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Meningioma
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Any advice accepted in UCTD area
Sorry everyone but I've been diagnosed with a UCTD but also have a
meningioma
in my brain/spinal area (on a watch and wait for the latter). My problem, beside fatigue, is that I sometimes have a sort of delay between what my brain says I want to say and the words actually coming out!!!!
Sorry everyone but I've been diagnosed with a UCTD but also have a
meningioma
in my brain/spinal area (on a watch and wait for the latter). My problem, beside fatigue, is that I sometimes have a sort of delay between what my brain says I want to say and the words actually coming out!!!!
Angiedj
in
LUPUS UK
7 years ago
Hi I'm faithful and in fear.
4yrs ago diagnosed with
meningioma
on is on the left posterior fossa measures 17x 21x12 MM. (Transverse x craniocaudal x antieroposterior ) The lesion is related to the leaf and dura overlying the posterior aspect of the the oestrous temporal bone. I'm told it's small .
4yrs ago diagnosed with
meningioma
on is on the left posterior fossa measures 17x 21x12 MM. (Transverse x craniocaudal x antieroposterior ) The lesion is related to the leaf and dura overlying the posterior aspect of the the oestrous temporal bone. I'm told it's small .
Faithfull
in
Meningioma Support
7 years ago
Now got meningioma
Then I'm told I have a
meningioma
(a tumour of the meninges covering of the train (in other words a brain tumour). She said not life threatening or sight threatening and is referring me to a neuro surgeon. Has anyone else on here had this experience. To be honest, I'm feeling a bit scared.
Then I'm told I have a
meningioma
(a tumour of the meninges covering of the train (in other words a brain tumour). She said not life threatening or sight threatening and is referring me to a neuro surgeon. Has anyone else on here had this experience. To be honest, I'm feeling a bit scared.
Rita-D
in
Thyroid UK
7 years ago
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Runnings taken a back seat lately, slinky unwell!😞
An MRI scan has revealed a
meningioma
, a benign tumour on her left side of the brain, and is now waiting for her first appointment with a neurologist at St George's hospital to see what the next steps are, wether it's a wait and see and can be managed or if she will need surgery.
An MRI scan has revealed a
meningioma
, a benign tumour on her left side of the brain, and is now waiting for her first appointment with a neurologist at St George's hospital to see what the next steps are, wether it's a wait and see and can be managed or if she will need surgery.
davelinks
Graduate
in
Couch to 5K
7 years ago
Post op 2013
Hi i am Emma and I have a benign grade 1
meningioma
most removed in 2013. I also have a rare post op condition like Cognitive Dissosiative Disorder plus PTSD so i have dissosiative seizures if too stressed. I am still struggling with the new me but starting to accept some of it now.
Hi i am Emma and I have a benign grade 1
meningioma
most removed in 2013. I also have a rare post op condition like Cognitive Dissosiative Disorder plus PTSD so i have dissosiative seizures if too stressed. I am still struggling with the new me but starting to accept some of it now.
emmajppink
in
Meningioma Support
7 years ago
parasagittal meningioma (benign)
Hi I'm 51 years old and 2 year ago I was diagnosed with a parasagittal
meningioma
(benign) , I have yearly MRI scans just to check , but I'm starting to suffer with severe headaches night sweats , dizzy spells and insomnia, But my neurosurgeon said I'm fine?
Hi I'm 51 years old and 2 year ago I was diagnosed with a parasagittal
meningioma
(benign) , I have yearly MRI scans just to check , but I'm starting to suffer with severe headaches night sweats , dizzy spells and insomnia, But my neurosurgeon said I'm fine?
Bevvym
in
Meningioma Support
7 years ago
Is it safe to fly after craniotomy
Hi everyone, need your opinion if is it safe to fly after craniotomy for
meningioma
removal. I had my surgery 1/24/17 , stayed in ICU for 2 days and 3 days in the floor. I'm doing well, my doctor cleared me to fly after 2 weeks of surgery. We flying on feb 25, that's already 4 weeks after surgery.
Hi everyone, need your opinion if is it safe to fly after craniotomy for
meningioma
removal. I had my surgery 1/24/17 , stayed in ICU for 2 days and 3 days in the floor. I'm doing well, my doctor cleared me to fly after 2 weeks of surgery. We flying on feb 25, that's already 4 weeks after surgery.
Terence-08
in
Headway
7 years ago
Genetic Testing - Useful info or Project Fear?
Chronic Fatigue Syndrome; Chemical Sensitivity; Parkinson’s; Irritable Bowel Syndrome; Pre-eclampsia; Stroke; Spina bifida; Esophageal Squamous cell carcinoma; Acute Lymphoblastic Leukemia; Vascular Dementia; Bipolar disorder; Colorectal Adenoma; Idiopathic male infertility; Blood clots; Rectal cancer;
Meningioma
Chronic Fatigue Syndrome; Chemical Sensitivity; Parkinson’s; Irritable Bowel Syndrome; Pre-eclampsia; Stroke; Spina bifida; Esophageal Squamous cell carcinoma; Acute Lymphoblastic Leukemia; Vascular Dementia; Bipolar disorder; Colorectal Adenoma; Idiopathic male infertility; Blood clots; Rectal cancer;
Meningioma
fbirder
in
Pernicious Anaemia Society
8 years ago
eeny meeny miney mo.. whats your poison .. TBI or Tumor meningioma
and now it seems I have an ATypical
meningioma
.... So trauma to the Arachnoid, and now a brain tumor, gosh, what a co-incidence... I didnt have either before that driver went head on into us crossing the white line ...
and now it seems I have an ATypical
meningioma
.... So trauma to the Arachnoid, and now a brain tumor, gosh, what a co-incidence... I didnt have either before that driver went head on into us crossing the white line ...
trishy63
in
Headway
8 years ago
Elimination of DLA replacement PIP
At add insult to injury, I was born asthmatic, added Bronchiectasis by age 6, need hearing aids from age 21 and at 54 was diagnosed with a brain
meningioma
. At that point it was pointed out to me I should have DLA. Since then I have relocated to a small flat, formally retired and survive.
At add insult to injury, I was born asthmatic, added Bronchiectasis by age 6, need hearing aids from age 21 and at 54 was diagnosed with a brain
meningioma
. At that point it was pointed out to me I should have DLA. Since then I have relocated to a small flat, formally retired and survive.
Carras22
in
Lung Conditions Community Forum
8 years ago
Hypothyroid, fat, no energy but I am not a sufferer of CFS!
He told me to ask a neurologist and strangely enough I had an appointment with one today because it appears that I may have temporal lobe epilepsy caused by a
meningioma
.
He told me to ask a neurologist and strangely enough I had an appointment with one today because it appears that I may have temporal lobe epilepsy caused by a
meningioma
.
Iphoenix
in
Thyroid UK
8 years ago
Don't know what is wrong but feeling the heat worse than hot flushes!
My other health issues also include a
meningioma
(benign brain tumour) and hypothyroidism and guess what the symptoms are all intermingled. All I know is I am just fed up with living like this every day. If any of you can help me out with this I would be extremely grateful.
My other health issues also include a
meningioma
(benign brain tumour) and hypothyroidism and guess what the symptoms are all intermingled. All I know is I am just fed up with living like this every day. If any of you can help me out with this I would be extremely grateful.
Iphoenix
in
Hughes Syndrome APS Forum
8 years ago
Sphenoid wing meningioma
This found a 12mm sphenoid wing
meningioma
. My hematologist is referring me to King's hospital in London but have heard nothing yet.
This found a 12mm sphenoid wing
meningioma
. My hematologist is referring me to King's hospital in London but have heard nothing yet.
JoyKF53
in
Meningioma Support
8 years ago
Planum Meningioma - Eye turning in
Two Mondays ago I was diagnosed with a very small (6 mm by 3 mm [or so]) brain tumor, frontal lobe planum
meningioma
. It looks as if it's benign and slow growing, but maybe it is pulling in my right eye and causing my cross-eyed-ness to be somewhat debilitating.
Two Mondays ago I was diagnosed with a very small (6 mm by 3 mm [or so]) brain tumor, frontal lobe planum
meningioma
. It looks as if it's benign and slow growing, but maybe it is pulling in my right eye and causing my cross-eyed-ness to be somewhat debilitating.
Asbeck
in
PMRGCAuk
8 years ago
Meningioma
I have been diagnosed with a posterior fossa
meningioma
18mm a short distance above foramen magnum has anyone had this condition I would be interested to hear from
I have been diagnosed with a posterior fossa
meningioma
18mm a short distance above foramen magnum has anyone had this condition I would be interested to hear from
Hidden
in
Meningioma Support
9 years ago
Feeling fed up
I saw a neurologist who found a
meningioma
on my brain scan, but apparently this doesn't account for any of the nerve pains. He said there was no cause for it on the scans. I am wondering if I am developing Fibromyalgia? I don't know what to do. Should I go see my new GP and explain all this?
I saw a neurologist who found a
meningioma
on my brain scan, but apparently this doesn't account for any of the nerve pains. He said there was no cause for it on the scans. I am wondering if I am developing Fibromyalgia? I don't know what to do. Should I go see my new GP and explain all this?
Maya23
in
LUPUS UK
9 years ago
Raised intra cranial pressure
This revealed no clots but a
meningioma
which they thought was not causing the problems. I am waiting for a neuro ophthalmologist appt, then possibly back to neurology. Questions are - is there anything i can do to manage the symptoms while waiting ?
This revealed no clots but a
meningioma
which they thought was not causing the problems. I am waiting for a neuro ophthalmologist appt, then possibly back to neurology. Questions are - is there anything i can do to manage the symptoms while waiting ?
sangje
in
Hughes Syndrome APS Forum
9 years ago
Raised intra cranial pressure - is it a hughes thing ?
At this point after asking for some feedback the neuroglist said 'its probably just one of those things -the good news was the ct was clear - well apart from the
meningioma
- and that's not doing anything' !!
At this point after asking for some feedback the neuroglist said 'its probably just one of those things -the good news was the ct was clear - well apart from the
meningioma
- and that's not doing anything' !!
sangje
in
Hughes Syndrome APS Forum
9 years ago
Struggling to keep to keep it together...
I am trying to be positive and realise how lucky I am compared to others but I've been through such a lot over the years(I could write a book) and just when I thought things were getting better I was diagnosed with a
meningioma
(after bumping my head)...that was in 2012.
I am trying to be positive and realise how lucky I am compared to others but I've been through such a lot over the years(I could write a book) and just when I thought things were getting better I was diagnosed with a
meningioma
(after bumping my head)...that was in 2012.
peaches2
in
Headway
9 years ago
Upset and Frustrated!!
The good news is that the
meningioma
that showed up on my MRI doesn't need treatment (surgery) but does not account for any of the widespread pains I'm currently getting (on top of the lupus joint pain): -hurting all over with a debilitating fatigue -burning tenderness in my arms and legs, particularly
The good news is that the
meningioma
that showed up on my MRI doesn't need treatment (surgery) but does not account for any of the widespread pains I'm currently getting (on top of the lupus joint pain): -hurting all over with a debilitating fatigue -burning tenderness in my arms and legs, particularly
Maya23
in
LUPUS UK
9 years ago
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