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BREATHING QUESTION from member "Gunner"
Gunner sent me a message asking the following and have answered to the best of my own personal experiences, but thought he'd benefit from input of others on this subject as breathing is not something that affects me too much at the moment. ----------------------------------- GUNNER ASKED: "I
Gunner sent me a message asking the following and have answered to the best of my own personal experiences, but thought he'd benefit from input of others on this subject as breathing is not something that affects me too much at the moment. ----------------------------------- GUNNER ASKED: "I
CMTerSam
Volunteer
in
Charcot-Marie-Tooth UK
12 years ago
Swelling feet and ankles
I have CMT1a ~ Does anyone suffer from swollen feet and ankles? Diuretics don't help. They are usually bearable but occasionally become quite painful and I have to elevate my legs for a few hours to get any relief. They soon return and it is now a chronic condition with which I am learning to live. Any
I have CMT1a ~ Does anyone suffer from swollen feet and ankles? Diuretics don't help. They are usually bearable but occasionally become quite painful and I have to elevate my legs for a few hours to get any relief. They soon return and it is now a chronic condition with which I am learning to live. Any
CMT2012
in
Charcot-Marie-Tooth UK
12 years ago
Does anyone suffer from sleep apnea?
Hi, about the time I was diagnosed with CMT 1a (10 years ago) my wife noticed that I stopped breathing for long periods when sleeping. I was referred by my GP to a sleep consultant. He took one look at me and said "I don't believe you have sleep apnea, you're fit and not overweight, you just don't fit
Hi, about the time I was diagnosed with CMT 1a (10 years ago) my wife noticed that I stopped breathing for long periods when sleeping. I was referred by my GP to a sleep consultant. He took one look at me and said "I don't believe you have sleep apnea, you're fit and not overweight, you just don't fit
HorshamMalc
in
Charcot-Marie-Tooth UK
12 years ago
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New to the site son diagnosed today aged 5
We too have been diagnosed today. Our son is 5 but has had epilepsy since the age of 1, and today's results have come after many years of trying to establish the cause of this. Not sure that we've established that, but we can confirm CMT! He already uses a wheelchair for any distance as he has had mobility
We too have been diagnosed today. Our son is 5 but has had epilepsy since the age of 1, and today's results have come after many years of trying to establish the cause of this. Not sure that we've established that, but we can confirm CMT! He already uses a wheelchair for any distance as he has had mobility
Chelsea1504
in
Charcot-Marie-Tooth UK
12 years ago
Has anyone else heard of nicotine patches to reduce symptoms ?
There seems to be some research done in Stockllom to support that nicotine in its pure form can have. Beneficial effects in. Parkinson . Has anyone tried them ? If so how is it? Soniadakini
There seems to be some research done in Stockllom to support that nicotine in its pure form can have. Beneficial effects in. Parkinson . Has anyone tried them ? If so how is it? Soniadakini
soniadakini
in
Cure Parkinson's
12 years ago
A question for those using nicotine patches
Hullo! When it comes to the time where you should drop down to the smaller patches does it feel any different? Do you feel like the smaller amount of nicotine makes you crave cigs more, or send you into moods? I will be on my 8th week next week and I am really starting to get panicky about it :( xx
Hullo! When it comes to the time where you should drop down to the smaller patches does it feel any different? Do you feel like the smaller amount of nicotine makes you crave cigs more, or send you into moods? I will be on my 8th week next week and I am really starting to get panicky about it :( xx
Lenne
Administrator
in
Quit Support
12 years ago
swollen leg
Hi i have type 1a was diagnosed in1999, just lately started getting swelling in my right foot with redness as well does anyone else have this problem?
Hi i have type 1a was diagnosed in1999, just lately started getting swelling in my right foot with redness as well does anyone else have this problem?
john1966
in
Charcot-Marie-Tooth UK
12 years ago
Just a little info I have on my facebook related to Fibro
People with fibromyalgia say that their muscles feel like they have been pulled or overworked, and sometimes they twitch or cramp.8 Even the skin may feel badly sunburned.9 To help your family and friends relate to your fibromyalgia symptoms, have them think back to the last time they had a bad flu.
People with fibromyalgia say that their muscles feel like they have been pulled or overworked, and sometimes they twitch or cramp.8 Even the skin may feel badly sunburned.9 To help your family and friends relate to your fibromyalgia symptoms, have them think back to the last time they had a bad flu.
Sharonsspot
in
Fibromyalgia Action UK
12 years ago
What is NRT?
NRT stands for Nicotine Replacement Therapy. When used properly, NRT really does help people stop smoking. Currently there are nicotine patches, gum, tablets, lozenges, inhalator, mouth spray and nasal spray. By using NRT, you are only getting the nicotine from the product, not the other
NRT stands for Nicotine Replacement Therapy. When used properly, NRT really does help people stop smoking. Currently there are nicotine patches, gum, tablets, lozenges, inhalator, mouth spray and nasal spray. By using NRT, you are only getting the nicotine from the product, not the other
EmJay
Administrator
in
Quit Support
12 years ago
Charcot-Marie-Tooth disease. Guide provided by the Muscular Dystrophy Campaign
Charcot-Marie-Tooth disease is named after the three neurologists who first described the condition in 1886. Many different names have been used to describe Charcot-Marie-Tooth disease but the other commonly used name is hereditary motor and sensory neuropathy. This is an accurate term as it refers to
Charcot-Marie-Tooth disease is named after the three neurologists who first described the condition in 1886. Many different names have been used to describe Charcot-Marie-Tooth disease but the other commonly used name is hereditary motor and sensory neuropathy. This is an accurate term as it refers to
CMTUnitedKindom
Partner
in
Charcot-Marie-Tooth UK
12 years ago
Pain management
What suggestions do people have for pain management? I have tried chiropratic intervention, massage therapy, cortizone shots and nerve blocks, accupuncture, heat and cold pacs but still have an unbelievable amount of pain. I cannot do a quarter of what i used to do and my sleep is constantly interrupted
What suggestions do people have for pain management? I have tried chiropratic intervention, massage therapy, cortizone shots and nerve blocks, accupuncture, heat and cold pacs but still have an unbelievable amount of pain. I cannot do a quarter of what i used to do and my sleep is constantly interrupted
tinanyc
in
LUPUS UK
13 years ago
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