Good news, but what next??

[Canton44]

I really appreciate referring to the folks on this site! It’s a Godsend. Diagnosed 1.5 years ago with G9, Mets to pelvic bone and bladder neck invasion, nodes clear. PSA at diagnosis was 3.45. Have been on Cabergoline for 10 years due to a pituitary prolactinoma which had my Prolactin levels at 750😳, Cabergoline immediately went to 14 (normal). Immediately went on Lupron and Erleada for PCa 1.5 yrs ago and PSA has been undetectable since. 6 months ago, had 37 rounds of XBRT, high dose seeding and 10 more rounds of XBRT. I am now being told scans show I am NED!! 👍. Docs want me to continue ADT thru Nov, and then stop. Thoughts?

[Magnus1964]

If Lupron and Erleada are still working why stop? It sounds like you part of a drug test program.

[Canton44 in reply to Magnus1964]

Good point, but it would be great to regain muscle mass and have less fatigue. Risky, I know.

[Hidden in reply to Canton44]

Sure , But an aggressive pc kicking your ass is far worse in my broken book of wisdom. Good luck 💪

[Hidden in reply to Hidden]

What of me kicking your ass? That has to be in that book of wisdom....😍

[Hidden in reply to Hidden]

That is pure fiction. I’d say that you are assuming something that Could never happen . Good you’ve still got an ego I guess

[Hidden in reply to Hidden]

That's not a very comprehensive book of wisdom

[Hidden in reply to Hidden]

Coming from you that’s a complement . Thank you

[Canton44]

Thanks so much Nalakrats. Greatly appreciated and I will follow you. At any point did you try stopping ADT?

[Canton44]

Totally understand, we are not Docs...but we must do what we think is best according to our research. Like your approach.

[Canton44]

BCR?

[Tall_Allen]

You can take a vacation. You have knocked your cancer back, not gotten rid of it.

[Hidden]

Congrats Canton. This is a good thing. Stay under the radar for many years.smell the flowers along the way 44!

[Canton44 in reply to Hidden]

Thanks Lulu, I certainly hope to, God willing.

[MateoBeach]

Did the pelvic bone met and bladder neck also get irradiated? Assume so to give you the NED. Congratulations! Many would consider two years of adjuvant ADT to be sufficient. so stopping it and follow PSA would be reasonable. If you should have BCR down the road, or new mets on scans (“In the unlikely event of a water landing. . “😆), then combined androgen would be better than ADT mono therapy. And of course whatever might be called for. Here’s hoping you will just stay clear, 👍👍🙏

[Canton44 in reply to MateoBeach]

Yes, radiation was given to prostate, bladder neck and pelvic bone lesions. Seeds were even put in the bladder neck. RO was super aggressive with me per my request.

[Chadsdad]

Nalakrats, I’m having great results with Eligard/Erleada. Last bone/ct scans showed NED. I was a 4+3=7 and 22.3 PSA at dx. What is your opinion of just dropping the Eligard for 12 months and get back on for 12 months intervals? The Erleada would be kinda like a security blanket. Would I even see a difference in loss of energy and hot flushes?