Since few years I've been sick with a.o Crohn like disease and Undifferentiated Connective Tissue Disease. Begin this year I got mobility problems. Ugly pain in my thighs and upper legs muscles refusing to walk after 15 min of walking/standing. My rheumy said to get more exercise. I did but my problems stayed. I went to the neuro, he said I had proximal weakness 4/5 but didn't know why as needle EMG and nerve conduction test in my wrist proved to be normal. This was about 5 months ago. After that my feet started to really hurt and the achilles tendon turned out to be inflamed and thickened. My podotherapist said my foot became pes cavus like and subscribed inlays. About two months ago I noticed my feet turning outwards and hollwower and toes curling up (see picture). Since about one month ago I cannot walk more than 10/15 min as my feet hurt like hell, even in bed catching sleep is not easy. Especially below my ankle it feels like a hammer is pounding. I also notice my leg is getting thin around my shin and close to my feet. Those muscles are atrophying. And I often get strange tingling sensations around my shins and in my feet.
For the pain I got celebrex subscribed by my rheumy. I only use it for a few days and I don't get any relief yet.
I believe I may have CMT but cannot match the thigh pain with it. In two weeks I'm visiting another neuro hoping he can and will offer me help.
I bought a wheelchair two months ago as I still want to go out for a museum or zoo visit.
Does my feet and symptoms sound like CMT?
Greets and hugs,
A 40 Y/O woman (BMI 19.5)