Advice and comments requested ? - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,678 members666 posts

Advice and comments requested ?

John1945 profile image
9 Replies

Hello to all my fellow Cmt sufferers in the UK :

Does any 'Health-Unlocked' member have any advice, or experience,

on how effective is the REVITIVE Circulation Booster, or an equivalent device ?

This device uses, Transcutaneous electrical nerve stimulation (TENS) ,

where small electrical impulses are delivered to the affected lower limbs,

area of your body, which you will feel as a tingling sensation :

It is claimed that using this TENS machine will improve your blood

circulation to your feet, and also to your calf muscles !

Written by
John1945 profile image
John1945
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Forester profile image
Forester

I use TENS regularly with very encouraging results...a machine I recently purchased also uses EMS technology and I am less sure about that.

But TENS, for me, is a proven technology and brings relief in many different areas...I don't claim to know how or why it works...but it does.

John1945 profile image
John1945 in reply to Forester

Hello to 'Forester',

Thanks for your reply :

I am going to order a Circulation Booster from a company that offers me a one month trial period, and will refund my purchase price "No-Quibble", if this "tens" device does not improve my feet / lower legs circulation :

Best of health......

John (Glasgow)

I used one regularly for a few months and I did not really notice any difference one way or the other.

A word of warning. If, like me, your feet are very numb ( I cant really fell anything ) DO NOT turn the machine up too far. You can actually cause nerve damage because you cannot feel the tingling even though the electricity is still passing through your body.

John1945 profile image
John1945 in reply to

Philcam......

Thanks for your reply :

Like yourself, my feet are almost numb, especially my body's lelt hands side:

My muscle wasting, and weakness is also less strong on my left side :

I also have Diabetes Type 2, which further conflicts with my inherited CMT Disease :

Best of health......

John (Glasgow)

in reply to John1945

I am also type 2 diabetic and am simiiarly suffering the double whammy. Oddly enough my left hand side is also suffering more than the left ( I am left handed too ).

Any way best of luck to you

ShayBay profile image
ShayBay in reply to

What is too high because I have a revitive system and used it for the first time today for my CMT. How do I know if it's too high?

Whiterose profile image
Whiterose

Hi John, I have just been given this machine. The sensation or should I say lack of sensation was different in either leg. Phicam has a point though, so don't know how far to turn it up. Any suggestions?

beludesigns profile image
beludesigns

Hi John,

Have you tried out the Revitive Circulation Booster now? I came across it a couple of days ago... On paper, it looks like it might work well for me.

Thanks (again!),

Ros

John1945 profile image
John1945 in reply to beludesigns

Hello to Ros.....

Whilst I was attending a very busy 'Flu-Vacine-Clinic' recently I raised ths subject with my "Cmt-Smart" G.P. Despite him being very busy, he said he would contact the 'Cardologist who performed the insertion of a 'drug-alluding-stent' last year, and phone me with his professional opinion:

True to his word my G.P. phoned me at home a few days later, with this Cardiologists advice?

>John, it would be best practice to avoid the use of devices that may interfere with my previously my previous diagnosed heart condition called "Atrial-Fibrillation" (AF) which leads to an abnormal electrical rhythm, or "quivering" of your hearts chamber: My AF has been normal for years, due daily ongoing drug therapy:

>My G.P. also had looked back my previous medical history, and reminded me also of my poor reaction, and response to "Magnetic-Bracelets", which I was "swayed-into" buying after believing their adverts, that magnets can cure "ALL" ailments ?

>So of we go once again, as all we Cmt sufferers, contine onwards to seek out the "holy-grain":

Best of Health......

John (Glasgow)

You may also like...

Tandarts who needs advice

I have CMT 1(a). Was diagnosed in 1991, had two new knees , toes straightened etc . I would like to...

Feeling Devestated and Low

harder like bricks on my feet. I am also finding splints very difficult to use. I dont even want to...

Advice needed! Have you ever been to a private orthotist?

a long time to wait when you have problems with your orthoses, poor communication, etc) - and am...

Do you get a pain in your wrist from using crutches?

Smartcrutches online. Apparently your weight is taken by your forearms rather than your wrists, and...

Assistive devices for CMT

Hi people, Anybody use any special tools to compensate for the neuropathy? I carry a needle nosed...