Hi i am Emma and I have a benign grade 1 meningioma most removed in 2013. I also have a rare post op condition like Cognitive Dissosiative Disorder plus PTSD so i have dissosiative seizures if too stressed. I am still struggling with the new me but starting to accept some of it now. I have left sided weakness and loss of feeling too. My seizures have been very scarey as come on like a stroke. I last had one 6mths ago and was out for 10mins in hosp and they did not know what to do. After a fourth attempt at a blood gas i came out of it. So i have tried to not have more as terrified. I have just found headway and brain trust plus The Brain tumour charity as its been tough last 3yrs post op. I just wanted to introduce myself and give and get support from others.
Post op 2013: Hi i am Emma and I have a... - Meningioma Support
Post op 2013
Hi Emma, welcome to this lovely group where you can let all your fears out and know somebody will come along and make you feel better! I too have an m, I had surgery in 2012 to remove and was ecstatic to be told it was all gone, however I found out a few years later that it had grown back again, obviously not as big as when it was first discovered! I then had stereotactic radiotherapy to try to prevent growth. I'm keeping all my fingers and toes crossed that it's under control but I'm not stupid enough to think that I might never have to deal with this again! You have found a really great group of very supportive people. Best wishes to you. xx
Hugs x Thanks for welcoming me Peaches2. I have my fingers crossed for u x my mri scan in july at mo not grown back. X
benign meningioma diagnosed October 23
Looking for alternatives to surgery as options for benign meningioma
Fractionated Radiotherapy for Meningioma 
meningioma question
Flying with a meningioma
