Search
Search
About
Log in
Join
Experiences with
Mezolar Matrix transdermal patches
Posts
Communities
251 public posts
Filter results
Possibly CMT
Hi all, Since few years I've been sick with a.o Crohn like disease and Undifferentiated Connective Tissue Disease. Begin this year I got mobility problems. Ugly pain in my thighs and upper legs muscles refusing to walk after 15 min of walking/standing. My rheumy said to get more exercise. I did but
Hi all, Since few years I've been sick with a.o Crohn like disease and Undifferentiated Connective Tissue Disease. Begin this year I got mobility problems. Ugly pain in my thighs and upper legs muscles refusing to walk after 15 min of walking/standing. My rheumy said to get more exercise. I did but
Patricia2015
in
Charcot-Marie-Tooth UK
8 years ago
COPD Going Backwards ?
I was diagnosed with COPD around 2012. The diagnosis was moderate, but I think that perhaps it was at the bad end of moderate. I had at least one flare up due to a chest infection which saw me hospitalized for a short period. I was in a right state before going into Hospital. The infection saw me waking
I was diagnosed with COPD around 2012. The diagnosis was moderate, but I think that perhaps it was at the bad end of moderate. I had at least one flare up due to a chest infection which saw me hospitalized for a short period. I was in a right state before going into Hospital. The infection saw me waking
FredM8
in
Lung Conditions Community Forum
8 years ago
Ovary Removal: Bad Back Pain
Hi I'm seeking advice or any type of similar stories.... I just turned 19. Throughout my summer I've spent it going back and forth to the emergency room, OBGYN, and radiologist. Not knowing anything serious was going on internally. I began to feel back pain and it become more and more excruciating.
Hi I'm seeking advice or any type of similar stories.... I just turned 19. Throughout my summer I've spent it going back and forth to the emergency room, OBGYN, and radiologist. Not knowing anything serious was going on internally. I began to feel back pain and it become more and more excruciating.
Prettygirl19
in
Endometriosis UK
9 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hard to swallow at times?
Hi there, I was diagnosed at 10 years old with CMT1a. I am now 39 and starting to see some of the atrophy I was hoping would skip me. :) Recently I started having some issues swallowing. It feels like I have something lodged at the bottom right area of my throat. I feel really bothered by it when I lie
Hi there, I was diagnosed at 10 years old with CMT1a. I am now 39 and starting to see some of the atrophy I was hoping would skip me. :) Recently I started having some issues swallowing. It feels like I have something lodged at the bottom right area of my throat. I feel really bothered by it when I lie
Staugie
in
Charcot-Marie-Tooth UK
8 years ago
Tell Me Your Symptoms And Maybe I Can Help Explain Them
Okay. So if you deal with anxiety symptoms, I'm here to say I understand. I've experienced many many wacky symptoms, believed I've had many health issues, but were always proven false, and if you want an explanation as to why it happens, please ask. I've researched, I've read, I've listened, so please
Okay. So if you deal with anxiety symptoms, I'm here to say I understand. I've experienced many many wacky symptoms, believed I've had many health issues, but were always proven false, and if you want an explanation as to why it happens, please ask. I've researched, I've read, I've listened, so please
Hidden
in
Anxiety Support
9 years ago
Advice and comments requested ?
Hello to all my fellow Cmt sufferers in the UK : Does any 'Health-Unlocked' member have any advice, or experience, on how effective is the REVITIVE Circulation Booster, or an equivalent device ? This device uses, Transcutaneous electrical nerve stimulation (TENS) , where small electrical impulses are
Hello to all my fellow Cmt sufferers in the UK : Does any 'Health-Unlocked' member have any advice, or experience, on how effective is the REVITIVE Circulation Booster, or an equivalent device ? This device uses, Transcutaneous electrical nerve stimulation (TENS) , where small electrical impulses are
John1945
in
Charcot-Marie-Tooth UK
9 years ago
Smoking and thyroid - Thyroid and smoking.
Smoking and thyroid. Thyroid and smoking. The inter-relation between smoking, very likely largely due to nicotine, and thyroid has been discussed here and elsewhere many times. The place it does NOT get mentioned is anywhere concerned with giving up smoking. You can get nicotine patches, anti-depressents
Smoking and thyroid. Thyroid and smoking. The inter-relation between smoking, very likely largely due to nicotine, and thyroid has been discussed here and elsewhere many times. The place it does NOT get mentioned is anywhere concerned with giving up smoking. You can get nicotine patches, anti-depressents
helvella
Thyroid UK
in
Thyroid UK
9 years ago
Am tired of my poor well of quitting this cigarette !!!!
I started smoking when i was 24, and since the day i started i couldnt stop even for one day, i used to smoke one cigarette per day, now it' one packet daily. sometimes i feel frustrated and whenever i stat searching on the net and gets really motivated to stop, the next day the first thing i do after
I started smoking when i was 24, and since the day i started i couldnt stop even for one day, i used to smoke one cigarette per day, now it' one packet daily. sometimes i feel frustrated and whenever i stat searching on the net and gets really motivated to stop, the next day the first thing i do after
Sophie1987
in
Quit Support
9 years ago
My past symptoms
Anxiety symptoms (duration range: 1 day-24/7) Light headedness Dizziness Tight band around head Light head Heavy head Brain zaps Exhaustion Loss of appetite Ringing in ears Tight band around chest Depersonalization Derealization Tonsil stones Tight traps Muscle soreness Blurry vision Skipped heart
Anxiety symptoms (duration range: 1 day-24/7) Light headedness Dizziness Tight band around head Light head Heavy head Brain zaps Exhaustion Loss of appetite Ringing in ears Tight band around chest Depersonalization Derealization Tonsil stones Tight traps Muscle soreness Blurry vision Skipped heart
Hidden
in
Anxiety Support
9 years ago
Assistive devices for CMT
Hi people, Anybody use any special tools to compensate for the neuropathy? I carry a needle nosed pliers on my keychain, and in the glove compartment of my car, in order to use credit cards at the ATM. Also a "neuropathy" button hooker---a wire loop on a plastic handle, purchased from WalMart online
Hi people, Anybody use any special tools to compensate for the neuropathy? I carry a needle nosed pliers on my keychain, and in the glove compartment of my car, in order to use credit cards at the ATM. Also a "neuropathy" button hooker---a wire loop on a plastic handle, purchased from WalMart online
jimkline1948
in
Charcot-Marie-Tooth UK
9 years ago
Can tight stomach muscles cause burning?
I've been experiencing a burning muscle feeling localized around my lower abdomen. Taking Motrin or anything does nothing. It's uncomfortable but it tends to lessen when I do something. My mom used to be a massage therapist and says my stomach feels (when im relaxing it) like I've just done a ton of
I've been experiencing a burning muscle feeling localized around my lower abdomen. Taking Motrin or anything does nothing. It's uncomfortable but it tends to lessen when I do something. My mom used to be a massage therapist and says my stomach feels (when im relaxing it) like I've just done a ton of
Hidden
in
Anxiety Support
9 years ago
Post-Polio Syndrome v Charcot-Marie Tooth
I am struck by the number of times people with CMT mention other health issues...which reflect my own experiences. I suspect that most CMTites have a packages of health problems to deal with and it makes me wonder if there is a causal link between some of them. I will list a few of mine in a moment.
I am struck by the number of times people with CMT mention other health issues...which reflect my own experiences. I suspect that most CMTites have a packages of health problems to deal with and it makes me wonder if there is a causal link between some of them. I will list a few of mine in a moment.
Forester
in
Charcot-Marie-Tooth UK
9 years ago
CMT-TENS/EMS...any suggestions?
Hello CMTites, I have just written to Tenscare UK, who make the Tens machine I have used for pain relief for several years now, asking their advice on my current CMT difficulty which is numb ankles with loss of sensitivity. They are hesitant to make a definitive statement because - surprise surprise
Hello CMTites, I have just written to Tenscare UK, who make the Tens machine I have used for pain relief for several years now, asking their advice on my current CMT difficulty which is numb ankles with loss of sensitivity. They are hesitant to make a definitive statement because - surprise surprise
Forester
in
Charcot-Marie-Tooth UK
9 years ago
Pereferal neuropathic pain ( CMT type 1(a) )
Can anybody with similar problems tell me if one has to keep on taking 300mg Lyrica (pregabalin ) to stop the neuropathic pain attacks ? I get it on one toe only ? Lyrica makes me drunk and sleepy which is not good when you are only 65 yrs old and still drives.
Can anybody with similar problems tell me if one has to keep on taking 300mg Lyrica (pregabalin ) to stop the neuropathic pain attacks ? I get it on one toe only ? Lyrica makes me drunk and sleepy which is not good when you are only 65 yrs old and still drives.
Tandarts
in
Charcot-Marie-Tooth UK
9 years ago
CMT & Hip Replacement
Eleven days to go to get a new hip, I have Type 1A CMT, 64 years old, overweight, My balance is poor and was wondering if anyone on here has gone through this ? How did you cope, how easy could you manage stairs after, how long did it take to be able to drive again. I know we are all different but some
Eleven days to go to get a new hip, I have Type 1A CMT, 64 years old, overweight, My balance is poor and was wondering if anyone on here has gone through this ? How did you cope, how easy could you manage stairs after, how long did it take to be able to drive again. I know we are all different but some
Hidden
in
Charcot-Marie-Tooth UK
9 years ago
CMT type 2N
Hello, I'm a 45yr old English woman living in Sweden. I found out last spring that I had CMT. It was a chock and reading up on the illness made it even more difficult to deal with. I live here with my 13 yr old son. I have no other family here and the friends I have 'don't do sicknesses,' .........their
Hello, I'm a 45yr old English woman living in Sweden. I found out last spring that I had CMT. It was a chock and reading up on the illness made it even more difficult to deal with. I live here with my 13 yr old son. I have no other family here and the friends I have 'don't do sicknesses,' .........their
Wurzelone
in
Charcot-Marie-Tooth UK
9 years ago
Vitamin D!
Hi I have HNPP and diabetes and now I have had a letter from my GP to go see the nurse regarding my vitamin D levels!! They won't tell me if they are up/down, I have to wait now til Wedensday when I go see the nurse. The thing I would like to ask anyone out there is...... Can HNPP or Diabetes cause any
Hi I have HNPP and diabetes and now I have had a letter from my GP to go see the nurse regarding my vitamin D levels!! They won't tell me if they are up/down, I have to wait now til Wedensday when I go see the nurse. The thing I would like to ask anyone out there is...... Can HNPP or Diabetes cause any
Pam49
in
Charcot-Marie-Tooth UK
9 years ago
New to copd carer
My mums been in hospital all Christmas and now diagnosed with copd. She's now home and stopped smoking after 60 years. She's now on nicotine patches, and has a inhaler. Since coming home she has had quite bad toilet tummies and is now runni g a high temperature. Is this something to do with copd or
My mums been in hospital all Christmas and now diagnosed with copd. She's now home and stopped smoking after 60 years. She's now on nicotine patches, and has a inhaler. Since coming home she has had quite bad toilet tummies and is now runni g a high temperature. Is this something to do with copd or
Printerjayne
in
Lung Conditions Community Forum
9 years ago
A toe-curling problem
I have just reached the stage where my toes have curled under to the extent that my weight is on the ends of some of them, rather than the pads. It can be jolly painful. For many years it has been very difficult to slide my feet into shoes unless the inside is extremely smooth, as the toes catch on
I have just reached the stage where my toes have curled under to the extent that my weight is on the ends of some of them, rather than the pads. It can be jolly painful. For many years it has been very difficult to slide my feet into shoes unless the inside is extremely smooth, as the toes catch on
Amanita
in
Charcot-Marie-Tooth UK
9 years ago
HINTS AND TIPS FOR QUITTING
Quitting smoking is one of the hardest things you will ever do. Physical and psychological temptation will make you cranky. You may backslide on occasion and succumb to temptation. Set up a reward system for yourself, and try to be strong. You can do it. Physical Effects of Quitting Smoking •Expect
Quitting smoking is one of the hardest things you will ever do. Physical and psychological temptation will make you cranky. You may backslide on occasion and succumb to temptation. Set up a reward system for yourself, and try to be strong. You can do it. Physical Effects of Quitting Smoking •Expect
jillygirl
Administrator
in
Quit Support
10 years ago
1
...
9
10
11
...
13
Next page
10
Filter results
Clear filters
Posted in
All communities
Charcot-Marie-Tooth UK
64 results
Endometriosis UK
26 results
Cure Parkinson's
17 results
View top 10 communities
Sort by
Most Relevant
Newest