Experiences with

Meningioma

I have a 2 cm meningioma near my optic nerve. If anyone had or have meningioma in this location, please share your experience. If you had surgery, who was your surgeon and at which hospital? Thank you.

I’ve had a meningioma since 2018, size of a small pearl. It’s monitored annually;MRI & a physical exam so far no changes. I’m having symptoms lately of intermittent fatigue and brain fog thats proving difficult to find a cause, my labs come up clear everything is spot on.

I have had multiple recurring meningiomas with subsequent infections since 2020. I have undergone radiation treatments x2. The first was 5 times/week x 6 weeks. The next was called TrueBeam. It was only one treatment in November of 2023, but it left me with brain lesions (areas of necrosis on

Atypical meningioma with separate radiation necrosis site.

An MRI scan followed and highlighted the Meningioma. Since my diagnosis which has left me traumatised i have been worried about the watch and worry as i call it approach.

New to this forum having only just been diagnosed with a small meningioma in the left posterior ventricle (10mm) last week. I would be interested to hear others experience of this, particularly if in the same area of the brain.

Hi was diagnosed with a meningioma in may thus year it is pressing on my trigeminal nerve I have seen neurosurgeon my options monitored radiotherapy surgery has anyone had these

I wonder if anyone has been prescribed PREGABALIN since being diagnosed with meningioma/s and if it has been successful for you? I also have Fibromyalgia, which is being (?) as I have chronic fatigue. I am being reviewed for M.E.

5 days post op. Wow. This is not what I anticipated. My question is for all who have gone through this How long does the swelling last? My face and head are totally numb on the side of the surgery. How long before sensation comes back? Any advice would greatly be appreciated TIA

I had a craniotomy about a week ago after finding a 5 cm meningioma which was affecting my vision and balance. I am on high doses of Steroids to reduce swelling and they are having terrible side effects. Anyone else had issues with them?

Active, social 72 year old female awaiting non malignant meningioma surgery around Christmas time. The meningioma is currently pressing on my optic nerve and causing vision deterioration in one eye. No other symptoms. No other health issues other than general age related arthritic bits!

Newly diagnosed (09/2024)with meningioma on right temporal lobe and transverse sinus vein.. I'm trying to get information and find a neurosurgeon. I have so many questions..

I had a craniotomy 7 weeks ago to remove a large meningioma. My head feels like it's being squeezed constantly. I'm also having issues sleeping it feels like the titanium plate is digging into the sides of my head.

I had a foremen magnum meningioma removed successfully in august 2016 which left me with some neuropathic pain in the right foot,ankle and calf.I had to have 2 ankle fusion surgeries as I developed some severe osteoarthritis in the same foot. The joint has not fully fused yet.

Hello , has anyone had any luck with dvla changing their rules on not been able to drive for 12 months following a grade 2 meningioma .

Hi All I am about to start a six-week course of fractionated brain radiotherapy having been diagnosed with a medium sized Petroclivial Meningioma which extends from the internal auditory meatus to the cavernous sinus and into Merkels cave. It distorts the pons, compressing it to the right.

hi every just got this report back I have MS and really thought my symptoms were related to a relapse since fatigue and vision are my biggest struggles, come to find out it’s this tumor not active ms lesions I get an MRI every year so this thing definitely just showed up! I have an appointment with

I was diagnosed by incidental finding with a 1cm x 1.3 cm benign meningioma last October. I had a contrast dye MRI in the September due to an unrelated very bad fall in the previous April. Wanted to rule out various other things.

I’m interested in any long term side effects of radiation treatment on meningioma grade 1 but regrowing.

I had a Meningioma tumour and Essential thrombycythemia Cal r diagnosed in 2021. Craniotomy of 2021 affected my left eye, which in February this year had squint surgery to my eye. This levelled it out with right eye. Still on hydroxycarbamide, clopidrigel and omezaprazole.