR HOPE "OUTSIDE" THE BUBBLE: OTHER NEUROLOGISTS, OTHER MEDICINES, OTHER DISEASES...
Explanation: I would like to share this chapter with all of you. Because of a worsening in my mother's health, I don't know when I will be able to resume the English translation of my book on curing Parkinson's. I will be sharing some chapters in this extraordinary forum. I have to stop my investigation
Explanation: I would like to share this chapter with all of you. Because of a worsening in my mother's health, I don't know when I will be able to resume the English translation of my book on curing Parkinson's. I will be sharing some chapters in this extraordinary forum. I have to stop my investigation
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
Viral Meningitis Headaches
I got viral meningitis in 2012,went to ER,104.7 temp,they gave me ice blankets and intravenous antibiotics.Came home 1 week later and had to give myself antibiotics through a pic line they implanted.Long story short,i got better eventually.Took about a year.Only problem is i still get very bad headaches
I got viral meningitis in 2012,went to ER,104.7 temp,they gave me ice blankets and intravenous antibiotics.Came home 1 week later and had to give myself antibiotics through a pic line they implanted.Long story short,i got better eventually.Took about a year.Only problem is i still get very bad headaches
bekele
in
Meningitis Now
2 years ago
News that worried us and studies that gave us hope (04/2022).
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
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Pip review
I’ve just asked for a early pop review has I know my cmt is getting worse I cannot stand for long periods of time and walk very far I get high rate care and low mobility at the moment I have a automatic which I’ve just had too send my dvla medical form off too so has you can understand the stress and
I’ve just asked for a early pop review has I know my cmt is getting worse I cannot stand for long periods of time and walk very far I get high rate care and low mobility at the moment I have a automatic which I’ve just had too send my dvla medical form off too so has you can understand the stress and
Megan23
in
Charcot-Marie-Tooth UK
2 years ago
Evorel Patches not sticking!
Hi all. I usually have Estradot patches (Oestrogen only) just moved up to 75mg and a different GP signed off my prescription & put it through as generic. I have therefore ended up with these stupid Evorel patches. They are so enormous! I changed it on Tuesday & today it started lifting up & bagging.
Hi all. I usually have Estradot patches (Oestrogen only) just moved up to 75mg and a different GP signed off my prescription & put it through as generic. I have therefore ended up with these stupid Evorel patches. They are so enormous! I changed it on Tuesday & today it started lifting up & bagging.
Wales99
in
Menopause and Perimenopause Support
2 years ago
Next experiment
I read that nicotine can help PD. So I'm trying nicotine patches. I cut one patch into 4 pieces and stuck one on my arm. A couple hours later my stomach is growling loudly. Normally that doesn't happen. I assume gastroparesis is involved. Other than that no problems.
I read that nicotine can help PD. So I'm trying nicotine patches. I cut one patch into 4 pieces and stuck one on my arm. A couple hours later my stomach is growling loudly. Normally that doesn't happen. I assume gastroparesis is involved. Other than that no problems.
kaypeeoh
in
Cure Parkinson's
2 years ago
Tobacco?
There's been recent comments on tobacco. Years ago I was researching MS and came on medical reports on the use of nicotine patches for PD. I didn't go deeper into it but never forgot it either. Now I'm wondering if I should try it. I'm against smoking. That's why I never tried pot smoking.
There's been recent comments on tobacco. Years ago I was researching MS and came on medical reports on the use of nicotine patches for PD. I didn't go deeper into it but never forgot it either. Now I'm wondering if I should try it. I'm against smoking. That's why I never tried pot smoking.
kaypeeoh
in
Cure Parkinson's
2 years ago
nicotine, You could test nicotine patches to see if it has a positive effect on Parkinson's. Or?
https://www.spektrum.de/news/kognition-nikotin-gegen-neuropsychiatrische-erkrankungen/1924141
https://www.spektrum.de/news/kognition-nikotin-gegen-neuropsychiatrische-erkrankungen/1924141
PDTom
in
Cure Parkinson's
2 years ago
3 weeks done.
3 weeks of not smoking. Physical side effects gone. Still crave a cigarette every day but haven't given in. Using nicotine patches which seem to be working. Sense of smell has definitely improved. I can smell smoke on other people which I couldn't before. Still have a slight cough but nothing compared
3 weeks of not smoking. Physical side effects gone. Still crave a cigarette every day but haven't given in. Using nicotine patches which seem to be working. Sense of smell has definitely improved. I can smell smoke on other people which I couldn't before. Still have a slight cough but nothing compared
Storm2021
1 Week Smoke Free
in
No Smoking Day
2 years ago
Stop smoking
Is anyone using nicotine patches to stop smoking
Is anyone using nicotine patches to stop smoking
Travis2109
in
No Smoking Day
2 years ago
Doing the best with what we have
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
Samson360
in
Charcot-Marie-Tooth UK
2 years ago
Retzius sparing prostatectomy, 1 week later
Hi all, I still need to update my journey blog, but thought I would give an update as it has been a week today since my procedure at Georgetown. The procedure itself went really well. Turns out my prostate was 100 grams. Pathology came back showing 4+3, versus original 3+4 from biopsy. No positive
Hi all, I still need to update my journey blog, but thought I would give an update as it has been a week today since my procedure at Georgetown. The procedure itself went really well. Turns out my prostate was 100 grams. Pathology came back showing 4+3, versus original 3+4 from biopsy. No positive
PCInPA
in
Prostate Cancer Network
3 years ago
Looking for advice
My son is 3 and his dad has cmt type 1a My son has all the signs like his dad just not the Pes cavus but his physio said kids don’t get a arch in the foot until 3-7 years old I don’t want leave it that long in cause my son does have it. Can I get a blood test done to see if he has it like his dad
My son is 3 and his dad has cmt type 1a My son has all the signs like his dad just not the Pes cavus but his physio said kids don’t get a arch in the foot until 3-7 years old I don’t want leave it that long in cause my son does have it. Can I get a blood test done to see if he has it like his dad
Carlyb4133
in
Charcot-Marie-Tooth UK
3 years ago
Quit smoking
Do you think it’s better to quit smoking cold turkey or using nicotine patches? Thank you.
Do you think it’s better to quit smoking cold turkey or using nicotine patches? Thank you.
Vickytst
in
No Smoking Day
3 years ago
need exercise program after heart attack but disabled cant find a book on this.
hello I had a heart attack on the 10th July I am disabled in a wheelchair, I have the following arthritis in both knees, both knees need replacing, peripheral neuropathy, Both My feet have been badly deformed by neuropathic charcot, I also have copd, type 2 Diabeteas. I am looking for a book on
hello I had a heart attack on the 10th July I am disabled in a wheelchair, I have the following arthritis in both knees, both knees need replacing, peripheral neuropathy, Both My feet have been badly deformed by neuropathic charcot, I also have copd, type 2 Diabeteas. I am looking for a book on
microbar
in
Charcot-Marie-Tooth UK
3 years ago
Is Advil or Tylenol an issue for pain relief after surgery?
I’ve been taking Motrin or Advil and sometimes Tylenol for pain. It’s been 8 days and can foresee another possible week. I’m woke up feeling startled and I’m not sure if it’s the medication affecting the b12 or what it is exactly but it reminds me of how I felt during the nightmare of realizing it
I’ve been taking Motrin or Advil and sometimes Tylenol for pain. It’s been 8 days and can foresee another possible week. I’m woke up feeling startled and I’m not sure if it’s the medication affecting the b12 or what it is exactly but it reminds me of how I felt during the nightmare of realizing it
Plucky1976
in
Pernicious Anaemia Society
3 years ago
Tumor leaning on my spinal cord 1.7cm
Doctors found a liaison leaning on my spinal cord measuring 1.7cm and are figuring what’s better surgery or radiation. I had radiation when I had my right lung removed in 2017 so surgery might be better. I have 7cm tumor in my chest wall they are doing a plan to radiate them chemo, we tried gemzar
Doctors found a liaison leaning on my spinal cord measuring 1.7cm and are figuring what’s better surgery or radiation. I had radiation when I had my right lung removed in 2017 so surgery might be better. I have 7cm tumor in my chest wall they are doing a plan to radiate them chemo, we tried gemzar
lovey100
in
Lung Cancer Support
3 years ago
Free ebook of 300 pages:"Parkinson's here and now. 27 years searching for a cure for Parkinson's disease (1994-2021)."
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Is Parkinson's disease a lifestyle disease? 1. Parkinsonian lifestyle (higher risk).
(Excerpt from the book I am writing now. I hope you find it useful). Is Parkinson's disease a lifestyle disease? 1. Parkinsonian style (increased risk of developing the disease) I have less and less doubts about the existence of a "Parkinsonian" way of life, which predisposes and increases the risk
(Excerpt from the book I am writing now. I hope you find it useful). Is Parkinson's disease a lifestyle disease? 1. Parkinsonian style (increased risk of developing the disease) I have less and less doubts about the existence of a "Parkinsonian" way of life, which predisposes and increases the risk
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Gemzar
What are the side effects of this chemo Eva use I’m on Motrin 3 times a day for pain in my back where the lobe Tony took place and when I don’t take Motrin the pain is unbearable and I was diagnosed lung cancer in 2017 then did chemo had right lobectomy then it spread to brain and I had a few Mets about
What are the side effects of this chemo Eva use I’m on Motrin 3 times a day for pain in my back where the lobe Tony took place and when I don’t take Motrin the pain is unbearable and I was diagnosed lung cancer in 2017 then did chemo had right lobectomy then it spread to brain and I had a few Mets about
lovey100
in
Lung Cancer Support
3 years ago
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