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Meningioma
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Meningioma
hi I’m looking for help with my
Meningioma
. I have had surgery but the tumour is growing again and I have been offered radiology treatment. What have you all been offered/done.
hi I’m looking for help with my
Meningioma
. I have had surgery but the tumour is growing again and I have been offered radiology treatment. What have you all been offered/done.
Godoone22
in
Meningioma Support
2 months ago
Clear
No change in the appearence of the
meningioma
. Another scan recommended in a years time. I'm pleased about that.
No change in the appearence of the
meningioma
. Another scan recommended in a years time. I'm pleased about that.
Showjumping
in
Meningioma Support
4 months ago
Meningioma !!
Morning all.1st ever seizure 23/07/22 ..14hrs in AnE...called back for a MRI scan 25/07/22 diagnosed with
Meningioma
brain tumour! Situated just above and behind my left ear.
Morning all.1st ever seizure 23/07/22 ..14hrs in AnE...called back for a MRI scan 25/07/22 diagnosed with
Meningioma
brain tumour! Situated just above and behind my left ear.
MadTrucker
in
Meningioma Support
7 months ago
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Solenoid/optic meningioma experience?
My husband just got diagnosed with
meningioma
behind his eye and solenoid area. We don't have surgical options. Does anyone have experience living with this type? What treatment did you get?
My husband just got diagnosed with
meningioma
behind his eye and solenoid area. We don't have surgical options. Does anyone have experience living with this type? What treatment did you get?
Naturemom11
in
Meningioma Support
4 months ago
Meningioma
On the 14th of August I was diagnosed with a
meningioma
it has been pushing on my optic nerve of my left eye leaving me practically bind in that eye. I suffer from headaches and sharp pains behind my eye. Am awaiting an appointment with neurosurgeon. What can I expect
On the 14th of August I was diagnosed with a
meningioma
it has been pushing on my optic nerve of my left eye leaving me practically bind in that eye. I suffer from headaches and sharp pains behind my eye. Am awaiting an appointment with neurosurgeon. What can I expect
Rocket20
in
Meningioma Support
7 months ago
Going through recurrent meningioma and growth in cystic encephalomalacia. Please share if anyone is going through cystic encephalomalacia.
HelloI had a craniotomy in 2020 for Atypical
meningioma
grade 2. Last week MRI showed recurrent
meningioma
and growth in cystic encephalomalacia. I am suffering from neuropathic pain. Please share if anyone is going through the same situation.
HelloI had a craniotomy in 2020 for Atypical
meningioma
grade 2. Last week MRI showed recurrent
meningioma
and growth in cystic encephalomalacia. I am suffering from neuropathic pain. Please share if anyone is going through the same situation.
nidhi123
in
Meningioma Support
8 months ago
Meningioma and post-operative shunt
I know shunts are mostly used for hydrocephalus, but I’m most interested in the experience of people who had/have
meningioma
and meningiocele. Many thanks David Pollak
I know shunts are mostly used for hydrocephalus, but I’m most interested in the experience of people who had/have
meningioma
and meningiocele. Many thanks David Pollak
Sebastian49
in
Headway
17 days ago
Flying with a meningioma
Is it safe to fly with a
Meningioma
. Whose advice do I go on? Any advice would be very much appreciated.
Is it safe to fly with a
Meningioma
. Whose advice do I go on? Any advice would be very much appreciated.
Limegreen2024
in
Meningioma Support
16 days ago
Anyone else have a DNET?
Have had quite a few issues & now have an incidental
meningioma
. Get next to no monitoring. Hope to hear from someone in maybe not the same boat but as near as.
Have had quite a few issues & now have an incidental
meningioma
. Get next to no monitoring. Hope to hear from someone in maybe not the same boat but as near as.
BettytheYeti
in
The Brain Tumour Charity
29 days ago
atypical meningioma 2 aggressive
has anyone had a recurrence of atypical
meningioma
and if so how long after first surgery
has anyone had a recurrence of atypical
meningioma
and if so how long after first surgery
Clayden
in
Meningioma Support
8 months ago
Facebook support group
I highly recommend to follow
Meningioma
Support Group on Facebook. Great community of people and information ☀️.
I highly recommend to follow
Meningioma
Support Group on Facebook. Great community of people and information ☀️.
DeeMay16
in
Meningioma Support
8 months ago
meningioma headaches
anyone still suffering severe headaches that wake them I’m almost 14 weeks post surgery headaches unbearable so tired . Feel left in the dark by doctors I wasn’t explained much about tumour it’s still bit surreal into hospital on a Thursday operated 6 days later and feel worse ever since I would love
anyone still suffering severe headaches that wake them I’m almost 14 weeks post surgery headaches unbearable so tired . Feel left in the dark by doctors I wasn’t explained much about tumour it’s still bit surreal into hospital on a Thursday operated 6 days later and feel worse ever since I would love
Clayden
in
Meningioma Support
8 months ago
Insomnia
My daughter had radiotherapy for a
meningioma
in the frontal lobe 8 months ago and has been suffering with severe insomnia.She is so tired but just cannot sleep.She has tried melatonin and zopiclone and neither has helped.Has anyone else had this problem and found something that helps?
My daughter had radiotherapy for a
meningioma
in the frontal lobe 8 months ago and has been suffering with severe insomnia.She is so tired but just cannot sleep.She has tried melatonin and zopiclone and neither has helped.Has anyone else had this problem and found something that helps?
stormcloud
in
Meningioma Support
7 months ago
Petrocival meningioma
Hi I’ve been diagnosed with a giant petroclival
Meningioma
and am awaiting surgery. I’m very worried about the outcome of the surgery and wanted to chat with someone whose had this surgery please
Hi I’ve been diagnosed with a giant petroclival
Meningioma
and am awaiting surgery. I’m very worried about the outcome of the surgery and wanted to chat with someone whose had this surgery please
Bordermum
in
Meningioma Support
9 months ago
Atypical meningioma 2
I was diagnosed with atypical
meningioma
on the 25th May 23 got it removed 31st May was on my right front lobe after operation face was swollen and weakness in left leg and arm was transferred back to other hospital for physio after one month I returned home and since my quality of life poor I have extreme
I was diagnosed with atypical
meningioma
on the 25th May 23 got it removed 31st May was on my right front lobe after operation face was swollen and weakness in left leg and arm was transferred back to other hospital for physio after one month I returned home and since my quality of life poor I have extreme
Clayden
in
Meningioma Support
8 months ago
Meningioma pressing on optic nerve
Got told i have a
meningioma
pressing on my optic nerve, my vision in my left eye is nearly gone. Am waiting on an appointment with the neurosurgeon. I'm self employed a childminder and I've no idea what recovery time I'll need or how they'll go in etc. I know everyone heals differently.
Got told i have a
meningioma
pressing on my optic nerve, my vision in my left eye is nearly gone. Am waiting on an appointment with the neurosurgeon. I'm self employed a childminder and I've no idea what recovery time I'll need or how they'll go in etc. I know everyone heals differently.
Rocket20
in
Meningioma Support
7 months ago
intraventricular meningioma
just diagnosed with a
meningioma
, located in the ‘atrium’? of my right ventricle. Three options given, 1 recommended RST. How was it 4 u?
just diagnosed with a
meningioma
, located in the ‘atrium’? of my right ventricle. Three options given, 1 recommended RST. How was it 4 u?
ScooberDoo
in
Meningioma Support
9 months ago
Watch and wait
I was diagnosed with a 3cm benign
Meningioma
last March after suffering with severe vertigo..
I was diagnosed with a 3cm benign
Meningioma
last March after suffering with severe vertigo..
Limegreen2024
in
Meningioma Support
2 months ago
Meningioma recovery
16 months after surgery, still have trouble walking, fatigue, anyone feel the same?
16 months after surgery, still have trouble walking, fatigue, anyone feel the same?
Mj1976
in
Meningioma Support
10 months ago
frustrated
Morning, I was diagnosed with a
meningioma
behind my left eye on the 19th of September this year, yesterday was my first meeting with a neurologist who was very nice and spent a good amount of time with me but knew nothing about me or my case as my lovely GP and his secretary pushed for an appointment
Morning, I was diagnosed with a
meningioma
behind my left eye on the 19th of September this year, yesterday was my first meeting with a neurologist who was very nice and spent a good amount of time with me but knew nothing about me or my case as my lovely GP and his secretary pushed for an appointment
Simply71
in
Meningioma Support
5 months ago
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