We moved house at the end of August and I thought I was doing really well on the LDN (Low Dose Naltrexone), but evidently I borrowed too many 'spoons ' and now I'm paying off my debt! I've been in bed for a whole month now and I'm really fed up. At least I have 2 kittens to keep me company, and a good view of trees from my new bedroom. But even the kittens are driving me crazy today wrestling on my bed and jumping all over me!
It probably doesn't help that I'm still grieving for my dad who died last Autumn, but I feel waves of despair and thoughts of 'what's the point of it all?'. I've been so ill this year and it's all so confusing - I thought it must be the Lupus flaring but the ANA keeps coming back negative and yet I feel so rubbish. All over flu like aches, some joint pain, burning pains in my arms and legs, nerve pain down my left side, muscle pain and cramps, and terrible fatigue. I saw a neurologist who found a meningioma on my brain scan, but apparently this doesn't account for any of the nerve pains. He said there was no cause for it on the scans. I am wondering if I am developing Fibromyalgia?
I don't know what to do. Should I go see my new GP and explain all this? I had a letter saying I had an appointment at the hospital for nerve conductivity tests but the neurologist implied this would be a waste of time, (it was like he was just humouring me because I was angry that he couldn't find a cause for the pain) so I just cancelled it. Also it's a 25 min drive away and I don't feel well enough to drive myself there at the moment. I had hoped the LDN would help me more than it is currently doing. I feel at a dead end. Any advice welcome.