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Waiting for PSA
It has been two and a half months since my PSA became detectable again after a four year break. (Gland removal in 2014, radiation and Lupron in 2017) PSA was .2 in April, .2 in May and .3 now in June. My MO says let it go above .5 so a scan may better locate the cells. He advises starting ADT now will
It has been two and a half months since my PSA became detectable again after a four year break. (Gland removal in 2014, radiation and Lupron in 2017) PSA was .2 in April, .2 in May and .3 now in June. My MO says let it go above .5 so a scan may better locate the cells. He advises starting ADT now will
Jvaughan0
in
Advanced Prostate Cancer
3 years ago
My Journey
I'm 74 years old, new to HU and a relative newcomer to the club. This site has provided me with a wealth of information that is invaluable in making treatment decisions . I was diagnosed in October 2019 (PSA 4.3, up from 3.0 the previous year), MRI and biopsy confirming the diagnosis. RP in December
I'm 74 years old, new to HU and a relative newcomer to the club. This site has provided me with a wealth of information that is invaluable in making treatment decisions . I was diagnosed in October 2019 (PSA 4.3, up from 3.0 the previous year), MRI and biopsy confirming the diagnosis. RP in December
Lasered
in
Prostate Cancer Network
3 years ago
I need hope
I haven’t posted in awhile, I’m currently on taxotere due to liver mets. I have 2 treatments left and I need to find something to keep me here for my children. I have done falsodex and letozole along with lupron and xgeve. My onc says exemestane is next by in self but I’m thinking why if I have failed
I haven’t posted in awhile, I’m currently on taxotere due to liver mets. I have 2 treatments left and I need to find something to keep me here for my children. I have done falsodex and letozole along with lupron and xgeve. My onc says exemestane is next by in self but I’m thinking why if I have failed
kduck
in
SHARE Metastatic Breast Cancer
3 years ago
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Follow up on Proteus trial As I mentioned before , I was diagnosed with T2N1 prostate cancer in may last year. I joined proteus trial which is neo adjuvant use of apalutamide and lupron for 6 months, thenRP, then another 6 months of adjuvant therapy with the same protocol. My post RP cam as <0,006 which
Follow up on Proteus trial As I mentioned before , I was diagnosed with T2N1 prostate cancer in may last year. I joined proteus trial which is neo adjuvant use of apalutamide and lupron for 6 months, thenRP, then another 6 months of adjuvant therapy with the same protocol. My post RP cam as <0,006 which
Johnko
in
Advanced Prostate Cancer
3 years ago
ADT vs physical castration pros and cons
I understand that unlike a physical castration which cannot be undone , adt can be stopped. But if someone has to be on ADT for life or chooses to be on it for life for fear of a recurrence of the cancer coming back or growing if it never enters remission, does a physical castration offer benefits?
I understand that unlike a physical castration which cannot be undone , adt can be stopped. But if someone has to be on ADT for life or chooses to be on it for life for fear of a recurrence of the cancer coming back or growing if it never enters remission, does a physical castration offer benefits?
Mascouche
in
Advanced Prostate Cancer
3 years ago
Joint and leg pain!!!
Husband is suffering from knee and leg pain. Also swollen feet and ankles. The oncologist does not want to treat the pain and I’m wondering if it’s because most joint aches aren’t from cancer? But my theory is that the joint pain could be due to the chemo, lupron, Zytiga, etc! So isn’t that really cancer
Husband is suffering from knee and leg pain. Also swollen feet and ankles. The oncologist does not want to treat the pain and I’m wondering if it’s because most joint aches aren’t from cancer? But my theory is that the joint pain could be due to the chemo, lupron, Zytiga, etc! So isn’t that really cancer
Cynthgob
in
Advanced Prostate Cancer
3 years ago
Depo-Provera Pros & Cons
My MO is suggesting Depo-Provera in response to my complaints about Lupron SEs. I'm a bit reluctant to take yet another 3-month shot, that can't be undone if I don't do well with its SEs . If you've tried it, what are your experiences?
My MO is suggesting Depo-Provera in response to my complaints about Lupron SEs. I'm a bit reluctant to take yet another 3-month shot, that can't be undone if I don't do well with its SEs . If you've tried it, what are your experiences?
LifeQuality
in
Advanced Prostate Cancer
3 years ago
Need Knowledge and Advise please
DX in 2017, G 5+4, had RP, did 37 Radiation, had BCR in 2019, been on Lupron since then. PSA is undetectable. Last Tuesday I woke to find my left leg swollen about a 1/4 larger than my right leg. Went to urgent care, Urinalyses normal, Kidney/Liver function normal . Had a pelvic/abdominal CT scan on
DX in 2017, G 5+4, had RP, did 37 Radiation, had BCR in 2019, been on Lupron since then. PSA is undetectable. Last Tuesday I woke to find my left leg swollen about a 1/4 larger than my right leg. Went to urgent care, Urinalyses normal, Kidney/Liver function normal . Had a pelvic/abdominal CT scan on
5_plus_4
in
Advanced Prostate Cancer
3 years ago
Finally joining in...
I'm not new here, but I have only been a spectator for a few years. I'm 71, diagnosed with prostate cancer 20 years ago. After radical prostatectomy, clinical trial of chemo, and external beam radiation, the psa slowly rose until about 4 years ago, when I began Lupron injections. The psa went down
I'm not new here, but I have only been a spectator for a few years. I'm 71, diagnosed with prostate cancer 20 years ago. After radical prostatectomy, clinical trial of chemo, and external beam radiation, the psa slowly rose until about 4 years ago, when I began Lupron injections. The psa went down
Okay4now
in
Advanced Prostate Cancer
3 years ago
Brief, intense radiation and hormone therapy for very high risk prostate cancer
Another trial suggests that SBRT may be as good as brachy boost therapy for very high risk patients. They added a short course of Erleada and Zytiga to just 6 months of Lupron. I think they erred in not treating the pelvic lymph nodes. https://www.prostatecancer.news/2021/06/brief-intense-radiation-and-hormone.html
Another trial suggests that SBRT may be as good as brachy boost therapy for very high risk patients. They added a short course of Erleada and Zytiga to just 6 months of Lupron. I think they erred in not treating the pelvic lymph nodes. https://www.prostatecancer.news/2021/06/brief-intense-radiation-and-hormone.html
Tall_Allen
in
Prostate Cancer Network
3 years ago
How often are scans done
Going next week for my 6 month scan since last December when the psa was 15.5, since doing arbitrone with prednisone and xgeva and lupron, the psa is now at .7. If the psa drops why would they do a CT scan when the last one showed no disease progression. The last bone scan showed some activity on the
Going next week for my 6 month scan since last December when the psa was 15.5, since doing arbitrone with prednisone and xgeva and lupron, the psa is now at .7. If the psa drops why would they do a CT scan when the last one showed no disease progression. The last bone scan showed some activity on the
Muffin2019
in
Advanced Prostate Cancer
3 years ago
One Step Up Two Steps Back - "Bruce Springsteen"
I'm 73 with Stage . Robotic, Lupron and Radiation on the checked list. I'm trying to stay "fit" but my former pleasant leisurely two mile stroll now feels like a 27 mile marathon where I hit the wall two minutes after leaving the house. My energy level non existent as my testosterone. The back pain
I'm 73 with Stage . Robotic, Lupron and Radiation on the checked list. I'm trying to stay "fit" but my former pleasant leisurely two mile stroll now feels like a 27 mile marathon where I hit the wall two minutes after leaving the house. My energy level non existent as my testosterone. The back pain
Rockybullwinkle
in
Advanced Prostate Cancer
3 years ago
Abiraterone or Zytiga and Excessive Gas. I recently switched from zytiga to the geberic abiraterone. I am experiencing excessive gas.
Scaring me. Anyone else have this? 69, on lupron, xgeva, abiraterone and predisone. Psa less than 1.
Scaring me. Anyone else have this? 69, on lupron, xgeva, abiraterone and predisone. Psa less than 1.
Mormon1
in
Advanced Prostate Cancer
3 years ago
Info on Xofigo
We have our consult with the Radiation Oncologist this Friday! Little history Diagnosed Dec 2016 Advanced stage 4 Gleason 4+5 PSA over 1,000! Lupron 15 months then Zytiga added! Exgeva started at diagnosis. PSA never went to single digits! Rising over last 6 months. March 29th 308.47 April 26th 312.34
We have our consult with the Radiation Oncologist this Friday! Little history Diagnosed Dec 2016 Advanced stage 4 Gleason 4+5 PSA over 1,000! Lupron 15 months then Zytiga added! Exgeva started at diagnosis. PSA never went to single digits! Rising over last 6 months. March 29th 308.47 April 26th 312.34
Yorkielover2
in
Advanced Prostate Cancer
3 years ago
Bipolar Androgen Therapy what is exact method Please please share your knowledge and experience if you’ve tried it for yourself good orbad
If anyone already great experience with BAT therapy please share how exactly they did exact even small details like weather you are taking testosterone suppressing injections like Lupron along with therapy? Like how much testosterone per month ? Till how long you have to wait and observe psa to show
If anyone already great experience with BAT therapy please share how exactly they did exact even small details like weather you are taking testosterone suppressing injections like Lupron along with therapy? Like how much testosterone per month ? Till how long you have to wait and observe psa to show
Nirman
in
Advanced Prostate Cancer
3 years ago
Second full body scan 2+ yrs later
CLINICAL HISTORY: Reason: eval metastasis from prostate cancer CREAT 1.15 03/04/2021 GFR 61 03/04/2021 COMPARISON: NM; Bone Scan 1/16/2020; NM; NMBONWB 5/30/2018CT; CTAPC
CLINICAL HISTORY: Reason: eval metastasis from prostate cancer CREAT 1.15 03/04/2021 GFR 61 03/04/2021 COMPARISON: NM; Bone Scan 1/16/2020; NM; NMBONWB 5/30/2018CT; CTAPC
arete1105
in
Advanced Prostate Cancer
3 years ago
Changing horses, Enzalutamide to Abiraterone(Zytiga)
My PSA has been on a slow but linear rise for 8 months. Now at 5.2. Most recent PET scan showed further activity in my mediastinum, increase in size of abdominal lymph nodes and a new first lesion in my right lung. The large pleural tumors on my left lung remain stable and there is no fluid. My oncologist
My PSA has been on a slow but linear rise for 8 months. Now at 5.2. Most recent PET scan showed further activity in my mediastinum, increase in size of abdominal lymph nodes and a new first lesion in my right lung. The large pleural tumors on my left lung remain stable and there is no fluid. My oncologist
DenDoc
in
Advanced Prostate Cancer
3 years ago
CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?
First of all I would like to thank you for responding to my previous post... It really helps me ! My mom had an appointment last Thursday 27th in another hospital to see if she could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib
First of all I would like to thank you for responding to my previous post... It really helps me ! My mom had an appointment last Thursday 27th in another hospital to see if she could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib
Noham027
in
CLL Support
3 years ago
Will be starting Nubeqa as soon as financials figured out!
Well it seems I have become castrate resistant. Psa rose after my December 2020 6 month Eligard shot to 2.18 from 0.78 in 10 weeks. Had a one month Lupron shot and dropped to 1.45 but in mid May was back up to 1.78. So here we go on the next step in this pathway. I had radiation and bracy boost in
Well it seems I have become castrate resistant. Psa rose after my December 2020 6 month Eligard shot to 2.18 from 0.78 in 10 weeks. Had a one month Lupron shot and dropped to 1.45 but in mid May was back up to 1.78. So here we go on the next step in this pathway. I had radiation and bracy boost in
teacherdude70
in
Advanced Prostate Cancer
3 years ago
Good news, but what next??
I really appreciate referring to the folks on this site! It’s a Godsend. Diagnosed 1.5 years ago with G9, Mets to pelvic bone and bladder neck invasion, nodes clear. PSA at diagnosis was 3.45. Have been on Cabergoline for 10 years due to a pituitary prolactinoma which had my Prolactin levels at 750😳
I really appreciate referring to the folks on this site! It’s a Godsend. Diagnosed 1.5 years ago with G9, Mets to pelvic bone and bladder neck invasion, nodes clear. PSA at diagnosis was 3.45. Have been on Cabergoline for 10 years due to a pituitary prolactinoma which had my Prolactin levels at 750😳
Canton44
in
Advanced Prostate Cancer
3 years ago
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