Charcot-Marie-Tooth UK
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Vitamin D!


I have HNPP and diabetes and now I have had a letter from my GP to go see the nurse regarding my vitamin D levels!! They won't tell me if they are up/down, I have to wait now til Wedensday when I go see the nurse. The thing I would like to ask anyone out there is...... Can HNPP or Diabetes cause any Vitamin levels to go high/low?

I know my HNPP has got really bad as I am getting pains everywhere now and it takes me so long to get comfy in bed at night.

I don't think to be honest that my GP ever looks into my HNPP to see if this disease could be causing these problems! Also I think it's because my GP doesn't even know what it is exactly!!

can anybody enlighten me on this Vitamin D stuff, it will be greatly appreciated before I go to see the nurse on Wednesday.

Thanks everyone Pam.

3 Replies

Hello to Pam49.....

In your recent post on 'Health-Unlocked', you did not confirm, exactly what type of diabetes that you actually have ?

a) Type 1 is treated by daily injections of insulin, and requires very close monitoring !

b) Type 2 is treated by diet, and prescribed medication/drugs/lifestyle changes :

Also, what brought your vitamin D levels to your doctors attention ?

A few years ago my Consultant Neurologist, confirmed to me, that there is no "proven" medical link between Diabetes, and Cmt + HNPP:                                           I also had inherited, Cmt Disease (Cmt-Type 1A) from my father:

Yes, HNPP is somewhat similar to the symptoms of Charcot-Marie-Tooth Disease :

Your question is,

Can HNPP or Diabetes cause any Vitamin D levels to go high/low ?

Answer is ? Possibly ? as many women suffer from low vitamin levels of D3 :

Your body must have vitamin D to absorb calcium, and promote bone growth, as too little vitamin D results in soft bones, and fragile, misshapen bones in adults (osteomalacia). You also need vitamin D for other important body functions.

Vitamin D3 is also called the "Sunshine-Vitamin":                                                           The recommended form of vitamin D is vitamin D3 or cholecalciferol.                   This is the natural form of vitamin D that your body makes from sunlight. However, a clinical study reported suggested that vitamin D2 works as well as vitamin D3.

These studies now show that people with higher levels of vitamin D most certainly have a "LOWER" risk of disease, although they do not definitively prove that lack of vitamin D does cause disease -- or that any vitamin D supplements would lower risk:

Let us all know how you got on !

Best of luck.....

John (Glasgow).....


Doing a search on vit d at the moment for myself and wife who goes out less than me. Three GP say low levels in myself and no need to treat but haematologist yesterday says yes need to treat! Has made me wonder about my other half as her hair is coming out yet she eats healthily?


Hi Pam. Just wonder If you have found out anything about vitamin d deficiency. Yes cmt and it can go hand in hand. My vitamin d is only 10. Fortunately we can take supplements to help bring up the levels to help a bit with the bone pain. Any information you can give me Will be brilliant


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