Advice and comments requested ? - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,686 members667 posts

Advice and comments requested ?

John1945 profile image
9 Replies

Hello to all my fellow Cmt sufferers in the UK :

Does any 'Health-Unlocked' member have any advice, or experience,

on how effective is the REVITIVE Circulation Booster, or an equivalent device ?

This device uses, Transcutaneous electrical nerve stimulation (TENS) ,

where small electrical impulses are delivered to the affected lower limbs,

area of your body, which you will feel as a tingling sensation :

It is claimed that using this TENS machine will improve your blood

circulation to your feet, and also to your calf muscles !

Written by
John1945 profile image
John1945
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Forester profile image
Forester

I use TENS regularly with very encouraging results...a machine I recently purchased also uses EMS technology and I am less sure about that.

But TENS, for me, is a proven technology and brings relief in many different areas...I don't claim to know how or why it works...but it does.

John1945 profile image
John1945 in reply toForester

Hello to 'Forester',

Thanks for your reply :

I am going to order a Circulation Booster from a company that offers me a one month trial period, and will refund my purchase price "No-Quibble", if this "tens" device does not improve my feet / lower legs circulation :

Best of health......

John (Glasgow)

I used one regularly for a few months and I did not really notice any difference one way or the other.

A word of warning. If, like me, your feet are very numb ( I cant really fell anything ) DO NOT turn the machine up too far. You can actually cause nerve damage because you cannot feel the tingling even though the electricity is still passing through your body.

John1945 profile image
John1945 in reply to

Philcam......

Thanks for your reply :

Like yourself, my feet are almost numb, especially my body's lelt hands side:

My muscle wasting, and weakness is also less strong on my left side :

I also have Diabetes Type 2, which further conflicts with my inherited CMT Disease :

Best of health......

John (Glasgow)

in reply toJohn1945

I am also type 2 diabetic and am simiiarly suffering the double whammy. Oddly enough my left hand side is also suffering more than the left ( I am left handed too ).

Any way best of luck to you

ShayBay profile image
ShayBay in reply to

What is too high because I have a revitive system and used it for the first time today for my CMT. How do I know if it's too high?

Whiterose profile image
Whiterose

Hi John, I have just been given this machine. The sensation or should I say lack of sensation was different in either leg. Phicam has a point though, so don't know how far to turn it up. Any suggestions?

beludesigns profile image
beludesigns

Hi John,

Have you tried out the Revitive Circulation Booster now? I came across it a couple of days ago... On paper, it looks like it might work well for me.

Thanks (again!),

Ros

John1945 profile image
John1945 in reply tobeludesigns

Hello to Ros.....

Whilst I was attending a very busy 'Flu-Vacine-Clinic' recently I raised ths subject with my "Cmt-Smart" G.P. Despite him being very busy, he said he would contact the 'Cardologist who performed the insertion of a 'drug-alluding-stent' last year, and phone me with his professional opinion:

True to his word my G.P. phoned me at home a few days later, with this Cardiologists advice?

>John, it would be best practice to avoid the use of devices that may interfere with my previously my previous diagnosed heart condition called "Atrial-Fibrillation" (AF) which leads to an abnormal electrical rhythm, or "quivering" of your hearts chamber: My AF has been normal for years, due daily ongoing drug therapy:

>My G.P. also had looked back my previous medical history, and reminded me also of my poor reaction, and response to "Magnetic-Bracelets", which I was "swayed-into" buying after believing their adverts, that magnets can cure "ALL" ailments ?

>So of we go once again, as all we Cmt sufferers, contine onwards to seek out the "holy-grain":

Best of Health......

John (Glasgow)

Not what you're looking for?

You may also like...

Information requested ?

Hello to all my fellow C.M.T. sufferers: I have inherited (from father) CMT type 1a since my birth...
John1945 profile image

Re. Pregnancy and risks of further degeneration.

Hi I have CMT and have read that pregnancy can exacerbate my condition. I find I fall more easily...
Happybeedaisy profile image

Blood test

Do they do blood test to find CMT? I'm not sure they done electrical tests on me did the use blood...
chuckles333 profile image

Numb foot question ?

A new problem I have in my right foot only, as most CMT sufferers know, lower legs and feet get...

CMT and Exercise

1. Is it physiologically possible for me (with CMT) to build up muscle mass in my upper arms?...
CMTUnitedKindom profile image
Partner

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.